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Zinc Deficiancy


Mom2six

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Mom2six Newbie

Hello, I have been on the board alot. Here is where we are at. Daughter who is 18 months on Monday has been gluten free for 2 weeks. I pulled her off as soon as the blood work was done. She is doing much better. Her diaper rash is gone, her stools are firmer, smell like they should, and her color is just all around better. Plus she is walking. You can tell she just feels better. Her blood came back inconclusive for Celiac but there was a Zinc deficiancy. He said it could be seconday to Celiac-- the only way to know for sure is to do the endoscopy. We haven't decided about that. We have also started zinc therapy. He said zinc deficiancy can cause some of the same symptoms as Celiac. THe deal is, she improved so much the first week off gluten. It was 10 days later that she started the Zinc. She seems even better on the zinc. Has anyone else had expericene with this? Thanks in advance.


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Katie O'Rourke Rookie
Hello, I have been on the board alot. Here is where we are at. Daughter who is 18 months on Monday has been gluten free for 2 weeks. I pulled her off as soon as the blood work was done. She is doing much better. Her diaper rash is gone, her stools are firmer, smell like they should, and her color is just all around better. Plus she is walking. You can tell she just feels better. Her blood came back inconclusive for Celiac but there was a Zinc deficiancy. He said it could be seconday to Celiac-- the only way to know for sure is to do the endoscopy. We haven't decided about that. We have also started zinc therapy. He said zinc deficiancy can cause some of the same symptoms as Celiac. THe deal is, she improved so much the first week off gluten. It was 10 days later that she started the Zinc. She seems even better on the zinc. Has anyone else had expericene with this? Thanks in advance.

Hi. Just to elt you know, that because malabsorption is a big problem for a lot of coeliacs, well until a gluten-free diet anyway, it is highly probable she has both coeliac disease and also zinc deficiency. Different coeliacs are deficient in different vitamins/minerals. For example, my dad is deficient in zinc, B vitamins, and also potassium - for the latter he has been told to eat 2 bananas a day. On the other hand, I am anaemic and also appear to have a vitamin K deficiency,as my blood doesnt clot properly. Malabsorption affects everyone differently. Good luck with the treatment though, and hope it all works out for you. Its such a shame to have so many problems at such a young age. Take care :)

ryebaby0 Enthusiast

Good heavens, what is that doctor thinking? All sorts of deficiencies are bound to turn up in children who've been untreated celiacs. My son was deficient in zinc and iron, and borderline in just about everything else. He took a zinc supplement and it cleared up in about 4 months.

Endoscopy seems very scary, but it really isn't as awful as you imagine if done in a facility that does lots of children's. She'll need to go back on gluten for it to mean anything, and that's never much fun; don't let a doctor bully you into "confirming" what is obvious if she's dramaticaly better gluten-free. Scope results can be inconclusive too!

joanna

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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