Entrolab

[christa]

I was just wondering how reliable entrolab is and whaat your doctors have thought of the results and if the dx celiacs from these results. My blood work came back negative and I refuse tto do the glutten challenge. Entro lab said I have the main gene for celiacs and I am gluten and casein intolerant. I wouuld like my famiily doctor to recognize this. Another question is making sure you stay away from casein really importaant or once you staart feeling better can you eat it again?

[mmaccartney]

Casein is a life-long intolerance, sorry.

As far as Enterolab, the only comment I can make is that I am seeing my GI doc in about 25 minutes and am presenting those results to him. I'll let yuo know what he says...

[CarlaB]

Here is my doctor's actual response when I emailed him. I was glad to have him so supportive and validating. I do not have the celiac gene, but two copies of the gluten-intolerant gene. I'm so much better, my kids would physically assault me if I even pretended to consume gluten.

Very enlightening. I think I'll use this lab for future diagnostic testing with suspect celiac problems. Certainly would rather spend the money on a more accurate determination. I wonder if you have to be half dead before the antibodies show up in the blood -- next time I talk with Dr. G____ I'll see what his experience has been.

Thanks again -- will put these in your chart.

[Nancym]

If you're looking for confirmation from your regular MD or GI wrt Enterolab you might not get it. I think Dr. Fine's credentials are pretty sterling but his methods aren't recognized in the mainstream yet. However, his testing certainly backed up my findings from testing out a gluten-free/CF diet.

[Rachel--24]

I agree with Nancy....mainstream doctors arent likely to diagnose you as Celiac based on Enterolab results. None of the mainstream docs I've seen have been supportive of my test results. They are more supportive of the improvement since starting the diet....they could care less what Enterolab says.

On the other hand I also have another doctor who is not so mainstream and he is very supportive of the stool tests.

[mmaccartney]

Saw my GI doc. He was impressed with the Enterolab results, and indicated it confirmed Celiac diagnosis. He also had the standard anti-gliadin IgA be positive for me, and witnessed my response to the gluten-free diet.

He didn't question enterolab one bit. He was quite supportive of it, as was my childrens pediatrician. They are more mainstream then I can imagine at this point.

[Clark Bent as Stupor-Man]

Are there any independent studies that have been conducted regarding enterolab's testing? I'm not an expert in the medical field by any means so I don't know what kind of testing and research like double blind testing or whatnot would typically be conducted to validate a lab's methodology. It would be interesting to see the results from people sending in 2 samples from themselves in terms of how closely the test results match. Anyone know if anything alone the lines of this or any outside studies exist?