Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Internal Itching Anyone?

discountshopper

Recommended Posts

discountshopper Rookie
discountshopper
Posted

Hi all,

Has anyone experienced internal itching as a symptom of glutening (or other strange disease)? I have been gluten-free since November and think I probably got some gluten about 4 days ago. Yesterday I started getting some very strange internal itching sensations on the right side of my torso, basically the line of the liver and ascending colon. There is no rash or skin issues, just a need to "scratch by rubbing" the itch that is inside. There do not seem to be any sore spots involved, just itchiness. I have had years of issues with internally itchy feet and hands which has subsided for the most part since going gluten-free. This internal torso itching is not constant, but comes and goes throughout the day. It has been going on for a day and a half so far and has not increased in intensity. Anyone experienced this?

Thanks,

Linda

Celiac, gluten-free since 11/05

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gointribal Enthusiast
gointribal
Posted

oh man I totally get that, but I thought it was just me. Some times my stomach itches, its weird but I know what you are talking about!

Ursa Major Collaborator
Ursa Major
Posted

Sometimes I get a terrible itch in my throat, and yes, inside the torso as well. It's maddening when it happens.

  • 1 year later...
lukewarmandbothered Newbie
lukewarmandbothered
Posted

Wow. This is the first I've ever heard of people having this same problem. I get that when I ingest something I have some sort of allergy towards. It's happened with a certain protein powder in the past and with some other things. I feel like there's this itch inside your esophagus that you JUST can't get to...you try and try to like clear your throat or itch your chest/throat, but nothing works.

Glad to see I'm not alone. :-)

pugluver31902 Explorer
pugluver31902
Posted

I get it in the exact same spot. Really wierd.

  • 4 months later...
RMARS Newbie
RMARS
Posted
Hi all,

Has anyone experienced internal itching as a symptom of glutening (or other strange disease)? I have been gluten-free since November and think I probably got some gluten about 4 days ago. Yesterday I started getting some very strange internal itching sensations on the right side of my torso, basically the line of the liver and ascending colon. There is no rash or skin issues, just a need to "scratch by rubbing" the itch that is inside. There do not seem to be any sore spots involved, just itchiness. I have had years of issues with internally itchy feet and hands which has subsided for the most part since going gluten-free. This internal torso itching is not constant, but comes and goes throughout the day. It has been going on for a day and a half so far and has not increased in intensity. Anyone experienced this?

Thanks,

Linda

Celiac, gluten-free since 11/05

fedora Enthusiast
fedora
Posted

When I first gave up wheat in 1995 it was because of internal itching ALL OVER. It was terrible. I thought I would go crazy. It went away in a week after giving up wheat. I stupidly went back to eating but never had as severe issues with internal itching.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Michi8 Contributor
Michi8
Posted

I've had problems with internally itchy ears. I know it if because of allergies though. Have also had it deep in the tissues of my toes and fingers...it coincided with a sudden drop in temperature last summer, so I had chalked it up to maybe being raynauds...likely tied to seasonal allergies.

Wouldn't be surprised if it happens elsewhere in the body too!

Michelle

ShayFL Enthusiast
ShayFL
Posted

Ive had the inner ears and my upper mouth (pallet) itch like crazy. I hate when it happens.

Oh and sometimes the bottom of my feet. But I think that has to do with my neuropathy.

johnfrancis Newbie
johnfrancis
Posted

I used to get sever itching on the muscle just above my knee, it was so bad that I wore a hole in two pairs of jeans scratching it.

Thankfully it went away when I started on a gluten-free diet.

The first doctor I told said it was a build up of lactic acid and I should make sure that I stretched and warmed down properly after excercise. But I still excercise without proper strectching and the itching has never returned!

AliB Enthusiast
AliB
Posted

I used to get a really itchy tip of my nose! It would drive me mad! Sometimes it would just come on out of nowhere, I mean even when I hadn't eaten anything for ages. I have had it occasionally since but rarely. I got it a couple weeks ago - I hadn't eaten anything for at least 3 hours so what the heck triggered it I haven't a clue. Weird.

I've had that itching in the roof of the mouth and in the hands and feet too. I used to get it in the balls of my feet and it would drive me so mad I'd want to dig something into it! That went away quite a while before going gluten-free and I never knew what caused it or why it went!

I did get restless legs virtually every night and itching in other areas of my feet like the heels (so bad my husband and I have separate rooms - between my thrashing and his snoring we were keeping each other awake all night!). I realised when I looked at a Reflexology chart that those areas equated with the colon and the RLS was linked to that too. I had a bad stomach one night and my legs were thrashing about in the bed like something possessed! Around 5am I had to 'evacuate'. I went back to bed and slept like a baby for what was left of the night. I slept and so did my legs.

Since going gluten-free, apart from when I have been affected by something, either gluten or some other something that has disagreed, not only has the itching gone, so has the RLS. Bliss. (PS. My husband joined me on gluten-free and he no longer snores to wake the dead!)

cupid Newbie
cupid
Posted

Hi, I just experienced the internal ichy stomache when I tried to do the candidia diet but assumed it was from getting rid of the toxins but also started a digestive pill @ same time so now I'm wondering about which caused it. Need to do the diet again but since haven't been on gluten-free/cf diet very long found it very hard!!

Megra Newbie
Megra
Posted

Hi all,

Has anyone experienced internal itching as a symptom of glutening (or other strange disease)?

Sometimes I itch like crazy all over! I scratch so hard I can make myself bleed. Gross, Gross, Gross,. I try to take something to make me sleepy, and then go to bed so I'll stop! (most always happens at night )

  • 5 years later...
doya Newbie
doya
Posted

Hi all,

Has anyone experienced internal itching as a symptom of glutening (or other strange disease)? I have been gluten-free since November and think I probably got some gluten about 4 days ago. Yesterday I started getting some very strange internal itching sensations on the right side of my torso, basically the line of the liver and ascending colon. There is no rash or skin issues, just a need to "scratch by rubbing" the itch that is inside. There do not seem to be any sore spots involved, just itchiness. I have had years of issues with internally itchy feet and hands which has subsided for the most part since going gluten-free. This internal torso itching is not constant, but comes and goes throughout the day. It has been going on for a day and a half so far and has not increased in intensity. Anyone experienced this?

Thanks,

Linda

Celiac, gluten-free since 11/05

Hi! I don't know if you're still there, since this post was sent many years ago, but I found it while looking at what my issue is. I have the exact same internal itch on the right side of my stomac, around the liver are, that just few weeks ago started to be on the left side too. I don't have pain, just this intollerable itch and a lot of nausea that comes with it. I was wondering if after all those years you found out what was causing yours, so maybe you'll be able to help me. Please, please.... I can't go on like this no more!! Thank you so much.

Doya

kareng Grand Master
kareng
Posted

Hi! I don't know if you're still there, since this post was sent many years ago, but I found it while looking at what my issue is. I have the exact same internal itch on the right side of my stomac, around the liver are, that just few weeks ago started to be on the left side too. I don't have pain, just this intollerable itch and a lot of nausea that comes with it. I was wondering if after all those years you found out what was causing yours, so maybe you'll be able to help me. Please, please.... I can't go on like this no more!! Thank you so much.

Doya

Sorry but the OP hasn't been here in 7 years.

GF Lover Rising Star
GF Lover
Posted

The member Doya who posted last has started a new thread.  I will go ahead and end this thread for being dated.

 

Colleen

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    2. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in...
    3. SilkieFairy
      - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash...
    4. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

      I am on day 13 of eating gluten and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.