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mis-chiff

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mis-chiff Explorer
mis-chiff
Posted

I am diagnosed (biopsy) 2 years ago. I am 41 years old.

I have been sick since giving birth in 1983....I am so grateful to

find this forum. I still don't know what I can and can't do!

But for what I see so far, looks like I'm in the right place!

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Guest nini
Guest nini
Posted

welcome to this board, feel free to vent away about frustrations, share joys and accomplishements and just chit chat with other celiac and gluten intolerant individuals!

jaten Enthusiast
jaten
Posted

Welcome! As a member just since December, let me say, you're in the right place. I've never found an online forum that was so helpful and worth my time. Ask whatever questions you have. This is a "there are no dumb questions" environment.

mouse Enthusiast
mouse
Posted

Welcome to the forum. I only joined summer of 2005 and had been gluten-free for over a year. But, I learned more here then I did with my over 300 hours of on line research. This is a great place to get answers. And as everyone said "there are no dumb questions".

Canadian Karen Community Regular
Canadian Karen
Posted

Hi! Welcome to the board!

You have found a place that has a great bunch of people who are supportive, helpful, knowledgeable and great listeners when you need to vent!

As the others have said, our motto is "The only stupid question is the one not asked". Also, don't be shy - we've had pretty candid discussions about every kind of poop out there! We're definitely not queezy here! We also enjoy celebrating when someone has a nice, normal "O'Henry"! :lol:

Karen

schuyler Apprentice
schuyler
Posted

Welcome to the boards here! Everyone is awesome and really helpful, so as everyone else has said, don't be afraid to ask questions or join in on the discussions. You've joined a great group here!

Danielle

tarnalberry Community Regular
tarnalberry
Posted

Welcome to the board. this helpful group of people will have you gluten-free in no time! :-)

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evie Rookie
evie
Posted

:) welcome chiff. I have been here only a month and have learned so much from the very helpful members. some have had diagnosis a long time some only a few months like myself. we learn from all!!

Feel free to ask questions...you will probably get your answer. evie ;)

mis-chiff Explorer
mis-chiff
Posted
  • Author

Thanks everyone for your welcome. I was diagnosed in Dec 2003.

At that time, like the other member stated, over 300 hours of online stuff.

There is lots of information now, but as you all well know, it's hard

to get the right information. I struggled for the first while.

But - I still don't know how to cook fancy stuff. So, quick fixes for me...:)

I am looking forward to learning more, but still keeping my site

simple for the newbies. I needed a quick fix on an extremely tight budget, that of course

changed because of this. 3 family members and they hate my food...lol so lots of meal preping.

lots more information now though. thanks again :)

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

Welcome to the board. I come here everyday to read the posts and I swear I still learn more and more everyday. I thought somethings I knew the answers too, and boy was I off!

Just dont be afraid to ask anything! someone here will know the answer

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    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
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