Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ultrasound Results/another Scope?

num1habsfan

Recommended Posts

num1habsfan Rising Star
num1habsfan
Posted

Ahhh stressed out more now...

I went to my doctors appointment this morning...

He told me that both ultrasound results for pelvic and stomach were normal...

And then once I told him about having blood in my poop, he started panicking almost. :o first he agreed a person could get an Inflamatory Bowel Disease and having Celiac, and then he starting thinking of what it could be...

So he actually LOOKED in my bum :huh: ... he said its not hemerroids for sure, and that it cant be Colitis because if it was, then it would be inflamed at all times...

So he said forget about going to Regina, he will get into into a doc in Yorkton who specializes in IBDs to get a colonoscopy done a.s.a.p.

:

and my initial guess was right....the doc is almost positive that I have Crohn's :unsure: because he even pointed to my stomach exactly where the Crohns pain is (exactly where I am always in pain), and that bloody poop is a sure symptom...

I said i want to feel better before school starts, and hes sounded sure I will at least have the colonoscopy done by then...and if it takes too long,

I gotta also go to the hospital, where they will give me instructions for a stool collection, and bloodwork for the following (which I dont even know what they are):

- CBC

- ESR

- TSH

- T4

- Iron Studies

- Ferritin

- Vitamin B12

Thats my update...

~lisa~

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dlp252 Apprentice
dlp252
Posted

Try not to be too stressed. I also had blood in my poop, so a colonoscopy was ordered. In my case it turned out okay, but you do want them to check to be sure. My doctor thought I might have colitis or something like that, but turned out I don't.

The CBC is a blood panel which tests for a lot of different things.

The TSH and T4 are thyroid tests.

I don't know what ESR is...I don't know if I had that on my bloodwork.

The iron and B12 are self explanatory.

Not sure about Ferritin

Guest nini
Guest nini
Posted

Ferritin is iron

jerseyangel Proficient
jerseyangel
Posted

Hi Lisa--it's great that the doctor is finally getting to the bottom of things (no pun intended :D )! Really, he seems like he's serious about you having something besides Celiac going on. The colonoscopy is not bad at all--the prep is the worst of it, but not painful. Just more D. Have you been feeling any better lately? This has been such a long, drawn out thing--I hope they get you in quickly and you get relief soon! BTW--Ferritin tells how much iron is stored in your body and ESR pertains to your SED rate--that, I think, has to do with inflammation.

mart Contributor
mart
Posted

Lisa, I'm sorry - I didn't get the details on all your symptoms. The symptoms for Crohn's are almost identical to those of Celiac. Many times bloody stools do not mean Crohn's. Do you mind posting all of your symptoms again and why your doc is wanting to rule out Crohn's? (aside from the bloody stool and localized pain)

Nantzie Collaborator
Nantzie
Posted

YAY! You finally got a doctor to take you SERIOUSLY!!!!!!! I'm SO glad your doctor treated you like a patient and not a hypochondriac. {{{HUGS}}}

Keep us posted on everything.

Nancy

TCA Contributor
TCA
Posted

Just watned to send hugs your way. Hope you feel better soon! Glad you have a dr. who listens.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

ESR is "erthrocyte sedimentation rate" a test for arthritis. Erthrocytes are red blood cells.

Ferritin is a protein in the body that binds with iron.

"Is there anything else I should know?

Ferritin is normally found mainly inside of cells, with only a small amount in the blood. When there is damage to organs that contain ferritin (especially the liver, spleen, and bone marrow), ferritin levels can become elevated even though the total amount of iron in the body is normal. Ferritin levels may not be particularly helpful in persons with liver disease, chronic infections, cancers, or autoimmune diseases (which are all associated with organ damage)." Open Original Shared Link

Steve

flagbabyds Collaborator
flagbabyds
Posted

CBC is complete blood count. it measures vitamin and mineral levels, and all the others have been explained.

feel better soon!!!!!!!!

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Lisa, I'm sorry - I didn't get the details on all your symptoms. The symptoms for Crohn's are almost identical to those of Celiac. Many times bloody stools do not mean Crohn's. Do you mind posting all of your symptoms again and why your doc is wanting to rule out Crohn's? (aside from the bloody stool and localized pain)

Symptoms of Crohns (ones I have experienced since feeling sick again is bolded):


  • bloody diahhrea

  • pain in one spot

  • lower back pain

  • arthritis

  • high white blood cell count
  • low red blood cell count

  • bacterial infections

  • weight loss

  • nausea
  • night sweats

  • abdominal pain

  • sore eyes

  • vomiting
  • anemia

  • fatigue

  • joint pain
  • navel pain

  • lower right side pain
  • malnutrition

Also I had bloodwork done 8 times, gave 5 or 6 urine samples, twice had stomach xrays in that area, and everything was always normal. Plus the gluten-free diet never gave me pain for 3 years, and that seems to be the same area where I am feeling it. And like I said today, he checked my insides and automatically ruled out hemmoroids/colitis. The ultrasound ruled out cysts or appendix or gallbladder or kidney or ANY possible issues that they had suspected all along...

~lisa~

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748
    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.