Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting A Little Scared Now...

JerryK

Recommended Posts

JerryK Community Regular
JerryK
Posted

So on Thursday and Friday, I felt so well that I smugly thought no way can I be Celiac, I feel too

well.

On Saturday I was a terrible Gluteneater. The wife and I stopped at Krispy Kream and bought doughnuts. Then we had pizza with the kids for dinner( I ate two pieces). Then later I ate some Chinese food...You know...deep fried Shrimp....Cashew Chicken, Orange Chicken..all covered with...flour of course...

Sunday I was sick as a dog...cramps.....bloating...nausea....Diareaha. I even got sick during my morning run, which never happens. It's Monday morning and I'm feeling a little better, but my back still hurts.

Is it the Gluten?

I don't know what to do. We're going on an Alaska cruise in two weeks. I'm so freaked out now, I'm going to be afraid to eat anything except meat and potatos. But then if I do that and I really am Celiac, when I go to get tested, it'll come out negative....

Any advice...what should I do? Should I just pack the immodium and go on about my business or do I eat carefully.....This is so frustrating.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


penguin Community Regular
penguin
Posted

I'm sorry you're feeling so bad :(

If you're going to persue testing, pack the immodium and do the best you can. Eat all of the gluten you can stand. I'm mid-challenge right now and I'm to the point of being afraid to drive. It's a lot easier to put up with it for a few more weeks than to be gluten-free for months and have to go back on gluten for another 3 months.

I find that red bull perks me back up the fastest without burning me out. Some phayzyme might be a good idea for you at this time, as well.

Good luck!

KaitiUSA Enthusiast
KaitiUSA
Posted

Sorry you are feeling bad. Yes, it is likely the gluten causing that and you should not go gluten free before testing unless the testing means nothing to you. If you know that your body reacts this way doesn't it make sense to eliminate it so you feel better? I mean I know it's a pain in the butt and may be hard if you do not know for sure but think about it...something is obviously in that food causing your body alot of problems.

If you know the only way you can stay gluten free is with a positive test result then I suggest taking some pepto or something along on the trip.

ravenwoodglass Mentor
ravenwoodglass
Posted
So on Thursday and Friday, I felt so well that I smugly thought no way can I be Celiac, I feel too

well.

On Saturday I was a terrible Gluteneater. The wife and I stopped at Krispy Kream and bought doughnuts. Then we had pizza with the kids for dinner( I ate two pieces). Then later I ate some Chinese food...You know...deep fried Shrimp....Cashew Chicken, Orange Chicken..all covered with...flour of course...

Sunday I was sick as a dog...cramps.....bloating...nausea....Diareaha. I even got sick during my morning run, which never happens. It's Monday morning and I'm feeling a little better, but my back still hurts.

Is it the Gluten?

I don't know what to do. We're going on an Alaska cruise in two weeks. I'm so freaked out now, I'm going to be afraid to eat anything except meat and potatos. But then if I do that and I really am Celiac, when I go to get tested, it'll come out negative....

Any advice...what should I do? Should I just pack the immodium and go on about my business or do I eat carefully.....This is so frustrating.

I think you already have your answer to the gluten question, your body told you. As to the trip I would go but I would eat as gluten free as I could so I would have a good trip. Even if that meant steak and baked potato every night, only wine to drink and salads and fruit. I would also pack immodium even though I am not a fan of keeping toxins in our systems. The D is your body trying to get the poison out. You do know also that there are some of us that come up negative in testing even with full blown celiac. I tested negative for years but that certainly didn't mean that wasn't the problem. My recovery from a living death after going gluten-free has been miraculous.

mouse Enthusiast
mouse
Posted

I am sorry that you are feeling sick. But, there is nothing to fear from the diagnosis of Celiac, unless you continue eating gluten and then cause a lot more damage to the body. Some people need the diagnosis or after awhile of being gluten-free, they think it was all in their minds and then they go back on gluten. In that case a diagnosis is necessary. This is your call and only you can decide. If you decide to pursue the testing then you have to continue to eat gluten. I hope your trip goes well no matter your decision.

CarlaB Enthusiast
CarlaB
Posted

Sounds like the typical gluten-challenge for someone who has a gluten intolerance to me! I also had that problem, but more c than d during the challenge. By the end, I was like Chelsea and didn't feel safe driving. Now I joke that I don't need alcohol, I can get drunk of a dinner roll and have a hangover for five days! (I'm actually a very lite drinker, so it's funny to my friends).

It's up to you whether you need the testing. I felt like I needed it, so kept up the challenge. Unfortunately for me, my results were negative. Or, should I say, not positive since negative cannot rule out celiac. I ended up going to Enterolab.

JerryK Community Regular
JerryK
Posted
  • Author

Thanks for your responses. I couldn't even work yesterday. Today I feel much better. I had meat and potatos yesterday....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guhlia Rising Star
Guhlia
Posted

Jerry, why don't you get tested before the cruise? It seems to me that you likely won't have a good time on vacation if you're sick all the time. Better to know early than continue causing serious damage to your body.

JerryK Community Regular
JerryK
Posted
  • Author
Jerry, why don't you get tested before the cruise? It seems to me that you likely won't have a good time on vacation if you're sick all the time. Better to know early than continue causing serious damage to your body.

Now that I feel better today and can think more clearly, that is what I should do. Provided my

doctor agrees...

penguin Community Regular
penguin
Posted
Now that I feel better today and can think more clearly, that is what I should do. Provided my

doctor agrees...

Beware that if you haven't been eating at least the equivalent of 4 slices of bread a day for the last 3 months, it may skew your tests. Just a thought.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,541
    • Most Online (within 30 mins)
      7,748
    Sally Garber
    Newest Member
    Sally Garber
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Supplements for those Diagnosed with Celiac Disease

      By Scatterbrain · Posted

      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.