Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Detox Symptoms?


Mia H

Recommended Posts

Mia H Explorer

I have been off gluten now for a week since my 3 week gluten challenge.

Yesterday and today I woke up with such stiff muscles and sore joints. I felt puffy, my sinus felt congested but I didn't have a runny nose. I almost felt like I had a 6 pack of beer last night. And soooo tired.

Anyone have these symptoms after going off and how long did they last?

Thanks!

Mia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nettiebeads Apprentice

Have you completely eliminated gluten from your system? All meds, toiletries and such confirmed gluten-free? Once I got off of it, the only time I had problems was when I was cross contaminated. Did you eat out? Use a toaster, old pan, wooden spoons or something from your pre-gluten-free life? I hope you are better soon.

Annette

Mia H Explorer
Have you completely eliminated gluten from your system? All meds, toiletries and such confirmed gluten-free? Once I got off of it, the only time I had problems was when I was cross contaminated. Did you eat out? Use a toaster, old pan, wooden spoons or something from your pre-gluten-free life? I hope you are better soon.

Annette

You know I did have Chipotle the night before the "hang over" started and I was too shy to ask for new gloves. Maybe I will try not eating out for a month and then I can see more clearly what is a gluten reaction. Thank you Annette. I can see there will be a high learning curve for a while.

Mia

mandyann Newbie

Hi There-

I'm new here as well and was going to post a similiar message. I am also one week into a gluten free diet. Two days ago I felt extreme fatigue and a detox feeling in my muscles but today I woke up pain free, the first time in many months. I am hopeful that this isn't just a coincedence but my pain cycle is so consistant that it is really a shift for me. I have heard that it takes longer than just a week to see a difference but maybe someone can shed a little light for us here.

Thanks-

Diana

Dinbren Newbie
You know I did have Chipotle the night before the "hang over" started and I was too shy to ask for new gloves. Maybe I will try not eating out for a month and then I can see more clearly what is a gluten reaction. Thank you Annette. I can see there will be a high learning curve for a while.

Mia

I love chipotle and it is usually fine for me. Last week however, not. Had some and could tell almost immediately that something was wrong. Guess I got some cross-contaminated. Do folk usually ask them to change gloves then??

nettiebeads Apprentice
You know I did have Chipotle the night before the "hang over" started and I was too shy to ask for new gloves. Maybe I will try not eating out for a month and then I can see more clearly what is a gluten reaction. Thank you Annette. I can see there will be a high learning curve for a while.

Mia

Once I needed some cuts from the deli and the lady was just finishing up reloading the breaded chicken when she came over to help me. I asked her to please change her gloves in a rather apologetic way, and she apologized to me for not changing them as a matter of course. First time I had ever stood up for myself that way too. I was proud of me and I didn't get sick from my food items! I find that usually when I preface something like that with "I'm sorry, but I'm going to have to ask you.... I can't risk cross-contamination..."

mature people will try to be helpful. Yes, celiac does make you do things outside of your comfort zone, but it will come to you. The more you want to be healthy, the easier it will be.

penguin Community Regular
I love chipotle and it is usually fine for me. Last week however, not. Had some and could tell almost immediately that something was wrong. Guess I got some cross-contaminated. Do folk usually ask them to change gloves then??

I ask them to change gloves most of the time, although I've never been glutened there. I only get the bol, not the tacos, so it doesn't make a huge difference. If I got the tacos I'd definitely make them change gloves. They also use their hands to serve up lettuce and cheese, so there is a cc risk there. I always get mine without lettuce or cheese. As always, buyer beware!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dinbren Newbie
I ask them to change gloves most of the time, although I've never been glutened there. I only get the bol, not the tacos, so it doesn't make a huge difference. If I got the tacos I'd definitely make them change gloves. They also use their hands to serve up lettuce and cheese, so there is a cc risk there. I always get mine without lettuce or cheese. As always, buyer beware!

What do you do generally at Mexican restaurants - do you avoid the corn chips in case they've been handled?

Matilda Enthusiast

..

Mia H Explorer
Although most people see an improvement fairly quickly going gluten-free, I think it's normal to notice problems after a week or so. It's as though your body just goes, "Phew what a relief", when you get rid of the major sources of gluten, then starts hassling you about the little bit that's left. It will get better, but takes time. When I look back I don't really think I started feeling sane until about 6 months in, even though it only took me a week or 2 to tell me I was doing the right thing with the diet.

I think it will take time. I saw on another post that you can feel worse before better. One major thing I feel is like a dark cloud has been lifted off. I don't wake up with stomach pain every morning and major constipation anymore. I was so constipated I couldn't eat breakfast until I had metamucil and went to the bathroom first.

I just have to be patient and I so appreciate all the info and support and personal stories here. It helps me get through each day.

Mia

nettiebeads Apprentice

[i just have to be patient and I so appreciate all the info and support and personal stories here. It helps me get through each day.

Mia

Lister Rising Star

i have been gluten free for 2 weeks now, not that long and i had instant improvements almost all of my symptoms went away besides for my stomic poping/gurgaling all the time. but after the first week it was like all the symptoms had just magicaly come back and im super carefull with cc. so im pretty sure its normal for you to go in and out of feeling like poop for a couple of weeks or months. dont really know though just my opinion

Lillyth Explorer
Have you completely eliminated gluten from your system? All meds, toiletries and such confirmed gluten-free? Once I got off of it, the only time I had problems was when I was cross contaminated. Did you eat out? Use a toaster, old pan, wooden spoons or something from your pre-gluten-free life? I hope you are better soon.

Annette

WOODEN SPOONS?

Is there something I don't know about using wooden spoons? (I use them all the time - could they be contaminated?)

Guest nini
WOODEN SPOONS?

Is there something I don't know about using wooden spoons? (I use them all the time - could they be contaminated?)

if you use wooden spoons and you haven't replaced them from before going gluten free, then yes absolutely you need to replace them. Wooden spoons are very pourous and can hold onto trapped gluten particles... old scratched up non stick pans too, even collanders used to drain pasta. All have to be replaced, If you live with non celiacs and they are not eating gluten-free and cooking in the kitchen, you may want to designate a part of your kitchen a gluten-free zone and keep all your gluten-free utensils, pots and pans and even a gluten-free toaster in this area. I had to get rid of all my wooden spoons and got new nylon ones and stainless steel. Also invested in stainless steel pots and pans that are much easier to keep clean and decontaminated. (my hubby eats gluten and cooks his own food sometimes when he doesn't want to eat what my daughter and I are eating). If you share a toaster, get a toaster oven, that way you can put foil down on the rack before toasting your gluten-free breads.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,472
    • Most Online (within 30 mins)
      7,748

    731049
    Newest Member
    731049
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.