Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm New Here, Pls Hlp With Symptoms And Necessary Tests


Guest drgnslaya

Recommended Posts

Guest drgnslaya

Hi all,

I'm Rohan from india i've been mostly on an indian vegetarian diet all my life, whereby wheat and rice is a staple ingredient. I've had a lot of gas (and diaorrhea problems) since childhood which generally speaking ppl attribute to a vegetarian diet. I've started having meat regularly since the last 8 years. I also had a lifting accident at work and have had tests done for hernia which were inconclusive. Incidentally, my problems have been aggravated since the incident. I've been suggested by doctors to check for gluten intolerance or IBS. I wanted an opinion from actual GI sufferers, if you could enlighten me on the most common symtoms and the tests you have gone through to determine that. I want to avoid unnecessary tests. My symptoms were not so troublesome prior to the incident but now they include a severe persistent pain in the lower left abdomen, a lot of gas, pain gets worse with gas, frequet diarrhoea mostly gets worse when i eat (diet does include lot of wheat). On occassions when i've had meat without any wheat the problem has been more manageable. Any help in the matter would be really appreciated!

Regards,

Rohan.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I would encourage you to get a blood test (the standar celiac panel), and go from there, depending on the results. The blood test is fairly straight forward, and you can decide after getting the results from that whether or not you want to do an intestinal biopsy. You can also try the gluten-free diet, but do not try the diet prior to doing blood tests, because the blood tests look for antibodies to the wheat protein, and if you are not consuming gluten, your body will have nothing to react to, and you may not see antibodies in the bloodstream.

There are a lot of grains that you can eat that are gluten free that provide adequate protein (some celiacs are vegetarian), including quinoa, millet, buckwheat, teff, and amaranth, so you're not stuck with rice and corn. :-) In addition to all those wonderful fruits, veggies, lentils, and beans, of course. :-)

lushgreen Apprentice

Hi Rohan,

You should have the "full" celiac panel done which includes five tests. I couldn't tell from your post if you are currently in India. Please determine that the lab at which the tests are done is a reliable one, experienced with celiac testing. Here in the US, I believe Prometheus is considered the most reliable. Be aware however that it is possible to have negative tests and still have celiac. You will have to determine after your blood tests whether to proceed with an endoscopy/biopsy. As Tiffany, said make sure you remain on a gluten diet until you have been biopsied (if you decide to go through it). You may also want to be checked for other food intolerances/sensitivities/allergies. A search on this site will easily inform you about both celiac blood panel as well as common symptoms.

Guest drgnslaya
Hi Rohan,

You should have the "full" celiac panel done which includes five tests. I couldn't tell from your post if you are currently in India. Please determine that the lab at which the tests are done is a reliable one, experienced with celiac testing. Here in the US, I believe Prometheus is considered the most reliable. Be aware however that it is possible to have negative tests and still have celiac. You will have to determine after your blood tests whether to proceed with an endoscopy/biopsy. As Tiffany, said make sure you remain on a gluten diet until you have been biopsied (if you decide to go through it). You may also want to be checked for other food intolerances/sensitivities/allergies. A search on this site will easily inform you about both celiac blood panel as well as common symptoms.

Hello,

Thankyou for your input. I am curretly in India, Athough i did spend last 6 years in Australia. I was mostly on a meat diet back in Oz. One doctor here told me my immunity is lower to indian conditions now because of life abroad due to the difference in hygiene practices. I take RO water here so the water couldn't be responsible. I have had a colonoscopy (OMG its the most disgusting thing i've ever been through), endoscopy and a duodenum biopsy, all of which were inconclusive. Which biopsy are you referring to? I have not had any allergy testing done though.

Have a good day!

Regards,

Rohan.

lushgreen Apprentice

duodenal biopsy. what made your biopsy "inconclusive"? I just received such a diagnosis. see Open Original Shared Link

CMCM Rising Star

Hi Rohan.....I have always loved Indian food, but while a lot of it is actually great for people with celiac disease, here are some things I have trouble with: The naan breads are of course eaten a lot, so there might be your #1 problem. Some people with celiac/gluten problems also have problems with dairy, and so some of the cream sauces could cause problems, the yogurt, etc. This wass true for me as I also tested casein sensitive. In addition, I discovered I am also quite sensitive to starches, so that wonderful rice also gave me problems.

You might try to eliminate the bread and rice, and avoid the dishes made with cream and other dairy. Just give it a week or so and see how you feel. This is an easy way to test yourself, actually. Response to the gluten free (and perhaps also casein-free, starch free) diet will tell you a lot. When I cut all these things out I felt a thousand per cent better within just a few days.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      32

      Does anyone here also have Afib

    2. - knitty kitty replied to lehum's topic in Super Sensitive People
      9

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    3. - Scott Adams replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    4. - Theresa2407 replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    5. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,939
    • Most Online (within 30 mins)
      7,748

    Michelle C.
    Newest Member
    Michelle C.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
    • Scott Adams
      The reaction one gets when they get glutened varies a lot from person to person.  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Theresa2407
      A gluten ingestion can last for many months.  Many years ago there was a celiac conference in Fl.  Everyone there got contaminated with some having difficulty 6 months to recover.  It will hit your Lympatic system and spread  through the body and effect your nevous system as well. Most times when I get glutened it is from a prescription med that wasn't checked close enough.  the Pharmacuticals change vendors all the time.
    • Hmart
      Thank you so much for the responses. Every piece of information helps.  I only knowingly ate gluten once, that was four days ago. I had the reaction about 3-4 hours after consuming it. I’m concerned that after 4 days the symptoms aren’t abating and almost seem worse today than yesterday.  I haven’t had either breath test. I did ask about additional testing but the PA recommended me to a celiac specialist. Unfortunately the first available is mid-December.  As far as diet, I am a pescatarian (have been for 25+ years) and I stopped eating dairy mid-last week as my stomach discomfort continued. Right now, I’m having trouble eating anything. Have mostly been focused on bananas, grapes, nut butters, DF yogurt, eggs, veggie broth.   I ordered some gluten-free meal replacements to help.  But I’ll get all the items (thank goodness for Instacart) and try the diet you recommended to get me past this period of feeling completely awful.  Yes, my doctor diagnosed celiac. I was concerned it wasn’t right based on the negative blood test and my continued symptoms.  Even if you are ‘glutened’ it shouldn’t last forever, right? Is four days too long?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.