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What! I Have What?

carochip

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carochip Newbie
carochip
Posted

Hey guys! I am 26 mom of two and was eating a chocolate Chip cookie when the nurse called me with my results with my stomach biopsy a week ago. I will savor that moment for a long time since i won't be eating that kind of cookie for a long time.

I was tired all the time and had strong pains on my lower right side for years that would come and go for months at a time. I had a hard time having bowel movements except when i was in Target all the way on the other side of the store. I would puch my cart and kid real fast and just say, "it's ok, honey mommy will change your diaper really quickly!"

I am happy to hear fom you guys and know that I have people I can share stories that I will try to make fun of since this intolorance is not always fun. Have any of you tried ordering from the gluten free food store online? What's worth spending the extra dollars on?

thanks!

Caroline

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StrongerToday Enthusiast
StrongerToday
Posted

I mostly order from Knickiknick... great breads, wonderful treats - including chocolate chip cookies!! The shipping is worth it, only $10 up to a $200 order.

Welcome!

tiffjake Enthusiast
tiffjake
Posted
I mostly order from Knickiknick... great breads, wonderful treats - including chocolate chip cookies!! The shipping is worth it, only $10 up to a $200 order.

Welcome!

Ditto (to the welcome!) and ditto to the kinickiknick (sp?)! They are wonderful! A life saver! I hope you are able to adjust well! I, too, LOVED those chips ahoys, and could eat a sleeve in one sitting! But I have found gluten-free brownies that are better! LOL. Tiff

jerseyangel Proficient
jerseyangel
Posted

Hi! Welcome!! I had to laugh when I read your post--I can relate :D I get a lot of things from

Open Original Shared Link free.com/

I have a ton of other food intolerances, and am able to use most of their stuff. I love the French Bread Mix--it's excellent. Their piecrust mix, cake and cookie mix and brownie mix are great, too. Best of luck with everything--and feel free to come here anytime and ask anything :)

carochip Newbie
carochip
Posted
  • Author

Thanks guys for all the info. I kind of think this is exciting because of the all the new ways of eating. I ahve one more question, does Soy have gluten? I know that soy sauce has wheat? I'm confused. Is sushi safe?

tiffjake Enthusiast
tiffjake
Posted
Thanks guys for all the info. I kind of think this is exciting because of the all the new ways of eating. I ahve one more question, does Soy have gluten? I know that soy sauce has wheat? I'm confused. Is sushi safe?

Soy (like soy flour or soy beans) is ok. But soy sauce has wheat in it (maybe someone else on here knows why, I don't!) so not regular soy sauce. But they do make a gluten-free soy sauce. And sushi sould be ok as long as you don't get the kind of rolls with the fried shrimp. I got food poisoning from shushi, so I haven't had it in a LONG time, but from what I remember, my fav was simply avacado, crab meat (make sure they use real crab and not imitation meat), rice, seaweed wrap, and all of those are safe.

francelajoie Explorer
francelajoie
Posted

La Choy soy sauce is gluten free.

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momandgirls Enthusiast
momandgirls
Posted

Just receive our first order from www.glutenfreepantry.com - We've tried several of their things and, for the most part, really like them. Their brownies are absolutely fantastic - I had to tell people to stop eating them and leave them for my daughter!

hez Enthusiast
hez
Posted

Most commercial soy sauce is not gluten-free because it is fermented with wheat? Is that correct? You can easily find gluten-free soy sauce, I use San J. Another great find is for gluten-free pasta try Tinkyada. You will not be able to tell the difference! It is that good and worth the extra cost.

Hez

eKatherine Apprentice
eKatherine
Posted

Tamari is one type of traditional Japanese soy sauce that is wheat-free. Most brands that make tamari also make shoyu (regular Japanese-style), and often several kinds. Read the labels carefully.

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

For your sushi cravings.. watch any with the imitation crab meat. almost all of it has wheat in it. I know somewhere out there there might be a brand that doesnt have wheat, but I have heard it isnt very good

But welcome to the board!!!

SueC Explorer
SueC
Posted

I absolutely love your attitude :) . Welcome.

This is a great place to ask questions and find lots of useful information. It has been a life saver for me many times!!! I hope you start to feel better quickly.

If you live in a city with health food stores you may find alot of gluten-free products on their shelves. There are lots of baking mixes you can get but it is pretty easy to substitute gluten-free flours into your favorite recipes.

Guest nini
Guest nini
Posted

Welcome to the board, and I have to say Kinnikinick is def. worth spending the money to order from them, especially because their Montana chocolate chip cookies are the closest thing I have found to satisfy my chips ahoy craving! Especially when they are dipped in milk!

I also shop from the Gluten Free Mall and again, worth the money. I order Barkat Porridge and Glutino Break Bars (Like a Kit Kat)

If you have a Whole Foods near you, you should be able to get a lot of gluten-free stuff, and check out health food stores, you may be surprised to find that you have stores near you that stock gluten-free foods and you won't need to spend the extra money on shipping.

Don't go out and buy a lot of replacement foods at first, stick with staples like Tinkyada pasta (I promise it's really really good) and make foods that are naturally gluten-free. Fresh fruits and veggies, meats that aren't breaded or marinated with wheat/gluten, potatos, rice, corn... there really is a lot you can eat, so don't worry, we will show you the bestest yummiest foods and help you with recipes and if you have a craving for anything in particular, don't hesitate to ask here and I'm sure one of us can help you satisfy your craving!

Mandy F. Apprentice
Mandy F.
Posted

Welcome to the board! I'm still pretty new, too. Everyone on here has been extremely helpful and it really makes this disease more managable!

As far as foods, I got a sampler pack from glutensolutions.com. It was pretty good and fairly affordable for everything you get. Also, the Kinnikinnick chocolate chip cookies really are excellent. I gave one to my roommate and she never even knew it was gluten-free!

Also, If you have a Whole Foods, they have a "gluten free grocery list" on their website to help you find the items more quickly.

Mandy

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    • trents
      Bob red mill gluten free oats

      By trents · Posted

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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
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      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
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      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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