Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Specific Carbohydrate Diet


CarlaB

Recommended Posts

CarlaB Enthusiast

A friend of mine who says she has been diagnosed with Crohn's disease and gluten intolerance told me that if a celiac stays on the Specific Carbohydrate Diet for a year, they will be cured.

Part of this makes sense to me. To go on a diet where the food is easily digested would be the ideal way for the intestines to heal improving absorption. I can also agree that I eat starchy carbs for comfort food, but I could perfectly well live on fruits, veggies, and proteins. I could argue that I NEEDED that gluten-free brownie I just ate.

However, to then conclude that the person could go back on the western diet that presumably started the condition to begin with makes no sense to me. It also makes no sense to me that your body would stop having the immune and autoimmune reaction to gluten, casein, and whatever else caused the trouble to begin with.

I agree with her assesment of the shortcomings of diagnosis. We've seen a lot of that around here.

What do you think?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
A friend of mine who says she has been diagnosed with Crohn's disease and gluten intolerance told me that if a celiac stays on the Specific Carbohydrate Diet for a year, they will be cured.

Part of this makes sense to me. To go on a diet where the food is easily digested would be the ideal way for the intestines to heal improving absorption. I can also agree that I eat starchy carbs for comfort food, but I could perfectly well live on fruits, veggies, and proteins. I could argue that I NEEDED that gluten-free brownie I just ate.

However, to then conclude that the person could go back on the western diet that presumably started the condition to begin with makes no sense to me. It also makes no sense to me that your body would stop having the immune and autoimmune reaction to gluten, casein, and whatever else caused the trouble to begin with.

I agree with her assesment of the shortcomings of diagnosis. We've seen a lot of that around here.

What do you think?

There is no cure for gluten intolerance. It is a genetic difference. The Chrons could however go into remission independantly of the gluten issue.

CarlaB Enthusiast
There is no cure for gluten intolerance. It is a genetic difference. The Chrons could however go into remission independantly of the gluten issue.

That's about what I was thinking. We can "cure" our intestines, but that doesn't mean we can damage them again by eating gluten.

terps19 Contributor

I used to belong to a SCDiet listserve. I was never on the diet but I can tell you what I learned. For some people at the end of the diet when they are "cured" which is a year of no symptoms then you can introduce like rice and potato and maybe some bread but never the processed foods in the American diet.

I always thought the diet was too restrictive and would cause me to lose a lot of weight especially since I cant tolerate casien- that means no yogurt which is a cornerstone of the diet. I also dont do well eating a lot of nuts thus making the almond flour baked goods would be risky.

Guest greengirl

The author of the book, Breaking the Vicious Cycle, (Elaine Gottschall) does indeed say that after being on the SCD for a year without symptoms Celiac disease can be cured. She doesn't give the scientific explanation for this, although she was a cellular biologist and spent many years researching the diet. I kept thinking I was reading it incorrectly. If this is true (which I doubt) you'd think it would be a major breakthrough and she would have gone into much more detail about it. Her daughter did have ulcerative colitis and after being on the diet for 7 years was able to eat a normal diet for 30 years and counting, but UC is different than celiac...

I do believe the diet is helpful, if not a complete cure. I only did it for 6 weeks because I felt so weak without the carbs, but I did notice an improvement when I re-introduced gluten free foods that were not included in the diet. I think it helped jumpstart my healing.

Christine

sleepingbean Newbie

Well, I don't buy that without some studies and proof! BUT we did do the SCDiet and it did cure my daughter of her SYMPTOMS. The autism traits went away. It did let her gut HEAL. Her diarrhea finally stopped.

BUT if she gets any gluten, even now (2+ years later) she reacts terribly. So, as long as she doesn't eat gluten, she is cured with SCDiet, but if she eats gluten again...she is sick again.

I think that is very dangerous advice to give out to people. Some people may be sick without a true intollerance to gluten and with that sickness may come an inability to handle gluten at that time. For some, I imagine that once their guts are healed they may very well be right as rain, but I would not ever recommend a Celiac try eating gluten again after doing the SCDiet.

But, I would recommend that any Celiac who still has gut related problems or behavior or autoimmune etc to try the SCDiet becuase it can really help the body to heal when just eliminating gluten alone doesn't always do the trick.

We did SCDiet without dairy and it worked beautifully.

shayesmom Rookie
A friend of mine who says she has been diagnosed with Crohn's disease and gluten intolerance told me that if a celiac stays on the Specific Carbohydrate Diet for a year, they will be cured.

Part of this makes sense to me. To go on a diet where the food is easily digested would be the ideal way for the intestines to heal improving absorption. I can also agree that I eat starchy carbs for comfort food, but I could perfectly well live on fruits, veggies, and proteins. I could argue that I NEEDED that gluten-free brownie I just ate.

However, to then conclude that the person could go back on the western diet that presumably started the condition to begin with makes no sense to me. It also makes no sense to me that your body would stop having the immune and autoimmune reaction to gluten, casein, and whatever else caused the trouble to begin with.

I agree with her assesment of the shortcomings of diagnosis. We've seen a lot of that around here.

What do you think?

You know, I have been considering this for a while now. Part of it does make sense, especially in light of one of the articles posted on this site in reference to a bacterial overgrowth which may play a part in triggering Celiac Disease. The SCD diet is supposed to change the balance of gut flora....especially the prevalence of one which is being associated with Celiac and is assisting in the "triggering" response.

However, I must have misunderstood the part which spoke to the length of time needed for the diet to work. For some reason, I had 2 years on the SCD diet as the required time?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Thank you for all of your replies, it's good to know my thinking wasn't too far off from what most of you think. I, too, was thinking it would be a good cure for the symptoms, but not the disease itself. That makes sense. However, stopping the immune reaction does not make sense to me. My friend has Crohns, so it could be pretty likely that she could be "cured." I still think that if anyone went back to the way they ate before that likely caused their problems, that the problems would eventually return. But, if you started having syptoms at 30, got "cured," maybe you'd be good for another 30 years (for non-celiac diseases) ... who knows! ;)

Nancym Enthusiast
Thank you for all of your replies, it's good to know my thinking wasn't too far off from what most of you think. I, too, was thinking it would be a good cure for the symptoms, but not the disease itself. That makes sense. However, stopping the immune reaction does not make sense to me. My friend has Crohns, so it could be pretty likely that she could be "cured." I still think that if anyone went back to the way they ate before that likely caused their problems, that the problems would eventually return. But, if you started having syptoms at 30, got "cured," maybe you'd be good for another 30 years (for non-celiac diseases) ... who knows! ;)

I like the diet, sans the milk products. It seems like about the healthiest diet you could eat. But I'm very skeptical about the claims of curing celiac.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      37

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    3. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    4. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    5. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,362
    • Most Online (within 30 mins)
      7,748

    Julie Mitchell
    Newest Member
    Julie Mitchell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.