Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oscal D For Osteopenia


floridanative

Recommended Posts

floridanative Community Regular

I tagged this on another thread but no one replied so I had to start a new topic. My GI doc gave me my bone scan results (which show I have Osteopenia) and there were three numbers ranging from -.09 to -1.6. She told me to take otc Oscal D, 500mg daily. She also told me to make sure it was gluten free.....thanks doc. Now I've read what everyone else here takes for Osteopenia (which I know is not as bad as Osteoperosis) and most of you take Fosamax or Actonel. Is an otc supplement really what I need? I don't want to take something that is not strong enough but I also prefer an otc pill to an rx if it will do the trick.

Please give me some opinions as I'm seeing my pcp next week and I'm going to see if she agrees with the GI or not. But from personal experience I trust you people (other patients) more than I do any doctor I've met to date.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

make sure to take a magnesium supplement. studies have shown that magnesium is just as, if not more, important as calcium in celiac patients for bone density. the appropriate quanity is whatever makes for a 2:1 calcium to magnesium ratio. (so, for every 500mg of calcium you take, you want 250mg of magnesium.)

jenvan Collaborator

Also--great "bone builders" are exercise, walking and weight-lifting. My mom raised her levels back to normal (from osteopenia) with walking and weight-bearing exercise. She did not take any medications.

floridanative Community Regular

tarnalberry - yes I read another post of your about magnesium so I'm going to get that too. The Oscal D is gluten free - I called today. I'll get the magnesium and Oscal tomorrow. I have a shoulder injury so I can't do anything with my left arm but my pt excercises but I'll get on the treadmill for now. Hopefully my arm will heal and I can get back into power yoga which you can add weights to.

jenvan - how are you? Thanks for telling me about your Mom. I'm going to do the supplements for now and hopefully I can get off them eventually. I'm so glad to be off gluten but wish I'd found out about Celiac before I stopped absorbing so many nutrients. I'm about to go off iron but I'm staying on the folic acid rx and otc b12 for now. I feel like a 60 year old when I fill up my weekly pill box.

Guest greengirl

My ob/gyn thought that I had osteopenia based on a foot scan that she did in the office, however a full body DEXA scan showed that I was in the normal range. Anyway, if it had shown osteopenia she said she would have put me on Fosomax. I would probably get a 2nd opinion about taking only otc calcium. You wouldn't want time to go by and then find out that it wasn't enough to prevent osteoporosis from developing.

Christine

jenvan Collaborator

Pming you :)

floridanative Community Regular

For those of you who understand supplements - my pcp told me I have to take 1000mg a day of the Oscal and that my numers on the scan are not high enough to warrant a calcium rx (yea!) but I'm taking magnesium too so I guess I have to take 2 of those with the 2 500mg Oscal pills. The magnesium I bought is a cheap gluten-free drugstore brand and it starts crumbling before I can swallow it and it tastes nasty. Is there a brand of magnesium that is coated that others have tried? I'll take the rest of what I have but I have to find another magnesium pill that is not so chalky.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
floridanative Community Regular

Does anyone know if there are different types of magnesium supplements available? I can't take the magnesium I bought. It does not agree with my digestive system at all. I thought maybe I was getting glutened but then I stopped the magnesium and my symptoms stopped. Took it again and they came back...so I can not take what I have - Walgreen's cheap gluten-free 250 mg pills. Is there something better I should try? I keep reading if you take Calcium you have to take Vit. D and magnesium too. Well I know the Vit. D is vital to help absorb calcium but can anyone point me to the medical research that supports you have to take magnesium too? The Today show did a segment on Osteoperosis/calcium supplements the other day and they talked about Vit. D but didn't mention magnesium.

Satori Newbie
Does anyone know if there are different types of magnesium supplements available? I can't take the magnesium I bought. It does not agree with my digestive system at all. I thought maybe I was getting glutened but then I stopped the magnesium and my symptoms stopped. Took it again and they came back...so I can not take what I have - Walgreen's cheap gluten-free 250 mg pills. Is there something better I should try? I keep reading if you take Calcium you have to take Vit. D and magnesium too. Well I know the Vit. D is vital to help absorb calcium but can anyone point me to the medical research that supports you have to take magnesium too? The Today show did a segment on Osteoperosis/calcium supplements the other day and they talked about Vit. D but didn't mention magnesium.

I've read a lot of stuff on needing the mag and I have to agree with it. My T-score is -1.4 and I've opted not to take the fosamax and just do the supps for a couple years and I do take higher then normal mag since I have chronically low levels of it when tested. (I still have serious malabsorption issues) There is stuff on it here on celiac.com https://www.celiac.com/st_prod.html?p_prodi...-36103509980.9e and they list several studies at the end.

BRUMI1968 Collaborator

Side effects of fosamax:

Stop taking FOSAMAX and call your doctor right away if you get any of these signs of possible serious problems:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,859
    • Most Online (within 30 mins)
      7,748

    Lesley-Anne
    Newest Member
    Lesley-Anne
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.