Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

An Update On My Dd


Mom2six

Recommended Posts

Mom2six Newbie

Hi everyone, I just wanted to update you all on dd (18 months). SHe had testing 3 weeks ago-- came back inconclusive for Celiac but she was Zinc deficient. After the blood test we went gluten-free and in 4 days her diaper rash was gone, her D was gone, and in 2 weeks she was walking. WooHOO! Anyway, we went back to the Dr. and in those three weeks she gained 1.25 lbs. IN THREE WEEKS!!!! Double WOO HOO! The GI was thrilled, told me to stick with what we were doing and we would worry about a Dx later. He said he didn't want to mess things up while she was in such a critical stage of development since she appeared to be thriving for the first time in a year and a half. I was pleased at his take on things. Just thought you might want to hear. Thanks for the support.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mouse Enthusiast

That is so GREAT. A doctor who cared enough for the well fare of a child, then an official diagnosis. Keep up the good work. I am so happy for all of you. :)

Guest nini

That's so great! If she's imprving then you KNOW the problem is gluten... if the Dr.s ever try to make you do a gluten challenge with her to get an official dx, I would seriously question it. But that's just me.

TCA Contributor

Happy Happy Joy Joy!!!! I know exactly how you feel. Isn't it great?

Smunkeemom Enthusiast
:D I am so glad she is feeling better.
taweavmo3 Enthusiast

That's excellent! And it sounds like you have a gem of a doctor to boot....how awesome. I hope she continues to thrive and gain, it is really a miracle to watch. I feel like we didn't even get to know our daughter until we put her on the diet, and her little personality is still blossoming. Keep up the good work!

nettiebeads Apprentice

I agree with nini. Couldn't the dr give a gluten intolerance dx or something based on diet results? I was dx'd via diet alone and that's been fine for all of my drs since. Anyhow, I'm so happy she's doing better.

Annette


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

That's fabulous, I am so happy for you! And I agree with Nini, too, don't EVER do a gluten challenge with her, which will set her back and make her ill again, and who needs it?

Guest nini

yeah, my daughter's chart says "gluten intolerance" I will never ever ever challenge her with gluten as even accidental ingestion makes her very ill. I have had no problems with school so far with the gluten intolerant dx...

wolfie Enthusiast

That is awesome that she is improving so quickly!! :)

I agree with the others....don't know that I would do the gluten challenge. I don't have an official DX either, but I don't care. I know that gluten makes me sick, that is enough for me. I tested the waters by eating 1 triscuit and was sick. My kids ped had wanted me to have an official dx before testing my kids. I told him my experience with the triscuit and has now at least tested my son. We haven't tested DD yet b/c she is 3 and doesn't show any symptoms. If DS comes back positive, she will be tested.

wonkabar Contributor

That's super!! How nice is it that you have the support of your ped gi??!! :) After being off gluten for just a few days, my 3 year old showed major signs of improvement, too. Isn't it the best when you finally figure out the answer!!??

--Kristy :)

Guest momx3

That is awesome! Isn't it amazing to see the difference? My 14 mo old has been gluten free for a few weeks now, no official diagnosis. He is suddenly a chubby, happy baby! His D & skin have cleared up, no more clinginess, you can tell he just feels better. The turn-around is instant, and nothing short of miraculous. Good luck, sounds like you have a great doc, too! :D

kenyonsmommy Rookie

Thats great news for you. An official diagnosis is not a great experience for a young child. My son went through a CAT scan, upper GI, x-rays, bloodwork then an edoscopy/biopsy before his diagnosis. It broke my heart each time we had to subject him to another test, but we were floundering. He is now @ 4 weeks gluten free and is doing amazing. Don't mess with success.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    2. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    4. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
    • Jane02
      Thanks @Scott Adams. Do you know if Kirkland Signature supplements share facility and production lines with other products containing gluten?  I'm worried that I'll react to this brand just like I did with other gluten-free labelled supplement brands. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.