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Ugh I Feel Glutened Again

Lister

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Lister Rising Star
Lister
Posted

Ok so i just had my lunch/dinner since its 4pm not sure if i should swing another meal later. But ugh i feel so sick like bloated and i already feel like i have to use the restroom and im getting like a sea sick feeling (or another way to discribe it is when your coming up on mushrooms*did these not by choice about 3 months ago my friends put a hole bunch in my orange juice and i never noticed until it was to late* maybe when i think im getting glutend im not maybe its ibs i dont know but this is how i discribe beeing glutened and all i ate was

pork,lettece,carrots,and the crumbs from my lumbarg rice chips- none of these things should even have cc problems. the pork was hormel always tender pork- its on there safe list and i have never had cc issues with the rice chips- i ate them last night just fine, but ugh i feel so sick. So my question is am i acually glutened by on of those things or this hole time when i thought i keep getting glutened its just how my body reacts to food for now?? gah i dont wanna use the restroom since i just ate im afraid it will be D and it will be what i ate :( im trying to get some nutriants in my body

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Rachel--24 Collaborator
Rachel--24
Posted

You could be having problems with other foods...not just gluten. The pork is probably *highly* processed and not good for anyone with bad digestive symptoms. That would be my guess anyways. Also did you drink anything?

Lister Rising Star
Lister
Posted
  • Author

gatorade and water only for me. and the pork shouldnt be prossessed i meen its a slab of meat?

Rachel--24 Collaborator
Rachel--24
Posted
gatorade and water only for me. and the pork shouldnt be prossessed i meen its a slab of meat?

Lots of meat gets processed. I have problems with regular meat I have to buy the organic stuff from the butcher at Whole Foods. I dont know what could be causing your symptoms but I know if I had eaten that pork and drank gatorade I'd probably be hallucinating right now.

laurelfla Enthusiast
laurelfla
Posted

Lister, I've read some of your posts but i can't remember how long you've been on the diet. if it's a fairly recent thing, your system may just not be up to snuff yet. i remember in the couple of months following diagnosis, i just didn't feel well at times (gluten symptoms), and most times, if not all, there was no way at all that i had ingested gluten. i chalked it up to my system's taking time to heal and just tried to eat as simply as possible to make sure. i'm sorry you're feeling bad. :(

mart Contributor
mart
Posted

Yes, is it only weeks that you're on this diet? It took my son months until he felt better. Also, pork always makes me sick and naseous. Can you stick to bland type foods while your gut is recovering?

lorka150 Collaborator
lorka150
Posted

Lister - you have mentioned that you had worms in your stools... Perhaps there is a larger problem at hand here. Have you spoken to your GI about issues other than potential celiac? In addition, keep in mind it might take awhile to heal. For nine months or so, all I could consume was veggies and nut butter, basically. Sometimes you need to simplify it as best as you can. And you're working with food daily at work - that could be a huge problem.

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Lister Rising Star
Lister
Posted
  • Author

i thought i was taking it easy. and as for the worms, it looked like it could be one, i just got parasite/bactera testing sent in will get results in a couple of days.

judy05 Apprentice
judy05
Posted
i thought i was taking it easy. and as for the worms, it looked like it could be one, i just got parasite/bactera testing sent in will get results in a couple of days.

Lister,

I've been reading your posts and I can identify with a lot of your symptoms. I had a lot of stomach pain and bloating in the beginning. Along with gluten intolerance I also suffer from IBS. I had no damage to my villi so the doctor suggested more fiber. He recommended Citracel tabs 2 in the morning (they are gluten-free). After my colonoscopy he told me that I have a lot of gas and fiber would make it feel better. It is good for both constipation and diarrhea. I also follow an IBS type diet, sort of. By that I mean I never start a meal with anything but soluble foods, such as banana, mashed potatoes, rice, etc. If you start your day with a soluble food the rest of the day will go smoothly. I am only telling you this because it has helped me. Hope you feel better soon. Keep up the gluten free diet!!

Lister Rising Star
Lister
Posted
  • Author

maybe i was wrong about getten glutened also. The symptoms went away after like 20 minutes/30 minutes besides for the head fog, got worse really but i did also smoke some of my medicine so now i cant even tell if im having brain fog or if its just my medicine in my system, i dont know thow its been about 2 hours since i smoked and it usaly only takes me 30-45 to sober up so maybe it is brain fog, but my sides really not bugging me/ well i guess slightly but its not like persistant

"start a meal with anything but soluble foods, such as banana, mashed potatoes, rice, etc." hmm i need to try that, in the morning around 6 my stomic starts to go crazy around 7 i eat a banana every morning and the pains go away for about 3 hours so that makes sense, i just need to start eating something like that before i eat my main course ? hmm ok so i will eat the rice first then the meat and see what happens

lorka150 Collaborator
lorka150
Posted

perhaps your drugs are cross contaminated.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

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      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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