Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scared Of Getting Glutened While Away


Moongirl

Recommended Posts

Moongirl Community Regular

So im going away from home for the first time since dx (about 7months) and im scared of getting glutened. Im not really scared of the food part cause we have talked back and forth with the hotel, but im scared if i do get glutened that i will be stuck in the hotel, and be miserable. its only a weekend thing, so it would ruin the whole weekend....any suggestions incase i do get glutened, because i really havent had a run in with gluten i think execpt the time i ate McD ff in the first month of my DX and i had belly button pains for a week! So im not really sure how i will react to gluten, how should i prepare??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mango04 Enthusiast

The best way to prevent a glutening is to always always always have safe food on hand. Carry food around with you everywhere you go (whether it's gluten-free bars in your purse, almonds, or whatever). That way you won't ever get too hungry, which can tempt you to eat food you might be unsure of. Only eat what you know is 100% safe! You also might want to carry around small packets of salad dressing - those can come in handy :)

mmaccartney Explorer

Most hotels will provide a refridgerator and microwave. If not, talk to a manager and explain your needs. I've gotten some push back from hotels, but as soon as I explain my disease and dietary requirements they have always come through.

Best to bring your own food and not risk getting sick!

I carry a "survival kit" in my car, lots of dehydrated foods, and "instant" stuff. Also several rice dishes. I plan on getting hotplate and some cookware to keep in there as well...

gabby Enthusiast

I just spent the weekend away from home, and here's what I did (we travelled by car):

I bought a portable soft cooler that is enough to fit about 6 pop cans. I put in two of those frozen cold bags and filled it with:

-baggies of veggies (celery, carrots, red peppers, etc)

-a couple cold hard-boiled eggs

-some home-baked cold chicken pieces

-a baggie of crispy bacon

I also brought along some home-popped popcorn, safe soda and a bag of safe potato chips.

Once in the hotel, I told the staff to empty out the bar fridge, and I filled it up with my stuff. I always had food on hand just in case things didn't work out at the restaurants.

Now, an important thing to remember when eating out: ask questions like: do you use a dedicated toaster? Do you prepare steak/bacon/eggs on a safe part of the grill? Is the gluten-free pizza cooked in a gluten-free part of the oven?

Hope this helps

tarnalberry Community Regular

I second (third?, fourth?) the idea of carrying plenty of portable food with you so you aren't tempted to have something you aren't certain about. Other than that, there aren't any guarantees, but everyone's reactions are different - if you haven't been strapped to a bathroom in the past from reactions, there's no reason to expect you'll suddenly be so in the off-event you do get glutened. Don't worry yourself into feeling bad; you'll likely be just fine, and have a wonderful time! :-)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,003
    • Most Online (within 30 mins)
      7,748

    JoEllen Ball
    Newest Member
    JoEllen Ball
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.