Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seemingly Endless Appitite?


sarahelizabeth

Recommended Posts

sarahelizabeth Contributor

Is this a symptom of celiac??? The Dr's have thrown around the idea of testing my 1 year old for celiac but haven't yet. He's only in the 5th percentile for weight but eats NON STOP... more than most school age children it seems!! He's short too, has chronic constipation issues, reflux, very gassy, is very irritable, and is not digesting much of the food he eats (it comes out whole), he was anemic at his 9 month check up too. The Drs told me that children with celiac don't want to eat cause their tummy's are uncomfy so since Matthew has a HUGE appitite he must not have celiac??? I am confused!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast
Is this a symptom of celiac??? The Dr's have thrown around the idea of testing my 1 year old for celiac but haven't yet. He's only in the 5th percentile for weight but eats NON STOP... more than most school age children it seems!! He's short too, has chronic constipation issues, reflux, very gassy, is very irritable, and is not digesting much of the food he eats (it comes out whole), he was anemic at his 9 month check up too. The Drs told me that children with celiac don't want to eat cause their tummy's are uncomfy so since Matthew has a HUGE appitite he must not have celiac??? I am confused!!

All the things you have listed are symptoms for Celiac. If I have been glutened I feel BURNING hunger pains. My daughter was eating more food than I was and she was only 10 months old!

L.

penguin Community Regular

With celiac, you're malnourished. You're not absorbing any food, so your body thinks its starving, ergo-massive appetite.

It's very much a symptom of celiac, or at the very least malnutrition.

Fiddle-Faddle Community Regular

Is your one-year-old still getting any breast milk, or is he already weaned? For some reason, besides for being more easily digested than any other milk (including ALL formulas), the proteins and fats in breast milk go directly to bone and brain growth rather than fat. He may be thirsty, too. One year-olds can't always tell the difference between hunger and thirst--make sure he's washing all that food down!

If his food is coming out the other end whole, then he's not chewing his food and he shouldn't be eating that kind of food. Run it through the blender first with some liquid!

If you've only recently weaned him, you can still probably relacte by pumping. It sounds like an awful pain in the patootie, but I bet you'll see a HUGE diffrence.

penguin Community Regular
If his food is coming out the other end whole, then he's not chewing his food and he shouldn't be eating that kind of food. Run it through the blender first with some liquid!

It's also a sign that food isn't being digested at all, if it's chewed but comes out looking like the chewed state. Any grown up celiac with a full set of teeth that's ever eaten a salad on a bad day can tell you that :ph34r:

sarahelizabeth Contributor

He weaned himself from breastmilk at 9 months. At that time we thought he had a dairy allergy so it turned out for the best. He had allergy testing done and came back negative for everything except peanut (but that is a whole otehr story) He was only Alimentum up until his birthday 2 weeks ago and is now on whole milk.

Our GI Dr said that it **can** be normal for kids his age to have foods come out whole because they lack the teeth for good chewing. He said if his poops still look like that in a year then he would send him for further testing. He told me not to worry about it and not to change his diet. He said the same thing about the reflux... can be "normal" up to age 2 so wanted to wait another year before any testing. So now we just have to sit back and wait a year :(

Fiddle-Faddle Community Regular
So now we just have to sit back and wait a year :(

You don't HAVE to do anything you don't want to do! You are in charge of what goes in your son's mouth, not your doctor!

If he has a problem chewing his food, then it can't possibly be good for his intestinal tract (with or without celiac) to have unchewed food passing through it! His stomach is probably producing extra acid to try to break down the unchewed food. If he has reflux, there ARE measures to lessen it (my daughter had reflux, too). you're probably already doing them, but just in case: keep him upright as much as possible, especially after eating. If he's tired, hold him with his head on your shoulder and rock him, and then just hold him til he wakes up, or else let him sleep in a toddler car seat. Feed him HALF as much--but twice as often.

You might want to go back to the Alimentum and see if he has an easier time digesting it. If you MUST do cow's milk, please get Organic--all the things we nursing moms were told we CAN'T take and still nurse our babies, like antibiotics and hormones are in the diets of America's dairy cows. They are on constant antibiotics and recombinant bovine growth hormone, and they eat pesticide-laden feed, too. Organic milk is ridiculously expensive--but worth it in the long run.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kenyonsmommy Rookie

My son is 2, just diagnosed by biopsy last month. He eats non-stop. he wakes me up at 5 am every morning with a go-gurt that he has grabbed from the fridge. he eats it, has some water and goes back to sleep. When he is awake, he is constantly hungry. he's only been gluten free for about 3 weeks, he's gained almost 4 pounds. Before he was Dx, his poop was almost white and smelled horrible, he was getting no nourishment what so ever. I think he may have gotten used to the non stop eating then, and its just continuing now. Not to mention that he feels 10x better.

By the way, I also just trained him to grab a diaper when he comes in with his go-gurt, that way i dont have to get up. 5 am is way too early for me.

e&j0304 Enthusiast

Endless appetite was the main problem that we had with my dd. She would eat ALL the time and was also very tiny. Only 18lbs and 27inches at a year old. She should have been 40lbs at least. She was so malnourished before we figured out that gluten was the problem that her hair was falling out in clumps and she was actually bald in spots on her head. She was about 2.5 years at that point.

She is now almost 3.5 years old and is doing VERY well. Her hair is growing in, she is happy and thriving in every way. She is of normal weight although she is still short. She is still an above average eater, I would say, but I think that as someone else mentioned, she was used to eating such huge amounts of food and I think that stuck with her. What we are not dealing with now is the total obsession about when she could eat next, melt downs about being hungry (after just eating something) and lack of ability to just function in a normal social setting because she was so miserably hungry.

I would advice you to try the diet. It can't hurt and it may be the best thing you could ever do for your child. I thank God every day that we were able to help my dd with the simple dietary change.

Good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.