Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello And A Few Questions


Agent Z

Recommended Posts

Agent Z Newbie

Hey, I'm new to these boards, and just found out last week that I have celiac disease (I found out from a blood test and endoscopy). Now I'm at college for the summer, and my eating options are kinda limited.

There's a student center with a McDonald's, a Subway, a Taco Bell. What from those are gluten free that I can have?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



plantime Contributor

Subway and Taco Bell are out, McDonald's will work with you. The fries should be out, though, as they get cooked in the same oil as the breaded stuff. I know they say the fries are safe, but I have found too many crumbs from the other fried foods in mine.

queenofhearts Explorer

I'm sorry, I don't have an answer on the fast food because I'm a newbie myself, & I don't eat fast food much anyway. But I wanted to welcome you to the forum, & assure you that someone will know! This is by far the most useful resource I have found in coping with this disease.

My sons are college students, not Celiac as far as we know, & one of the first things they said when I told them about my new dietary restrictions was "that would be really hard here!" It made me think about tactics should they be diagnosed as well. My advice would be to speak to someone with the food service program, explain your restrictions, & let them know that they have a responsibilty to provide meals for you safely. (A letter from your doctor detailing the restricted items & stressing the importance of avoiding them probably wouldn't hurt.) Also if you can afford to stock up on some safe items of your own, there are plenty of gluten-free products you could make in a dorm microwave, as well as no-cooking snacks. A great microwave snack that my son loves is a corn tortilla, topped with grated cheese, microwaved on a plate 2 minutes or so, then topped with salsa, avocado, &c. The tortilla sort of fries itself in the oil from the cheese. The only downside is cleanup!

Good luck, Agent Z! I know there are some college students on this board, & they'll probably be much more helpful.

Leah

floridanative Community Regular

Welcome Agent Z - I like your screen name.

Go to the websites of each fast food place and you'll see what foods they offer that are gluten free. I think for MD's you can have their eggs and sausage but not bacon and you can have a burger no bun but double check that on the website. From what I remember about Taco Bell they offer few gluten-free options. Can you get a mini fridge in your room to store some of your own food like milk for gluten-free cereal?

Best of luck to you. I've only been gluten free for six months (next week) and it's already so much easier for me than when I started. I still learn something new often about the diet and lifestyle but I didn't let the condition take over or change my life in negative ways. If you can find a support group in your area, that will be a great resource for you. There is a thread on here where you can search a city/area for local support groups.

Agent Z Newbie

This school (SIU Carbondale) actually is supposed to have the number 1 health center in the nation, and they have a nutritionist here that I'm going to see I think next week to talk about what to do. Supposedly, the dietician offers a menu or plan that shows/gives foods that are Gluten free here at the dining halls. Unfortunately, the dining halls are closed, and I'm pretty much left with the options I stated. Also, the dietician doesn't offer the gluten-free program thing in the summer, so I'm on my own for a couple of months.

eKatherine Apprentice

You should have a little refrigerator in your dorm room to stock with safe foods, because you're not going to survive on what they have available to you.

MySuicidalTurtle Enthusiast

Having Celiac Disease in college doesn't have to be limiting. In the U.S., by law, your school has to work with you. It is not healthy to eat at McDonalds everyday- especially if you have Celiac Disease. You need to set up an appointment with your school to discuss your options with what they will allow you to have- microwave, refrigerator, and stuff until and while the dining halls are open. I know I would not settle with McDonalds for anything and neither should you. I personally don't live on my campus but there are apartments for those who do. Good luck on getting food and keep yourself healthy!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Agent Z Newbie

My parents actually bought me a new refrigerator with a seperate freezer and fridge because of this (and my old one sucked). So I have a few foods and snacks that are gluten free in there and dry foods that don't need to be frozen in a drawer. But I'm already running out (for the first few days I was here, food service wasn't even really happening). And the options are EXTREMELY limited as to what is gluten free at a food store (even at the Co-Op which has alot of alternative foods) and what I can actually make with a microwave (which I do have). There were some mini-tacos I found that are, at least what me and my mom detected from the ingredients, gluten free. But I finished those today. And I got things like potato pancakes and cheetoes and crackers (rice ones) and junk. Not very fun to eat all the time though.

Mango04 Enthusiast

You can get a microwavable rice cooker or you can cook rice and tinkyada pasta in a hot pot. If you can get away with having a George Foreman you can cook meat as well. Try to keep some fruits and veggies in your fridge. Thai Kitchen makes noodle carts and soups that only require hot water. Amy's frozen meals are a good option too. Actually, you can get that frozen rice that comes in bags (you just stick it in the microwave) and cans of beans and lentils.

I also recently came across this website:

Open Original Shared Link

I guess they sell pre measured microwavable mixes so you can bake gluten-free stuff in the microwave. I wasn't gluten-free in college but I was strictly CF so I had a similair situation. It's just a matter of getting creative with the microwave and sticking to raw single-ingredients safe foods that don't require cooking. If you have any friends that live off-campus you could maybe cook stuff in their kitchen and then freeze it for microwaving later.

I could never get my food service people to work with me because I don't have an official diagnosis, but if you do, they should help you out.

olalisa Contributor

I copied the info below directly off the Taco Bell website and pasted it here. I have had the Zesty Chicken Bowl and the Southwest Steak Bowl (with the modifications specified) and didn't have a reaction. I also ask them to change their gloves before preparing mine. Hope this helps.

Suggestions for Wheat and Gluten Sensitive Individuals

- Tostada

- Fiesta Taco Salad (order Chicken instead of Beef; order without the shell and without the Red Strips)

- Express Taco Salad (order Chicken instead of Beef)

- Zesty Chicken BORDER BOWL® (order without the Zesty Dressing and without the Red Strips)

- Southwest Steak Bowl (order without the Creamy Jalapeno Sauce)

tarnalberry Community Regular

you actually can make most anything in the microwave. you might want to spend some time googling 'microwave recipes'. not as good as if you could get a small grill, or an electric skillet (which I purchased senior year in college, though my dorm did have a kitchen), but it's something.

Susan123 Rookie

Being a fast food addict.- Wendy's - Cheese Fries, Chili, baked potato (with brocolli or cheese or both), southwest salad, honey mustard dressing and ranch and any burger w/o bun of course. McDonalds, side salad and ranch, fries, Burger King, Tendergrill chicken w/ or w/o garden salad, Boston- chicken, turkey mashed potatoes, gravy ( i confirmed- use cornstarch as a thickener), green beans, corn, vegetables, dill potatoes, Arby's pretty much nothing, Subway- pretty much only the salads plain, Chik fila- grilled chicken w/o bun, salad,

shai76 Explorer

Maybe at Subway you could have a salad with no croutons, or dressing, and maybe with grilled chicken. I don't know if it is all gluten free. You think it would be. I guess it's something you would have to check. I don't dine out.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    • Wheatwacked
      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.