Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Baby Born With Active Celiac?

Satori

Recommended Posts

Satori Newbie
Satori
Posted

I am totally kicking myself right now :( My 5 yr old was born with that nasty stinky OMG I'm gonna puke diarrhea and around 4 months of age was dx'd as failure to thrive and we quickly traced the problem to gluten. Around a year of age we found out Celiac was in the family and not only did she have it but so did I. I just had my 2nd child 2 weeks ago and she's got the same nasty diapers along with signs of malabsorption (looks like someone mixed her poop with 50% oil). I'm sitting here thinking, "but she hasn't been exposed to gluten so how can the disease be active in her? She must have food allergies to what I'm eating" I was just looking at clan thompsons list of what's no longer gluten-free and I'm really kicking myself! I've been gluten-free for 5 years and felt I knew what was safe. I found at least 3 products I eat are not gluten-free :( That would explain the occasional GI problems I have and how my newborn could have gotten exposed to gluten:( I feel bad for exposing her so early, I was hoping she would escape celiac:(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
I am totally kicking myself right now :( My 5 yr old was born with that nasty stinky OMG I'm gonna puke diarrhea and around 4 months of age was dx'd as failure to thrive and we quickly traced the problem to gluten. Around a year of age we found out Celiac was in the family and not only did she have it but so did I. I just had my 2nd child 2 weeks ago and she's got the same nasty diapers along with signs of malabsorption (looks like someone mixed her poop with 50% oil). I'm sitting here thinking, "but she hasn't been exposed to gluten so how can the disease be active in her? She must have food allergies to what I'm eating" I was just looking at clan thompsons list of what's no longer gluten-free and I'm really kicking myself! I've been gluten-free for 5 years and felt I knew what was safe. I found at least 3 products I eat are not gluten-free :( That would explain the occasional GI problems I have and how my newborn could have gotten exposed to gluten:( I feel bad for exposing her so early, I was hoping she would escape celiac:(

First congratulations on the new addition to your family. Please don't feel guilty about the gluten exposure. It wasn't like you stopped at Dunkin Donuts. You caught everything quickly and all will be fine. You are so lucky the cause of your childs failure to thrive was found at a young age. And with the new baby showing signs you have once again done a great job of catching it early. In the long run, IMHO it is not a bad thing that both kids need to be gluten-free. I think it is harder when there is both gluten and non gluten foods around.

TCA Contributor
TCA
Posted

Satori,

You and I are in close to the same shoes, except I wasn't smart enough to figure it out with the first child (finally diagnosed a 3). Finally figured it out with my daughter and she is doing much better nursing gluten free. I also discovered I have issues with gluten after going on the diet for her. Never would have guessed it otherwise.

Please don't beat yourself up. I make mistakes all the time and I kick myself constantly. I know how guilty you feel, but on the positive side, at least you KNOW she can't handle gluten. Otherwise, you might have always wondered. I'm so glad you figured it out, though.

Welcome to the board and I hope everyone feels better soon. Feel free to PM me if you need to VENT!!!!!

KayJay Enthusiast
KayJay
Posted

Aww don't feel bad it isn't your fault. Out of curiosity what were you eating that had gluten in it? It took me 5 months to figure out that my ds was allergic to milk and soy.

Welcome to the board. :)

Satori Newbie
Satori
Posted
  • Author
Aww don't feel bad it isn't your fault. Out of curiosity what were you eating that had gluten in it? It took me 5 months to figure out that my ds was allergic to milk and soy.

Welcome to the board. :)

Mrs Butterwoths syrup, chocolate fudge frosting, McDonalds hash browns:( I thought it was just my body acting crazy after giving birth, guess it was the gluten..

KayJay Enthusiast
KayJay
Posted
Mrs Butterwoths syrup, chocolate fudge frosting, McDonalds hash browns:( I thought it was just my body acting crazy after giving birth, guess it was the gluten..

Thanks I am going to go and check what kind of surup we have. :blink: I hope you can all get better quickly now that you know :)

mmaccartney Explorer
mmaccartney
Posted

Don't feel bad! You did everything you could. There are so many things out of our control with this disease, particularly what will or won't activate celiac in our offspring.

I understand though. My children don't have active celiac, but did inherit the genes for it. Now it is just a matter of time...

But, if you still want good chocolate frosting, check this topic!

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest tracey and emma
Guest tracey and emma
Posted

All i can do is just repeat what the others have said. my daughter is almost 3 and we only came down with gluten as a possiblity 5mths ago. She has been failer to thrive all her life.

Well done to you all, i wish we had been so quick. so really don´t feel bad and making mistakes is so easy :)

take care

tracey

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,827
    • Most Online (within 30 mins)
      7,748
    Rebecca Hurst
    Newest Member
    Rebecca Hurst
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Nausea

      By Me,Sue · Posted

      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      @fatjacksonthecat I have been doing some digging about the topic of nicotine and celiac.  I came across many studies that showed that the nicotine patch helped many with long covid and chronic fatigue syndrome.  I have a son who was diagnosed with celiac and his symptoms are severe when he is glutened.  He shows a lot of neurological inflammation and suffered with fatigue, brain fog, depression, anxiety and insomnia. There have been studies revealing that nicotine smoke actually masking celiac symptoms.  I also read that microdosing with a nictoine patch prevents one from addiction.  We are currently trying this out and so far it has lifted the brain fog and helped with anxiety and mood.  One of the studies I have read showed that it's not so much the dose, but the length of time a person is on the patch that showed improvements.  Many showed significant improvement as early as week 3 and continued through week 12.  We are taking 3 day breaks in between to make sure we don't down regulate the nicotine receptors.   How have things been for you?  Are you still chewing nicotine gum?  Perhaps, try the patch?  And how long did it take to ease up on your symptoms when glutened?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.