Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Tell Others When Eating Out?


cultureslayer

Recommended Posts

cultureslayer Rookie

Since there's not enough hours in the day, it's common to discuss projects over lunch. Since my doctor won't say: Yes, you definitely have celiac (positive IgG AGA but the rest were negative), I haven't really told anyone unless asked. So when you're eating out with someone that doesn't know you have celiac, do you warn them a few days ahead of time (so you can pick a restaurant and call to find out what your options are), before you order, or when they ask why you're just having a salad and seem militant about the no croutons part?

Sometimes I'll go riding for a day with some friends and we'll stop at some random hole in the wall restaurant when everyone gets hungry (no chance to call ahead) so that's pretty obvious. Just fill the tank bag with a back up lunch, but when I have the opportunity to call ahead I'm not sure if it's worth the effort (since some places just don't understand anyway).

Thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

For me, it usually depends on the situation.

If there's room/time to negotiate a place, I'll state it upfront, so that I can ask that we look for a thai place or a sushi place or something like that, so I can maximize my chances of finding something safe to eat. In a case like that, I'll say something like "I've got food intolerances that make eating out rather challenging, can we look for *this type* of food, as it'll make it much more likely I'll be able to find something that won't make me sick?" If they ask more detail, I'll be direct, but focused, saying "I'm gluten intolerant, so I can't have wheat, barely, rye, or oats. That particular type of cuisine tends to have dishes that don't use flour, or soy sauce (like Chinese food would), or breading, and so on. They'll likely have a rice dish or a salad or a grilled meat that I can have." Additional questions can be answered as they come up, again, directly, but in a focused manner.

If there isn't much option, and there's, say, just that one last restaurant for the next 60 miles on the stretch of freeway you're on, then I'll talk to the waitperson, asking he/she take my order last, after I've had a good chance to review the menu, and talk to them discreetly about ordering. After that, I'll usually get a few questions, and again, I answer directly, and in a focused manner - answering the question honestly, without rambling, but without embelishing. I'll get the "What happens if you eat a little bit of it?" question, and I'll answer honestly, but focusedly, "It causes an auto-immune reaction that damages my intestines, and additionally, I feel dizzy quickly, then nauseaous and bloated and gassy, and spend far too much time in the bathroom for the rest of the week." (I do generally opt to avoid the words constipation and diahhrea at the lunch table... ;-) ) I find that if I stick to answering questions openly, and politely, but without going on and on about it, they find out what they need/want to know, and I don't have to talk about it for five hours.

mouse Enthusiast

When we go out to dinner with friends and even friends with their friends, I give them a choice of MY restaurants and no one has had a problem with that. If they want pizza we go to a gluten-free pizza place. If they want Chinese we go to PF Changs. Same with Italian or whatever. I control where we eat. Either they want our company or they don't. I know that sounds harsh, but I do not care to get sick. Really everyone has been great about it. And the food has always been great so no complaints in that department.

cultureslayer Rookie

I refuse to make my problem someone else's (a.k.a. demand that I pick the place) but it does sound like trying to pick ahead of time can't hurt.

When out on the motorcycle the whole point is to find some empty twisty roads in the middle of nowhere, so I'm just going to bring my own food rather than risk problems (drowsiness is not good at 60mph, trust me).

tiredofdoctors Enthusiast

I usually just make the best of the situation. If there's a restaurant close that I know is gluten-informed, I'll suggest that. If not, I just ask for a salad, but I sound like Sally on "When Harry Met Sally"! :lol: I say, I'd like a bed of greens, including spinach. Do you have hard boiled eggs? That would be nice. Do you have cucumbers? Are they marinated in anything? No? Oh, that would be nice. Do you have tomatoes? I'd like those. Do you have Bacon? Is it real or is it imitation? Imitation, oh no thanks. (or Real -- GREAT!) and on, and on . . . then when they ask me what kind of dressing, I say, Oh , I'll just use salt & pepper.

I have always been one of these -- order off the menu, pick your side dishes, don't ask for anything special. This ordering thing is a totally new experience! If I tell the waiter up front what the problem is, though, they're pretty nice. It works! :P

StrongerToday Enthusiast

I'd either plan my own "picnic" or when in doubt i look for a place where I can get eggs and bacon.

NicoleAJ Enthusiast

All of my friends already know and are accomodating--so much so that if they bring along people I'm unfamiliar with often they'll inform their friend rather than waiting for me to do it. But for work related things, I usually don't make a big deal about things in advance. I'll make suggestions, but if we end up at an iffy place, I just explain my problem to the waiter and then I'll handle the people at the table. I try to get a read on what would be acceptable in that circumstance--if it's a professional conference where I don't know anyone, I'll usually try to answer the humorously by saying, "yeah, I've got one of the trendiest diseases around--definitely a low-carb lifestyle." If they ask what it does to me and I'm totally unfamiliar with them, I don't even want to mention GI issues, so I'll just say with a completely straight face, something totally innocuous like, "Well, Bob, my arm just spontaneously falls off, and it's usually my left one, so since you're on my left-hand side, you may want to watch out," and then they give you a look of confusion/amusement, and I've diverted their attention enough to say, "it's just unpleasant." If sarcasm doesn't seem an appropriate response to the "what does it do to you?" question, then I'll just say that it's temporarily debilitating and can have serious medical consequences for me in the long run.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,633
    • Most Online (within 30 mins)
      7,748

    Sandra Lene
    Newest Member
    Sandra Lene
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • deanna1ynne
      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
    • Inkie
      Thanks for the replies. I already use a gluten-free brand of buckwheat flakes I occasionally get itchy bumps. I'm still reviewing all my food products. I occasionally eat prepackaged gluten-free crackers and cookies, so I'll stop using those. I use buckwheat flakes and Doves Farm flour as a base for baking. Would you recommend eliminating those as well? It's a constant search.
    • Wheatwacked
      Gluten free food is not fortified with vitamins and minerals as regular food is.  Vitamin deficiencies are common especially in recently diagnosed persons,  Get a 25(OH)Vitamin D blood test. And work on raising it.  The safe upper blood level is around 200 nmol/L.    "Low serum levels of 25(OH)D have been associated with increased risk of autoimmune disease onset and/or high disease activity. The role of vitamin D in autoimmune diseases   🏋️‍♂️Good job!   I find the commercial milk will give me mild stomach burn at night, while pasture/grassfed only milk does not bother me at all.  While you are healing, listen to your body.  If it hurts to eat something, eat something else.  You may be able to eat it later, or maybe it is just not good for you.  Lower your Omega 6 to 3 ratio of what you eat.  Most omega 6 fatty acids are inflammation causing.    The standard american diet omega 6:3 ratio is estimated at upward of 14:1.  Thats why fish oil works
    • Inkie
      I  notice a reaction to tea bags, possibly due to gluten or other substances. Is this recognizable?
    • trents
      The blood tests you had done are not the main ones. The two main ones are the "Total IGA" (to check for IGA deficiency) and the "TTG-IGA". Current guidelines for the "gluten challenge" when people have been gluten free for a significant time period are the daily consumption of at least10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks leading up to the day of the blood draw. That should give you some perspective.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.