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How Will I Know?


marcia24

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marcia24 Apprentice

I don't really have a reaction to gluten.....I got checked because I was feeling fatigue and more bloated than normal but nothing really serious. I'm afraid that when I go gluten free after my biopsy that I won't know if I'm getting traces of gluten from something I use...any advice on how to deal with this I think I am going to be constantly paranoid!


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Mango04 Enthusiast

Well, when you go gluten-free, you might suddenly notice that you do react to gluten. Small traces might suddenly start to affect you. If not, just be as careful as you can, and other than that..don't worry too much about it! :) You'll be fine.

JodiC Apprentice

Welcome. Find something that has been a constant feeling for you. For instance, my grandmother always commented on my dark circles under my eyes. After going gluten free they are gone. Now when I see the circles I know I have been glutened. Also acid reflux is worse. You will start to notice the difference.

Mandy F. Apprentice

I too was diagnosed without any of the classic symptoms and started the gluten-free diet about 6 or 7 weeks ago. I have noticed that the less gluten I eat (cause I'm still making some mistakes) the more of a reaction I have if I get glutened. I'll get gassy, or a stomach ache, or have to make frequent trips to the bathroom (though I'm still not getting the big D)... I never noticed any of this before my biopsy... I would just make sure you read lables and things and find some trusted brands and start making a list... Everyone here has been really really helpful, too.

sandeehier Newbie
I have noticed that the less gluten I eat (cause I'm still making some mistakes) the more of a reaction I have if I get glutened. I'll get gassy, or a stomach ache, or have to make frequent trips to the bathroom (though I'm still not getting the big D)... I never noticed any of this before my biopsy...

That is so funny --- my whole family reports the same thing and the doctor says it "shouldn't be."

What does that even mean, it "shouldn't be?" They say it's so, it's so. Maybe it's an odd reaction, but they aren't hallucinating. java script:emoticon(':huh:',%20'smid_8') Doctors.

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    • Scott Adams
      If your tTg-IgA was 28 and positive is at 3, you are nearly 10x over the positive marker, so the most likely explanation by far would be celiac disease. I also do not understand why your doctor would not want to run the blood test, which is the normal first step in the diagnosis process.
    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
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