Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Those With A Casein Sensitivity...


lorka150

Recommended Posts

lorka150 Collaborator

not yesterday, but the day before, i had some lunch and accidently used a product with a hidden milk ingredient. i realized it soon after, and it sucks, but hey, it happens!

anyway, this morning i all of a sudden felt really, really poorly. had the worst poop, and am brain fog central. i didn't directly consume anything that could be cross-contaminated (just had some fruit so far)... could this be 'left over' from the casein? just curious if anyone has had a delayed reaction from that.

thank you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mango04 Enthusiast

Yep, I get delayed reactions from casein all the time. In fact, I generally react about two or three days later. Hope you feel better. Getting caseined is no fun <_<

mmaccartney Explorer

My casein reaction usually starts about 2-4 hours after ingesting it. Sometimes, if it was late at night that I ate it the reaction wouldn't start until early mornin, like 4 or 5 am.

dlp252 Apprentice

A lot of my reactions (to just about anything) are delayed! That's one of the reasons it so darned hard for me to figure out exactly what I'm reacting to sometimes.

lorka150 Collaborator

thanks everyone.

i had felt it immediately, but then today it came at full blast. i wanted to make sure i didn't do another mistake, but i'm so positive i didn't that it must have been delayed.

thanks for your replies!

shai76 Explorer

I'm pretty allergic so my reaction starts as soon as I come in contact with milk. I get wheezy, my throat tightens up, I have trouble breathing, my airways swell, Hives, facial swelling, tongue swelling. Drop in blood pressure. That's when I have to go to the hospital. I end up with a stomach ache, reflux, swollen esophagus and asthma for up to a month after exposure. Bloody diarrhea, and the worst eczema you can imagine on my hands and feet, and genitals. I also get that foggy, high feeling in my head, but that doesn't last long and is normally caused by a release of endorphines to help ease the pain and stress of anaphelectic shock.

lorka150 Collaborator

i did get the hives and chest tightness right away... just the poop and SUPER brain fog came today.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shai76 Explorer

My main delayed reaction is the eczema. I don't understand why brain fog happens with delayed reaction, but it does happen. Maybe it is some kind of coping mechanism for your body to deal with repairing the damage or something.

jenvan Collaborator

I used to get the brain fog too...but curiously, once I gave up dairy I never had it again. So I am beginning to think that my brain fog was based on casein, not gluten issues (as I had originally assumed).

Guest Robbin

I get the immediate sore throat, few hours later-D, then for a couple of days -brain fog. Casein seems to be just as bad as gluten for me too. Something I found that helps the brain fog is kind of weird, but anything peppermint, menthol, etc. I have bath salts with peppermint , drink mint tea, use a olba menthol natural nasal inhaler, even rub vicks all over!! It helps for me, maybe it will help someone else. (I don't usually do all that at the same time!) :) It's temporary, but helps me focus enough to at least cook dinner or carry on a conversation. :blink:

lorka150 Collaborator

jenvan,

i think so, too.

one day, i got caseined and glutened (what weird phrases, eh?) in the same meal. i know what both of the products were, and as SOON as i had the casein (which was before the gluten), i got the brain fog. i also get jell-o legs from casein immediately, too.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,122
    • Most Online (within 30 mins)
      7,748

    jenr8er
    Newest Member
    jenr8er
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Sorry, I think I got you mixed up with another poster.
    • rei.b
      I hadn't been eating gluten free before having the antibody test done. I started eating gluten free after having the test done because the gastro PA told me to eat gluten-free for 6 months. I'm now 3 months in.
    • trents
      I tend to agree with RMJ. Your doc took the reasonable and practical approach to diagnosis. All things considered, it was the right way to go. However, if you have first degree relatives that show signs of possible celiac disease, urge them to get formally tested before they start the gluten free diet.
    • RMJ
      It sounds like you have a very reasonable GI doctor, who diagnosed you based on family history and symptoms after eating gluten. I would consider you lucky! The other option would be to make yourself very sick by doing weeks of a gluten challenge prior to an endoscopy.
    • captaincrab55
      Hi Colleen H,   I suffered with the pins and needles/burning feeling in my legs and feet for at least  6 years until my Nephrologist figured out that I had to go on a low salt diet.  He said my kidneys weren't strong enough to remove the salt.  The simple fix was a diuretic, but that med leaves the uric acid behind, so that wasn't an option.  On the bright side the low salt diet lowered my BP over 20 points and and the pins and needles/burning feeling went away.  Good Luck and hope this helps.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.