Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hospice


penguin

Recommended Posts

penguin Community Regular

I'm thinking of trying to volunteer for the local Hospice, and I was wondering if anyone else had experience with that kind of volunteer work, or even experience with a hospice in general.

It's not like I have a lot of free time (definitely don't :rolleyes: ) but it's something that for some reason appeals to me. I took a class on death and dying a year ago and I've been interested in and supportive of hospice ever since. I think I also need another volunteer opportunity, although scouts is very rewarding. I think I could handle it emotionally, or at least I hope I'd be able to.

Any thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DingoGirl Enthusiast

Chelsea, good for you! Hospice is SO SO wonderful....we used them when my dad was dying of cancer almost 20 years ago....just the kindest people. I"ll never forget the kind words spoken at exactly the right time, about one hour before my dad died, by a gentle Hospice nurse, which prompted me into an action I might not have thought to do...

I went through the entire volunteer training in Monterey, then moved back home sooner than I expected, so I never did any of it there and didn't do it here because I was getting so sick, didn't have the energy to do it. There are all kinds of opportunities within hospice, from driving patients, to sitting wtih patients to relieve their loved ones/caregivers, to holding hands with the dying - they keep a vigil with the ones closest to death. Sorry if you already know this...I get kind of emotional thinking about Hospice and how wonderful they are. Honestly, while going through the training, I wasn't sure I could handle it emotionally, but the training is wonderful anyway so I never considered it a waste of time.

Give it a shot!

by the way, is that a bat costume you're wearing??

Blessings -

StrongerToday Enthusiast

My grandfather was in Hospice, and it was such a blessing! It was a beautiful facility, it had a family room with things to keep the kids busy, a giant bird cage - and you could get birds to keep in your room if you wanted!! They let us hold family activities there... good memories... I don't think you could go wrong volunteering there.

Guest BERNESES

ChelsE- i think you'd be great!!! I can't imagine what we would have done without hospice when my mother was sick with sstomach cancer 3 years ago. They were more support than anyone- doctors, priests, etc. My mom's hospice nurse was Joe and he kept coming after she died to see ho WE were doing! They were the most amazing group of people ever. Without hospice, my mom probably would not have been able to stay at home which is what she wanted.

penguin Community Regular

DH said I'm sick enough without being around sick people all the time. Even though most hospice patients are not contagious, he has a point. I need to get myself straightened out before I can care for others...

So it is something I REALLY want to do, but it will probably have to wait until I've got my own health back...

I do think it'll give me extraordinary perspective, however.

(yes, I'm wearing a bat costume :))

Guest BERNESES

yeah- I wanted to work part-time this winter as a children's ski instructor but my husband told me I was nuts. I was already teaching part-time and am in grad school and was having enough trouble keeping up with all that. It's hard because sometimes our minds want more than our bodies can handle. But you WILL get to the point where you feel like you can handle more, and then go for it.

Nancym Enthusiast

I really regret I didn't have the presence of mind to contact the Hospice earlier than I did. I was talking to them on the phone right when my father passed away. :\ My Mom appears to be nearing the end of her life now, I will definitely get them involved earlier this time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest BERNESES

nancy- Hugs to you. It's hard to lose our parents. Call hospice (or your mom's doctor can). They will be a source of comfort for you.

corinne Apprentice

BERNESES - teaching skiing part-time is a big commitment; I did it through undergrad to pay for school.

Have you thought of volunteering as a ski instructor for the disabled? I've been doing that for 9 years now through grad school and a post-doc. The volunteer instructor is low-commitment. It's usually a series of 4 to 8 lessons, once a week for just 2 hours, usually a Sat. morning or afternoon, or an evening after work. I found it really rewarding.

Guest BERNESES

I've thought abaout doing that- THAT would be cool! that or horse back riding.

corinne Apprentice

The disabled horse back programs are awesome too. It is amazing to see kids with no mobility get their first taste of freedom. It's great too for kids with mental disabilities; they often seem to connect better with animals than they can with people.

abbiekir Newbie

I work at an area hospice as a social worker- perdiem - I use to work fulltime doing hospice home care but it was too much for me.

There are so many different volunteer opportunities- sometimes you may just need to sit with a patient while the caregiver goes to church or to the store or sometimes just to sit with a patient who has no one.

If you find that being around people who are terminal too much you can always do something for thier foundation- like organize fundraisers ect.

My Hospice work is something I cherish but doing it full time well...... that was draining but if you volunteer its not like your obligated you can control how much you want to help out-

Any more questions just let me know

Abbie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,325
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.