Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Until Diet Change Makes You Feel Better...


JerryK

Recommended Posts

JerryK Community Regular

After Monday's debacle with the Apple Fritter, I've been trying to lay off of anything that could possibly have Gluten in it. I've eaten Eggs, Potatos, Salads, Chicken Fish etc.

Last night I had a baked potato. Today I feel the best I have all week with no cramping or D at all.

Can it make a difference that quickly or is this a placebo effect?

Now after a few days of feeling better, I will go on a mini Gluten binge and see what happens, as I'm not totally bought in to having this. I want to experiment a little to see how much it is effecting me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eleep Enthusiast

My experience was that I started feeling better almost immediately, which wasn't a placebo effect, but that I still kind of fell back into malaise and other symptoms shortly thereafter as my body adjusted -- that was what compelled me to finally get ruthless about checking my vitamins, shampoos, etc..... -- Now, I continually feel better and better unless I get glutened or eat dairy without taking digestive enzymes.

tarnalberry Community Regular

It varies from individual to individual. For me, it was a week or two. For others, it may take longer.

Do know, however, that by going back and forth on taking gluten out of your diet, you risk getting false negatives if you go pursue blood testing.

KaitiUSA Enthusiast

Some people feel better in days and for some it takes much longer. For me it took about 8 months to really see a difference.

You should not be going back and forth on the diet because that will not only interfere with testing but also will damage your body. They say people who cheat even just once a month have the same damage to their system as someone who does not follow the diet at all.

JerryK Community Regular
Some people feel better in days and for some it takes much longer. For me it took about 8 months to really see a difference.

You should not be going back and forth on the diet because that will not only interfere with testing but also will damage your body. They say people who cheat even just once a month have the same damage to their system as someone who does not follow the diet at all.

Thanks, I realize that I need to be eating Gluten so that testing will be positive. I also understand that going back and forth on the diet is not the goal. I just want to understand if Gluten really effects me negatively before I proceed with testing and going on the diet. I just want to be a little more convinced that this could be my problem, before I go get tested. Now, if I feel better for a few days...start eating Gluten again and cramping/big D come back, I will head out to the doc and ask to be tested.

Thanks so much for your responses.

jerseyangel Proficient

I know what you're saying, Jerry, but it's a double edged sword--the longer and more often you are gluten-free, the bigger your chances get that you will skew any test results. If you need/want to be tested, I would suggest doing that after 3 weeks of eating at least 3 slices of bread per day, and stop the gluten-free challenge now. I've been following your posts, and it looks like you have a valid reason to suspect Celiac. The testing is not perfect, at best, and to get the best/most accurate result possible you need to be on gluten full time. To answer the original question, it does vary from person to person. It's not unusual to feel better after just a few days. I did, but as my system adjusted, I had a lot of ups and downs.

Nancym Enthusiast

I'm curious, if your dietary results show that gluten is messing you up, why you'd feel the need for further testing? I think dietary testing for those of us with GI symptoms is better than anything the doctor can offer you.

My main symptom cleared up within a couple of days (bad abdominal cramping and diarrhea).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    3. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

    4. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,844
    • Most Online (within 30 mins)
      7,748

    donnawebb265
    Newest Member
    donnawebb265
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.