Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Need Help Asap!

judy05

Recommended Posts

judy05 Apprentice
judy05
Posted

Hi,

I have been gluten free for almost 3 years now and have been feeling much better until the last 2 weeks.

We are remodeling a new house(new for us) and my activity level has increased. I have noticed increasing pain in my legs and joints, which came to a head yesterday with severe pain in my right knee to the point of not being to walk very well. I saw my MD today and all he could come up with is arthritis and gave me an Rx for Ultram which is not doing anything. My husband has some leftover Vicodin from a dental problem, which is making the pain go away, but I can't continue on this. I am unable to take any NSAIDS because of severe GERD ( Advil, Aleve, Ibuprofen, etc.) Knowing my history of food intolerances I suspect this is the problem. I have intolerances to wheat, dairy, garlic, egg whites, and corn. I have been recently been eating

a lot of eggs and drinking a lot of V8 smoothies which has high fructose corn syrup. I have been avoiding these for a day but the pain is still severe as ever. I read somewhere that HFCS (high glucose corn syrup) can cause severe joint pain, but I can't find it on google. I would appreciate hearing from anyone who can help me. In the past eggs and corn haven't bothered me which is why I was eating them. Do you think I was overdoing it or am I now doomed to have arthritis pain? Any thoughts would be appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ebrbetty Rising Star
ebrbetty
Posted

my brother gets severe cramping in his feet, so bad it brings tears to his eyes. he was told it could be hes dehydrated and needs more potassium, so he started drinking about 8 glasses of water a day and at least one banana, its only been a little over a week and he said its helping?

I guess it can't hurt to try it

tarnalberry Community Regular
tarnalberry
Posted

I would definitely make sure to always avoid your intolerances, but with the house remodel, please look into seeing an orthopaedist, who can see if there is a joint problem. I'm guessing that your doc didn't take any x-rays or look into anything specific. You definitely shouldn't be dx'ed with arthritis without the bloodwork to show that you have it, or a referral to a rheumatologist to manage it.

CarlaB Enthusiast
CarlaB
Posted

I take MSM/glucosamine/chondroitin for joint pain. Whenever I run out, it comes back. Joint pain was the symptom that triggered my trying to figure out what my problem was, then I started losing a pound per week and really needed to figure out what was going on. I couldn't bend my left knee without pain. At first I thought it was a candida infection. Hmm, guess that would have been a little easier than this :(

judy05 Apprentice
judy05
Posted
  • Author
I take MSM/glucosamine/chondroitin for joint pain. Whenever I run out, it comes back. Joint pain was the symptom that triggered my trying to figure out what my problem was, then I started losing a pound per week and really needed to figure out what was going on. I couldn't bend my left knee without pain. At first I thought it was a candida infection. Hmm, guess that would have been a little easier than this :(

Thanks to all who have responded to this, I will try all of your suggestions. Just wanted to let you know that I am feeling a little better today but it still hurts. It's hard to find foods to eat when you have so many intolerances. The York test said to try to eat these foods one by one every 4 days and that is what I did in the past, but being busier I slipped up and was eating one or two every day, except for wheat that is.Also we have been eating out a lot, but the restaurant is very careful for me and I haven't had a problem in the past.

ravenwoodglass Mentor
ravenwoodglass
Posted
Hi,

I have been gluten free for almost 3 years now and have been feeling much better until the last 2 weeks.

We are remodeling a new house(new for us) and my activity level has increased. I have noticed increasing pain in my legs and joints, which came to a head yesterday with severe pain in my right knee to the point of not being to walk very well. I saw my MD today and all he could come up with is arthritis and gave me an Rx for Ultram which is not doing anything. My husband has some leftover Vicodin from a dental problem, which is making the pain go away, but I can't continue on this. I am unable to take any NSAIDS because of severe GERD ( Advil, Aleve, Ibuprofen, etc.) Knowing my history of food intolerances I suspect this is the problem. I have intolerances to wheat, dairy, garlic, egg whites, and corn. I have been recently been eating

a lot of eggs and drinking a lot of V8 smoothies which has high fructose corn syrup. I have been avoiding these for a day but the pain is still severe as ever. I read somewhere that HFCS (high glucose corn syrup) can cause severe joint pain, but I can't find it on google. I would appreciate hearing from anyone who can help me. In the past eggs and corn haven't bothered me which is why I was eating them. Do you think I was overdoing it or am I now doomed to have arthritis pain? Any thoughts would be appreciated.

Are you doing any drywall work? Drywall and mud (drywall compound for seams) are NOT gluten free. Try to avoid the dust if you are doing any of this it could be causeing your problem. Also for some of us the nightshade family can cause joint discomfort, eliminating potaotes, tomatoes and peppers helps for me.

judy05 Apprentice
judy05
Posted
  • Author
Are you doing any drywall work? Drywall and mud (drywall compound for seams) are NOT gluten free. Try to avoid the dust if you are doing any of this it could be causeing your problem. Also for some of us the nightshade family can cause joint discomfort, eliminating potaotes, tomatoes and peppers helps for me.

Dear Ravenwoodglass,

I wish you could know how a felt when I read your answer, it was like a bolt of lightening. You have made my day. I have been working with drywall, sweeping up the floor after the painters finished a room. Everyday I have had to wash my hair because it was stiff with dust. I never knew this. May God bless you for letting me know. The drywall is just about finished and I will be vacuuming tomorrow but now I will take the necessary precautions. I know my MD will never believe this!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Very interesting about the drywall!! We just moved into a house built in 1916 (finally, we bought it 5 years ago and have been renting it out till we could sell our other house!), anyway, we'll be doing a lot of renovation. I'll be sure to stay away when any drywall work is being done. Is plaster gluten free? I'm wondering if I need to be concerned with the plaster dust that's all over my house right now from tearing out the old bathroom (not original, but we're going to make it look that way now).

jerseyangel Proficient
jerseyangel
Posted

Oh my--I just thought of something, too. Right around the time I got sick enough to quit my job, we had our basement finished! There was tons of drywall dust--and it got everywhere! I remember distinctly literaly falling over while painting some bookshelves down there while the dust was still all over the floor (and probably still in the air). M-m-m, it all comes together.....I never knew about the drywall, either!

judy05 Apprentice
judy05
Posted
  • Author
Oh my--I just thought of something, too. Right around the time I got sick enough to quit my job, we had our basement finished! There was tons of drywall dust--and it got everywhere! I remember distinctly literaly falling over while painting some bookshelves down there while the dust was still all over the floor (and probably still in the air). M-m-m, it all comes together.....I never knew about the drywall, either!

I was wondering if anyone has any documentation about the problem with the drywall mud and dust. I can't figure out why it is affecting my legs and not my digestive system. I would like to read about it and also give something to my MD.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    2. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    3. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    4. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
    5. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep. One of my relatives is an insomniac and I am sure that is part of the problem. Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read,...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,354
    • Most Online (within 30 mins)
      7,748
    Gracieruizzz
    Newest Member
    Gracieruizzz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.  
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Insomnia help

      By cristiana · Posted

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.