Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone From Michigan And First Day Going gluten-free

guitarplayer4God

Recommended Posts

guitarplayer4God Explorer
guitarplayer4God
Posted

Hi, I'm Beth and I'm 15 yrs old I'm new to the forms and celiac. Today is the first day that I am going gluten-free. I tested postitve on my blood test. Is anyone from Michigan? It would be really cool to meet another celiac in Michigan. Is vinegar ok to have? Like in ketchup and things?

Thanks,

Beth

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Girl Ninja Newbie
Girl Ninja
Posted

Hi, Beth. I'm 26 and I'm in SE Michigan. What area are you in? I'm self-diagnosed (HATE my doctor) and I've only been gluten-free about 2 months myself, so I'm still learning. Glad to meet you. I believe *most* vinegars are ok. Malt vinegars are not ok.

The Delphi List has these Heinz condiments as gluten-free:

Heinz (Heinz) (800-255-5750) (www.heinz.com) (ve=03/24/04)

KETCHUP: Ketcup, Kick’rs (Hot & Spicy)

VINEGAR: Distilled White Vinegar, Red Wine Vinegar, Apple Cider Vinegar (NOTE: Apple Cider FLAVORED Vinegar is NOT gluten-free)

EZ MARINADER: Mr. Yoshida Teriyaki only

guitarplayer4God Explorer
guitarplayer4God
Posted
  • Author
Hi, Beth. I'm 26 and I'm in SE Michigan. What area are you in? I'm self-diagnosed (HATE my doctor) and I've only been gluten-free about 2 months myself, so I'm still learning. Glad to meet you. I believe *most* vinegars are ok. Malt vinegars are not ok.

The Delphi List has these Heinz condiments as gluten-free:

Heinz (Heinz) (800-255-5750) (www.heinz.com) (ve=03/24/04)

KETCHUP: Ketcup, Kick’rs (Hot & Spicy)

VINEGAR: Distilled White Vinegar, Red Wine Vinegar, Apple Cider Vinegar (NOTE: Apple Cider FLAVORED Vinegar is NOT gluten-free)

EZ MARINADER: Mr. Yoshida Teriyaki only

Glad to meet you 2 and thanks 4 the help! I'm from the Detroit area.

mommida Enthusiast
mommida
Posted

There are a lot of us from Mi. I'm a little further north than the Palace. We have been finding more diagnosed Celiacs every where we go. The lady at the party store, people at my husband's work, people at church and school there's Celiacs every where.

A nice place for you to start if it's close enough for you, is Belcibo. www.belcibo.com it is in Clawson, very close to Oakland Mall (I-75). Celiac Specialties in Chesterfield has the best doughnuts. Belcibo sells a limited supply of the doughnuts at their store. There is a Celiac store in Lovonia. I can't remember the name right now, but the owners are fantastic.

L.

Girl Ninja Newbie
Girl Ninja
Posted

I'm from Algonac, but I figured unless you were from nearby you wouldn't know where that was. :P I work out in Shelby Twp. I went to Celiac Specialties in C'field for the first time this week. It was good. I had a piece of banana cake and my son had "bread pudding" made from cut up donuts covered in chocolate. His was too sweet for me. :) I also bought some boxed pasta. They sell dry mixes, boxed mixes, candy, cereal, spices, and pastas in addition to their prepared baked goods. Their hours are kind of strange is all. I think they closed at 2 or 2:30 almost every day. I REALLY want to go to Belcibo!

Meijer has a good gluten-free selection and you can get a list of their gluten-free products online. Kroger has an ok selection in their Nature's Market section. The best bread I've found around here is Trader Joe's Ryless Rye. It's soo good!

mommida Enthusiast
mommida
Posted

The bread mixes I like are the Chebe bread (better for people with more sensitivities) and Manna from Anna ( had to adjust to the bean flour though ) :rolleyes:

L.

StrongerToday Enthusiast
StrongerToday
Posted

Hi! I'm in Ann Arbor. I've been gluten-free and DF since August, and really feel amazing. The diet looks overwhelming at first, but now it's a piece of gluten-free cake :P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


guitarplayer4God Explorer
guitarplayer4God
Posted
  • Author

How soon after going gluten-free did it take before you started to feel better?

StrongerToday Enthusiast
StrongerToday
Posted

It was probably a couple weeks, but I distinctly remember the day I was driving to work and singing out loud and suddently it hit me "man, this is what it feels like to WANT to get up and go to work"!

There are lots of up and downs, don't get discouraged. Keep your diet simple. Check ALL your products - not just food, but lotions, make-up, etc. Find a group member called Nimi (or Nini?) she has a newbie kit that's supposed to be great.

guitarplayer4God Explorer
guitarplayer4God
Posted
  • Author
It was probably a couple weeks, but I distinctly remember the day I was driving to work and singing out loud and suddently it hit me "man, this is what it feels like to WANT to get up and go to work"!

There are lots of up and downs, don't get discouraged. Keep your diet simple. Check ALL your products - not just food, but lotions, make-up, etc. Find a group member called Nimi (or Nini?) she has a newbie kit that's supposed to be great.

Thanks!

How do I search for the group member Nimi or (Nini) ?

jerseyangel Proficient
jerseyangel
Posted
Thanks!

How do I search for the group member Nimi or (Nini) ?

Here is the link to Nini's post--

Open Original Shared Link

guitarplayer4God Explorer
guitarplayer4God
Posted
  • Author
Here is the link to Nini's post--

Open Original Shared Link

Thank you!

ianm Apprentice
ianm
Posted

Another Ann Arborite. It took a couple of weeks to feel better but a good two years to get to the point where I felt completely healthy. It takes time.

aball2006 Newbie
aball2006
Posted

i have a dietary specialist and she told me that the only vinegar thats ok it heinz's brand. the heinz white wine vinegar. also ive heard of some people getting sick form other brands of ketchup, so i stick with Heinz. French's mustard is the safe brand for mustard. it took me about 3 months to become familiar with celiac, and about 6 before i felt better every day. one day when i went to my doctor, i walked in and said "so this is what its like to be normal, your not supposed to be sick everyday!"

  • 1 year later...
SofiEmiMom Enthusiast
SofiEmiMom
Posted

I'm from Michigan as well! I don't like being the bearer of bad news...but the wonderful Belcibo has closed. It's very unfortunate, as it was a Celiac's paradise.

Girl Ninja...do you work out at Lifetime? That's were I go...great gym:).

  • 1 month later...
dancer4jc Newbie
dancer4jc
Posted

dont cheat!! itll make it that much harder for you to adjust, anyway, my biggest suggestion is start reading labels!!! b/c some brands of foods are gluten-free but other brands are not. also, while I am not celiac, my mom is. Last summer she lost all the reflexes in her legs and she started choking on fod b/c she couldnt swallow. Doctors said she would be in a wheelcahir with a feeding tube within 6 months to a year!! Major scary!!!!! Her doctor said she had MS, but the tests came back negative. so her GI doctor suggested a gluten-free diet, and with in a week she started feeling better, and now 13 months later she has almost recovered 100%.

Good luck and many prayers!!

dandelionmom Enthusiast
dandelionmom
Posted

Hi! I'm in metro Detroit. GL with Gluten-free! We just started for my 3 year old who was just diagnosed.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.