Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oscal D For Osteopenia

floridanative

Recommended Posts

floridanative Community Regular
floridanative
Posted

I tagged this on another thread but no one replied so I had to start a new topic. My GI doc gave me my bone scan results (which show I have Osteopenia) and there were three numbers ranging from -.09 to -1.6. She told me to take otc Oscal D, 500mg daily. She also told me to make sure it was gluten free.....thanks doc. Now I've read what everyone else here takes for Osteopenia (which I know is not as bad as Osteoperosis) and most of you take Fosamax or Actonel. Is an otc supplement really what I need? I don't want to take something that is not strong enough but I also prefer an otc pill to an rx if it will do the trick.

Please give me some opinions as I'm seeing my pcp next week and I'm going to see if she agrees with the GI or not. But from personal experience I trust you people (other patients) more than I do any doctor I've met to date.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

make sure to take a magnesium supplement. studies have shown that magnesium is just as, if not more, important as calcium in celiac patients for bone density. the appropriate quanity is whatever makes for a 2:1 calcium to magnesium ratio. (so, for every 500mg of calcium you take, you want 250mg of magnesium.)

jenvan Collaborator
jenvan
Posted

Also--great "bone builders" are exercise, walking and weight-lifting. My mom raised her levels back to normal (from osteopenia) with walking and weight-bearing exercise. She did not take any medications.

floridanative Community Regular
floridanative
Posted
  • Author

tarnalberry - yes I read another post of your about magnesium so I'm going to get that too. The Oscal D is gluten free - I called today. I'll get the magnesium and Oscal tomorrow. I have a shoulder injury so I can't do anything with my left arm but my pt excercises but I'll get on the treadmill for now. Hopefully my arm will heal and I can get back into power yoga which you can add weights to.

jenvan - how are you? Thanks for telling me about your Mom. I'm going to do the supplements for now and hopefully I can get off them eventually. I'm so glad to be off gluten but wish I'd found out about Celiac before I stopped absorbing so many nutrients. I'm about to go off iron but I'm staying on the folic acid rx and otc b12 for now. I feel like a 60 year old when I fill up my weekly pill box.

Guest greengirl
Guest greengirl
Posted

My ob/gyn thought that I had osteopenia based on a foot scan that she did in the office, however a full body DEXA scan showed that I was in the normal range. Anyway, if it had shown osteopenia she said she would have put me on Fosomax. I would probably get a 2nd opinion about taking only otc calcium. You wouldn't want time to go by and then find out that it wasn't enough to prevent osteoporosis from developing.

Christine

jenvan Collaborator
jenvan
Posted

Pming you :)

floridanative Community Regular
floridanative
Posted
  • Author

For those of you who understand supplements - my pcp told me I have to take 1000mg a day of the Oscal and that my numers on the scan are not high enough to warrant a calcium rx (yea!) but I'm taking magnesium too so I guess I have to take 2 of those with the 2 500mg Oscal pills. The magnesium I bought is a cheap gluten-free drugstore brand and it starts crumbling before I can swallow it and it tastes nasty. Is there a brand of magnesium that is coated that others have tried? I'll take the rest of what I have but I have to find another magnesium pill that is not so chalky.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
floridanative Community Regular
floridanative
Posted
  • Author

Does anyone know if there are different types of magnesium supplements available? I can't take the magnesium I bought. It does not agree with my digestive system at all. I thought maybe I was getting glutened but then I stopped the magnesium and my symptoms stopped. Took it again and they came back...so I can not take what I have - Walgreen's cheap gluten-free 250 mg pills. Is there something better I should try? I keep reading if you take Calcium you have to take Vit. D and magnesium too. Well I know the Vit. D is vital to help absorb calcium but can anyone point me to the medical research that supports you have to take magnesium too? The Today show did a segment on Osteoperosis/calcium supplements the other day and they talked about Vit. D but didn't mention magnesium.

Satori Newbie
Satori
Posted
Does anyone know if there are different types of magnesium supplements available? I can't take the magnesium I bought. It does not agree with my digestive system at all. I thought maybe I was getting glutened but then I stopped the magnesium and my symptoms stopped. Took it again and they came back...so I can not take what I have - Walgreen's cheap gluten-free 250 mg pills. Is there something better I should try? I keep reading if you take Calcium you have to take Vit. D and magnesium too. Well I know the Vit. D is vital to help absorb calcium but can anyone point me to the medical research that supports you have to take magnesium too? The Today show did a segment on Osteoperosis/calcium supplements the other day and they talked about Vit. D but didn't mention magnesium.

I've read a lot of stuff on needing the mag and I have to agree with it. My T-score is -1.4 and I've opted not to take the fosamax and just do the supps for a couple years and I do take higher then normal mag since I have chronically low levels of it when tested. (I still have serious malabsorption issues) There is stuff on it here on celiac.com https://www.celiac.com/st_prod.html?p_prodi...-36103509980.9e and they list several studies at the end.

BRUMI1968 Collaborator
BRUMI1968
Posted

Side effects of fosamax:

Stop taking FOSAMAX and call your doctor right away if you get any of these signs of possible serious problems:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
    5. trents
      - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748
    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.