Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So0o Being New And All...

Kiki

By Kiki
in Coping with Celiac Disease

Recommended Posts

Kiki Explorer
Kiki
Posted

So with being new to this site...do we ever talk about anything else other than our illness. Not that there really is much I can think of at this particular moment in time but.. i dont know lol. Hope everyone is doing well. Back to what I know your all good at, which seems to be great advice.

If there is a list of web sites for good celiac foods could u share I can not find any to save my life. My mother is worried about me but i keep trying to assure her that im going to be alright. She doesnt really like message boards she likes chat rooms if anyone knows of a chat room could you enlighten me. Shes looking for like a list of foods that arent specialtys that can be used for both myself the celiac and herself and my brother the non-celiacs. Also I use Pantene Pro-V shampoo and conditioner are those okay to use. I use caress body soap as well. What is a good toothpaste? Im so confused there seems to be so0o much information and no so many brain cells to trap it all in lol. A list of makup and such. Also i heard of landry detergent and fabric softener.

I know there are alot of questions and i dont expect to ge tthem all answered but a start would be nice...

Everything is appreciated, Thank you!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Kiki

I know that alot of this is overwhelming to you as it was to me. There is alot on this site besides what you are looking at..

If you scroll down on on the opening page and scroll down, you will see a whole list of forum sites, from recipies, coping with, chat site (we tend to stay way from controversial issues though), children issues, teenage site, products and ingrediences, baking, friends and family issue site.......and so much more that just hearing us gab of celiac.

I have learned so much from this site since many of my doctors were not knowledable to celiac and I have found that most of it is here. All you have to do is ask, which you did. It could take you days and days to read through everything here and it will afford you the greated knowledge about your disease than any other place.

And to top it off, I have made some really good friends here that are some of the most caring people.

Try is out and I know that you mom will enjoy it, so she can make you some really good gluten free meals and you won't even know it. :):)

You can also do a search for toothpaste and shampoo and you will find it here

Guest nini
Guest nini
Posted

as far as mainstream products go, there are many... I have a newbie file that has a lot of that stuff in it... the Delphi forums list of mainstream gluten-free products, naturally gluten-free menu ideas and so on... if you would like this file e-mailed to you (it's a zip file) just e-mail me at nisla@comcast.net and I will send you the file ASAP. Just put "request newbie survival kit" in the subject line...

Jnkmnky Collaborator
Jnkmnky
Posted

There's a message board for topics other than Celiac.

mouse Enthusiast
mouse
Posted

Believe it or not, we discuss many different things beside Celiac. They usually are posted in the bottom of the forum selections. We have done pet photo's, weird happenings, etc. It is really a do it all forum and most of us are very friendly and helpful. We have also had a joke thread. We do try to lighten the serious subject of Celiac. And we all need to take a break from that at times. I hope that you stay around to find out how friendly we can be and see how weird our humor can be :blink::ph34r: .

Kiki Explorer
Kiki
Posted
  • Author

I will deffinaly be sticking around this place its great I have learned so much already. Everyone is so helpful and willing to do anything in their capabilities to make a newbie like me more informed on this thing(celiacs). I appreciate everything!!!!!!!!!! thanks

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    2. Theresa2407
      - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

      thank you for your advice. I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated. I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    3. KathyR37
      - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and gloves when cooking for them. One huge problem...
    4. Scott Adams
      - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are fee...
    5. KathyR37
      - KathyR37 posted a topic in Coping with Celiac Disease
      3

      New here

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748
    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New here

      By trents · Posted

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      Probiotics

      By Theresa2407 · Posted

      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      New here

      By KathyR37 · Posted

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      New here

      By Scott Adams · Posted

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      New here

      By KathyR37 · Posted

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.