Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hospice


penguin

Recommended Posts

penguin Community Regular

I'm thinking of trying to volunteer for the local Hospice, and I was wondering if anyone else had experience with that kind of volunteer work, or even experience with a hospice in general.

It's not like I have a lot of free time (definitely don't :rolleyes: ) but it's something that for some reason appeals to me. I took a class on death and dying a year ago and I've been interested in and supportive of hospice ever since. I think I also need another volunteer opportunity, although scouts is very rewarding. I think I could handle it emotionally, or at least I hope I'd be able to.

Any thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DingoGirl Enthusiast

Chelsea, good for you! Hospice is SO SO wonderful....we used them when my dad was dying of cancer almost 20 years ago....just the kindest people. I"ll never forget the kind words spoken at exactly the right time, about one hour before my dad died, by a gentle Hospice nurse, which prompted me into an action I might not have thought to do...

I went through the entire volunteer training in Monterey, then moved back home sooner than I expected, so I never did any of it there and didn't do it here because I was getting so sick, didn't have the energy to do it. There are all kinds of opportunities within hospice, from driving patients, to sitting wtih patients to relieve their loved ones/caregivers, to holding hands with the dying - they keep a vigil with the ones closest to death. Sorry if you already know this...I get kind of emotional thinking about Hospice and how wonderful they are. Honestly, while going through the training, I wasn't sure I could handle it emotionally, but the training is wonderful anyway so I never considered it a waste of time.

Give it a shot!

by the way, is that a bat costume you're wearing??

Blessings -

StrongerToday Enthusiast

My grandfather was in Hospice, and it was such a blessing! It was a beautiful facility, it had a family room with things to keep the kids busy, a giant bird cage - and you could get birds to keep in your room if you wanted!! They let us hold family activities there... good memories... I don't think you could go wrong volunteering there.

Guest BERNESES

ChelsE- i think you'd be great!!! I can't imagine what we would have done without hospice when my mother was sick with sstomach cancer 3 years ago. They were more support than anyone- doctors, priests, etc. My mom's hospice nurse was Joe and he kept coming after she died to see ho WE were doing! They were the most amazing group of people ever. Without hospice, my mom probably would not have been able to stay at home which is what she wanted.

penguin Community Regular

DH said I'm sick enough without being around sick people all the time. Even though most hospice patients are not contagious, he has a point. I need to get myself straightened out before I can care for others...

So it is something I REALLY want to do, but it will probably have to wait until I've got my own health back...

I do think it'll give me extraordinary perspective, however.

(yes, I'm wearing a bat costume :))

Guest BERNESES

yeah- I wanted to work part-time this winter as a children's ski instructor but my husband told me I was nuts. I was already teaching part-time and am in grad school and was having enough trouble keeping up with all that. It's hard because sometimes our minds want more than our bodies can handle. But you WILL get to the point where you feel like you can handle more, and then go for it.

Nancym Enthusiast

I really regret I didn't have the presence of mind to contact the Hospice earlier than I did. I was talking to them on the phone right when my father passed away. :\ My Mom appears to be nearing the end of her life now, I will definitely get them involved earlier this time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest BERNESES

nancy- Hugs to you. It's hard to lose our parents. Call hospice (or your mom's doctor can). They will be a source of comfort for you.

corinne Apprentice

BERNESES - teaching skiing part-time is a big commitment; I did it through undergrad to pay for school.

Have you thought of volunteering as a ski instructor for the disabled? I've been doing that for 9 years now through grad school and a post-doc. The volunteer instructor is low-commitment. It's usually a series of 4 to 8 lessons, once a week for just 2 hours, usually a Sat. morning or afternoon, or an evening after work. I found it really rewarding.

Guest BERNESES

I've thought abaout doing that- THAT would be cool! that or horse back riding.

corinne Apprentice

The disabled horse back programs are awesome too. It is amazing to see kids with no mobility get their first taste of freedom. It's great too for kids with mental disabilities; they often seem to connect better with animals than they can with people.

abbiekir Newbie

I work at an area hospice as a social worker- perdiem - I use to work fulltime doing hospice home care but it was too much for me.

There are so many different volunteer opportunities- sometimes you may just need to sit with a patient while the caregiver goes to church or to the store or sometimes just to sit with a patient who has no one.

If you find that being around people who are terminal too much you can always do something for thier foundation- like organize fundraisers ect.

My Hospice work is something I cherish but doing it full time well...... that was draining but if you volunteer its not like your obligated you can control how much you want to help out-

Any more questions just let me know

Abbie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    2. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

    3. - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      46

      Supplements for those Diagnosed with Celiac Disease

    4. - trents replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Is it gluten?

    5. - RMJ replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
    • trents
      @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the spectrum of components making it up will likely be also, including the celiac disease response spectrum. In other words, IGA deficiency may produce a tTG-IGA score that is negative that might have been positive had there not been IGA deficiency. So, the tTG-IGA negative score may be "false", i.e, inaccurate, aka, not to be trusted.
    • RMJ
      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.