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My Son Just Got Diagnosed With Celiac Disease

calebsmom

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calebsmom Newbie
calebsmom
Posted

my son caleb was recently diagnosed with celiac disease, i'm finding that the foods taste plain. but he seems to like them..would anyone know of a support group around massachusetts.

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Guest nini
Guest nini
Posted

Open Original Shared Link

you can locate support groups near you by clicking on the above link and search your area.

I have a "newbie survival kit" that is basically a collection of files that I've collected over the past 3 years, I wish I had it when I was first diagnosed. If you would like the newbie survival kit just e-mail me at nisla@comcast.net and in the subject put "request newbie survival kit" I will send it to you asap.

lonewolf Collaborator
lonewolf
Posted

Welcome! I have a son named Caleb too and he is gluten-free. There are lots of good foods that don't taste too "plain". Look in the recipe section here and also get a copy of the book, "Incredible, Edible gluten-free Foods for Kids". I'm across the country, so I can't help with a support group, but wanted to welcome you anyway.

kenyonsmommy Rookie
kenyonsmommy
Posted
my son caleb was recently diagnosed with celiac disease, i'm finding that the foods taste plain. but he seems to like them..would anyone know of a support group around massachusetts.

Hi there

My 2 year old son was also just diagnosed last week by biopsy. It took us about 4 months of vomiting and weightloss to get to the real issue. I am kind of still in shock, just trying to wade through all the information and learning how to bake bread. I am overwhelmed, but every day seems to get a little better. he looks better, feels better and is back to his old self.

The one thing I am trying to look for is snack foods, crackers and such , especially for the babysitters house.

If anyone can think of anything, that would be great!

Tricia

lonewolf Collaborator
lonewolf
Posted
The one thing I am trying to look for is snack foods, crackers and such , especially for the babysitters house.

If anyone can think of anything, that would be great!

Tricia

Envirokidz cereal bars, Panda Puffs and Gorilla Munch (cereals) make good snacks. There are several kinds of rice crackers available at health food stores, Trader Joe's and some regular stores. Ener-G makes some good pretzels that you can order online or get in lots of stores.

2kids4me Contributor
2kids4me
Posted

Pizzirilli crackers are really good - my kids like them in soup, cheese and crackers etc. Tomato soup by "Imagine" is gluten-free and the kids both like it.

My kids dont like the rice crackers much

TCA Contributor
TCA
Posted

I just tried the Blue diamond crackers and they are soooo good. I also use Sesmark Sesame crackers from target that are great. I have a list of foods I put together for my son. If you would like it, just pm me with your e-mail address.

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Smunkeemom Enthusiast
Smunkeemom
Posted
Hi there

My 2 year old son was also just diagnosed last week by biopsy. It took us about 4 months of vomiting and weightloss to get to the real issue. I am kind of still in shock, just trying to wade through all the information and learning how to bake bread. I am overwhelmed, but every day seems to get a little better. he looks better, feels better and is back to his old self.

The one thing I am trying to look for is snack foods, crackers and such , especially for the babysitters house.

If anyone can think of anything, that would be great!

Tricia

Midel, makes absolutely awesome Arrowroot gluten free Animal crackers, they look taste like "real animal crackers"

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    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
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      Supplements for those Diagnosed with Celiac Disease

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