Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Allergies


Mango04

Recommended Posts

Mango04 Enthusiast

Does anyone know? Would I just go to an allergest? I don't trust allergists all that much when it comes to food. Is there some sort of Enterolab equivalent that I would just order? Is there a way to get tested even if I am not eating the allergens?

I know I'm gluten intolerant, but when I eat dairy or soy my throat swells and it's difficult to breathe. I have been tested in the past (maybe six or seven years ago) through a blood test and everything came back negative. I'd like to get tested again though.

Anyone know?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I would suggest going to an allergist. You said that you were tested for food allergens six or seven years ago. Did you have the breathing problems with those foods then? Food allergies can appear _at any time_, so they may have developed since your last test. A good allergist will no that there is no foolproof way to test for allergies (though having you ingest all the things they'll test you for, then drawing blood to do an IgE for each one is the closest, no one's going to do that test - the scratch test is closest to that, but being in the skin, isn't quite the same). Dietary responses, like what you describe, ARE used in doctors officed (usually observed, and some tests are sometimes run during the reaction), to identify food allergies in difficult to determine cases.

jerseyangel Proficient

To have allergy testing, you would need to see an allergist. I would suggest calling around to the ones you are considering--I did and there were a couple that told me on the phone that they did not test for food allergies. I ended up finding a good allergist. I had the full compliment of skin testing for foods. He did them over 2 appointments, one month apart in case there were any reactions (to be safe). He also "gets" food intolerance--he advised me against having the blood testing for those, and told me that a rotation diet was a better way to go. I ended up following that advice and it took about 6 months to determine which things I was intolerant to. Good luck with it! :)

KaitiUSA Enthusiast

You have got good advice from the previous posters. I would see an allergist and get a number of tests done.

If you get those kinds of reactions when eating certain foods I would avoid those foods in the meantime so it doesn't get worse or give you more problems.

shai76 Explorer

Just curious, but why don't you trust allergists? I really think you should try going to one or a ENT. My allergist is great, and has a natural health councilor at the office, and they have a lab right there. I prefer the RAST (blood) tests. My allergist preferes to go by what your symptoms are when you eat the offending food rather then by the testing. I think that is the best indicator.

Mango04 Enthusiast
Just curious, but why don't you trust allergists? I really think you should try going to one or a ENT. My allergist is great, and has a natural health councilor at the office, and they have a lab right there. I prefer the RAST (blood) tests. My allergist preferes to go by what your symptoms are when you eat the offending food rather then by the testing. I think that is the best indicator.

I guess that was just sort of a broad generalization that I shouldn't have made. I suffered a lot as a kid from allergies and I could never find an allergist willing to help me or acknowledge that food could have been my problem. One accused me of being on drugs when I was 12 because my nose was so messed up. It's strange that when I eliminated milk that problem went away. Anway, I'm sure there are great allergists out there and maybe I'll try to find one. Maybe it's just all intolerance related, in which case I know an allergist can't really help. I know for a fact that I react to dairy and soy. I will never ever eat dairy again regardless.

I'm mostly curious to find out how important it is for me to completely eliminate all traces of soy. Every once in a while I'll eat small amounts of soy, which I know I shouldn't, because it does make me feel like I'm choking if I eat too much. I was wondering if test results could tell me if my reaction could ever possibly result in anaphylaxis. I have no idea. I'm generally a fan of listening to my body and ignoring test results, but I was just curious about the tests....

shai76 Explorer
I guess that was just sort of a broad generalization that I shouldn't have made. I suffered a lot as a kid from allergies and I could never find an allergist willing to help me or acknowledge that food could have been my problem. One accused me of being on drugs when I was 12 because my nose was so messed up. It's strange that when I eliminated milk that problem went away. Anway, I'm sure there are great allergists out there and maybe I'll try to find one. Maybe it's just all intolerance related, in which case I know an allergist can't really help. I know for a fact that I react to dairy and soy. I will never ever eat dairy again regardless.

I'm mostly curious to find out how important it is for me to completely eliminate all traces of soy. Every once in a while I'll eat small amounts of soy, which I know I shouldn't, because it does make me feel like I'm choking if I eat too much. I was wondering if test results could tell me if my reaction could ever possibly result in anaphylaxis. I have no idea. I'm generally a fan of listening to my body and ignoring test results, but I was just curious about the tests....

Some doctors believe that the higher the "class rating" or IGE antibody response the more likely it is you could suffer anaphelectic reaction. But, from my experience and others I have talked to, you can be juts a class 1 and have a serious reaction, and be a class 4 and not have hardly any reaction. So the test measures how much the IGE antibodies go up in response to the allergen, but not your bodies response tot he IGE levels increasing. I'm a class 2 with milk, but class 3 with soy. I don't really react to soy, but I have life threatening reactions to milk.

I would say try an allergist or an ENT and get tested then kind of measure that against your own experience monitoring your reactions. Also your body can build blocking antibodies to allergens, like what the goal is with allergy shots. So you could measure allergic to something but not actually react to it.

Celiacs can cause multiple food allergies because it makes food more difficult to digest and can cause a sort of "leaky guy" type thing where proteins in food pass whole into the body and the antibodies see it as an invader. So it is possible for your allergic to lighten up or "go away" after some time on gluten free. At least I am hoping that can happen. :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.