Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diaper Rash


Guest BERNESES

Recommended Posts

Guest BERNESES

Hi Everyone- My niece who is 2 1/2 was tested for Celiac's (just blood work) about 9 months ago (I have Celiac's but my sister and I were both adopted so my niece does not share my genes). It came back negative but she was lactose intolerant and had reflux as an infant. She still has funky poops.

But she has had a HIDEOUS rash on her little bum for about a month now. She says it really hurts and it looks like very painful red pimples. My sis has been to the doc numerous times and they've tried a bunch of creams including antifungal but nothing eases it. She's going back to the doctor this week and I told her to ask about it potentially being DH. Hhas anyone had an infant or toddler with a diaper rash like this?

Also, is DH always itchy?

Thanks, Beverly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



momothree Apprentice

Beverly

Hi there. That sounds so much like my daughter. She is almost 19 months old, and has had a similar sounding rash, on and off, for about 6 months. It looks painful and like little pimples with white heads. Sometimes they kind of burst and blister. She also has some wierd poops (constipation, or loose etc.). We think the rash is DH as well even though her blood work was negative. It sounds like very young childrens' blood results can be inaccurate (from what I have heard/read). We are trying to get her in to see a dermatologist to have a look at it. Right now, we have her on a gluten free diet, but will take her off so that we can get accurate results. Since she has been on a gluten-free diet though, her previously bloated tummy is starting to look more normal. It's confusing what to do--get testing done, or just put her on a gluten-free diet to look for improvement there. We are constantly swinging back and forth (my husband and I) on which way to go.

My 12 year old son is in the diagnosis stages of celiac and we are waiting for the biopsy results. However, his blood test was positive (very high), and, although the diagnosis isn't official, we are pretty confident (as are his doctors) that it is celiac. My wee one's chances are pretty good at having it too. My middle child (10 yr old girl) has no symptoms at all , but her height is in the 50th percentile, and her weight isn't even on the charts. Sooner or later, we will all get tested.

It's really tough when they are so young and can't really articulate when something is bothering them. My baby can tend to be quite irritable at times, and we are always reading into it. Is her rash (or tummy or ??) bothering her, or is just normal baby/toddler stuff. :huh: Who knows.

Raegan

Kasey'sMom Enthusiast

Hi Beverly,

The first symptoms we saw with my dd was the re-occurant diaper rash. The rash worsened when she was 2 1/2. We took her to 3 dermatologist including a ped. derma Dr. She was on numerious steroid creams and anti-fungals. We also did the candida diet for awhile. Unfortunatly, the creams would ease the pain for a couple of days and then the rash would return worse than ever. She also continued to have cradle cap and now has psoriasis on her scalp.

I did keeep a journal on what she ate each day. I also put any changes in tempermant, weather, location, and symptoms etc. The journal was insturmental in our many Dr. appointments and investigating the cause of the rash. We did noticed her symptoms got much worse when she ate wheat. After she tested neg. for IgE wheat allergy, her allergist recommended we test for celiac disease. I have a distant relative that has celiac disease and that also sent up a red flag. While my dd does have digestive symptoms, reflux, tempermant changes and other classic celiac disease symptoms....the first thing we noticed was the diaper rash. The rash was very painful and it was especially difficult with potty training. Now that she's been gluten-free for almost a year the rash is so much better. She does have other food allergies and suffers with eczema. However, gluten was the biggest culprit.

Since my dd was tested I got tested several months later. My dd only had high antibody levels. But, I ended up testing positive with EMA and Ttg. I've have had classic symptoms since I was a child. I also started getting a few blisters on my hands over the last year. I got them on my fingers and they we're painful to touch and would sometimes itch. As long as I'm not accidently glutend I don't have them. :)

I'll say a prayer that you folks can find out what's causing her pain. Feel free to PM me anytime. :)

JakeARoosMommy Newbie

I have been using an over-the-counter cream called Eurcin (I hope I am spelling it right. pretty sure that is correct). Nothing else seemed to work. The doctor was constantly giving us creams, steroids, and anti-fungal, but this was all that I found to work. My son's rashs were like chemical burns. It burned on contact with his bowel. The Eurcin is safe to use on a baby. It is not in the baby aisle. I have found it in the health and beauty creams. They also sell an anti-aging cream (not what I am referring to). It is in a white plastic cylinder-like container (similar to Noxzema). It is a thick white cold cream. Another one of my friends, with three boys, swears by it. Give it a shot. I hope that your neice gets results with it. We've been there and I know how painful this can be. :)

Guest BERNESES

Yes- Eucerin. My sister has been using Aquaphor which is made by Eeucerin but that's not helping either. :(

JakeARoosMommy Newbie

I wonder if they tested her for diabetes? Diabetes often causes stubborn yeast infections that caused bad diaper rashes in Jake. Diabetes has also been known to cause irregular bowels. There are also allergies to certain types of diapers (I now use seventh generation that is chlorine-free) and butt wipes. You could also be looking at other food allergies, since she is still having irregular bowels. If she is lactose intolerant that means cow's milk and cheese (I used to forget about the cheese). I feel sorry for the little gal. That is just so painful! Jake's would blister and bleed. I hope that they are doing stool samples on her. We have had our rounds with that stuff. Best of luck to your little neice. :)

Guest BERNESES

Poor Jake- that's horrible! So the little guy has celiac and diabetes? Oh baby! My sister saw the pediatrician last night but I haven't heard from her. i'll let you know what I found out. Olivia (my niece) tested negative for Celiac's but they told my sis she was lactose intolerant and had baby IBS and reflux (which sounds fishy to me). Thanks for all your responses! B


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Suzie-GFfamily Apprentice
.. She also continued to have cradle cap and now has psoriasis on her scalp. <snip>

Hi there,

Our family is in the diagnostic stages, my mother was diagnosed last month (+ve tTG and +ve biopsy). Myself and my 2 oldest children have had positive tTg blood tests and we're trying to decide whether to have further testing done before we start our gluten-free diet.

I'm curious about your cradle cap comment. Have many parents noticed a lot of cradle cap in the celiac children? My oldest child, now age 8, had really think cradle cap by 1 yr of age and he still seems to have flaky residue on his scalp that might still be cradle cap.

JakeARoosMommy Newbie
Hi there,

Our family is in the diagnostic stages, my mother was diagnosed last month (+ve tTG and +ve biopsy). Myself and my 2 oldest children have had positive tTg blood tests and we're trying to decide whether to have further testing done before we start our gluten-free diet.

I'm curious about your cradle cap comment. Have many parents noticed a lot of cradle cap in the celiac children? My oldest child, now age 8, had really think cradle cap by 1 yr of age and he still seems to have flaky residue on his scalp that might still be cradle cap.

I understand that psorasis or dermatitis (probably a misspell) is one of the many symptoms to autoimmune diseases such as Celiac, Diabetes and Hypothyroidism. Jake, my toddler son, had very bad cradle cap. I haven't noticed anything lately though, outside of that awful diaper rash.

Guest BERNESES

I talked to my brother-in-law last night and he said it was a yeast infection so she is on antintibiotics?

Guest nini

gosh, that diaper rash sounds just like what my daughter used to get, I would feel soooooo bad for her, her poor little bottom was always so raw and blistered, even with those pimply like bumps that would blister and pop... I tried EVERYTHING, we used prescriptions, antifungals, so on... powders just irritated it more, what seemed to work the best was a mixture of monostat and neosporin with vaseline... sometimes just the neosporin... but it never ever completely went away, not until we got gluten out of her diet. It did make potty training especially difficult and I know it was sooooo painful for her. What really upset me is that the Dr.s were so unconcerned about this. They just dismissed it as all babies get diaper rash and that I needed to let her "air dry" we tried that too, but with her constant diarrhea that was a TERRIBLE idea!

shai76 Explorer

CVS sells medicated tar ointment. It's stinky and messy but it helps with my rashes better then anything that i available by presecription, even more then those steroid ointments. It might help until you can figure out what is causing the rash. It could even be food allergies (along with celiacs). Who knows? My son gets it from allergies.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,860
    • Most Online (within 30 mins)
      7,748

    Rena Celiac
    Newest Member
    Rena Celiac
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.