Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Constipation

Moongirl

By Moongirl
in Coping with Celiac Disease

Recommended Posts

BRUMI1968 Collaborator
BRUMI1968
Posted

It probably depends on what you're eating. I read this great site once about IBS and it talked about the 3 components to ease of movement through the bowels: fiber, water, oil. If you are lacking in any of them, the whole system doesn't work properly.

Another site I looked at talked about the possibility that brain signals to the intestines might be different in IBS folks - like slower or something. I think the first half of my digestion is very fast (always hungry, etc.), but the second half is much slower.

Anyway, my C has improved with brown rice and fibrous veggies, but not gone away entirely. I think the activated charcoal is already helping with the bloating though.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 58
  • Created
  • Last Reply
bremac Apprentice
bremac
Posted
So i went to my Dr today.....he thought I might have appenedisitis!!! :o He was only taking precautions he sent me for a CT scan.....good news i dont have it!

kinda bad news im not sure whats causing the pain and nausea? its not so much a pain but that dull achy pressure....it could be related to the C that I have had recently....but even with that going away, i still have nausea..i dont get it!? :blink: i used to have this before dx, but not so much with the nausea....since i started the diet it totally went away, this is the first time in about 8 months ive felt it again!! so annoying!

The poor poor appendix. Mine's been suspected of foul play about 4 times (turned out to be kidney failure, pancreatitis, etc...*rolls eyes*) My roommate and I always joke that if I ever DO get appendicitis I won't believe it. ;-)

I get pain in my lower to upper right side too when I'm constipated. Not to be disgustingly graphic, but if I press down around there I can FEEL the poop. It's like it gets stuck there (that is the ascending colon so it has to travel up and then turn...) My GI doc thinks I also have some IBS. Taking Metamucil helps me for the C, and Equalactin helps with the D. People witih celiac disease are more prone to IBS. I also get bad tummy cramps and nausea sometimes, usually if I eat too much grainy stuff (gluten free granola did me in the last time:( )

Hope that info helped someone. :)

Moongirl Community Regular
Moongirl
Posted
  • Author
The poor poor appendix. Mine's been suspected of foul play about 4 times (turned out to be kidney failure, pancreatitis, etc...*rolls eyes*) My roommate and I always joke that if I ever DO get appendicitis I won't believe it. ;-)

I get pain in my lower to upper right side too when I'm constipated. Not to be disgustingly graphic, but if I press down around there I can FEEL the poop. It's like it gets stuck there (that is the ascending colon so it has to travel up and then turn...) My GI doc thinks I also have some IBS. Taking Metamucil helps me for the C, and Equalactin helps with the D. People witih celiac disease are more prone to IBS. I also get bad tummy cramps and nausea sometimes, usually if I eat too much grainy stuff (gluten free granola did me in the last time:( )

Hope that info helped someone. :)

Thanks for all your advice....I am convinced it is due to my C....cause everytime I do go....i almost feel a pressure being lifted off my abs...does that make sense?!? i am taking a citrucel tablet twice a day...and eating as much fiber as i can...right now the nausea went away still have a little side pressure but not too bad...well at least its not the appendix :rolleyes:

jenvan Collaborator
jenvan
Posted
There are a lot of replies on here so sorry if this is a duplicate but I too have had bad C since childhood.

To keep regular I need to take metamucil 3 times a day. I took the magnesium in the past and it did help but I had to take so much (2 capsules twice daily) that is sort of scared me. Senokot also helps if really bad.

I have been gluten-free for 1 1/2 months and CF for 2 weeks. Does anyone know if the C will clear up after a while - will the gut heal at some point and start moving again?

Mia

Mia-

I also always had C pre-gluten-free. I would say that it took a few months for me to improve, but as a rule I am pretty regular now. I do take psyllium on occasion when needed though--maybe a few times a month. I would expect you to definitely notice improvement in that area, however, 1 1/2 wks is not long. I also had to give up dairy b/c that causes C for me. Dairy induced C can affect me for a few weeks. So I would say based on the experiences of people here that you will notice improvement in the C, however, it may be a few more months before you really start noticing. And you may always have more of a tendency towards C, but a mere tendency is easily managed. Good for investigating the dairy--that's a big C culprit for many.

Mia H Explorer
Mia H
Posted
Mia-

I also always had C pre-gluten-free. I would say that it took a few months for me to improve, but as a rule I am pretty regular now. I do take psyllium on occasion when needed though--maybe a few times a month. I would expect you to definitely notice improvement in that area, however, 1 1/2 wks is not long. I also had to give up dairy b/c that causes C for me. Dairy induced C can affect me for a few weeks. So I would say based on the experiences of people here that you will notice improvement in the C, however, it may be a few more months before you really start noticing. And you may always have more of a tendency towards C, but a mere tendency is easily managed. Good for investigating the dairy--that's a big C culprit for many.

Thank you, that gives me hope. I have actually been off the gluten one and a half months (not weeks) and off casein (dairy) for 2 weeks. I think even now there is small improvement. I haven't had to do La Mas recently to get it out. :blink:

Mia

evie Rookie
evie
Posted

I get pain in my lower to upper right side too when I'm constipated. Not to be disgustingly graphic, but if I press down around there I can FEEL the poop. It's like it gets stuck there (that is the ascending colon so it has to travel up and then turn...) My GI doc thinks I also have some IBS. Taking Metamucil helps me for the C, and Equalactin helps with the D. People witih celiac disease are more prone to IBS. I also get bad tummy cramps and nausea sometimes, usually if I eat too much grainy stuff (gluten free granola did me in the last time:( )

Bremac; What is equilac? I had C most of my life but D started a year before I started gluten free eating. after getting over big D not too long ago I was back to C, bit looser right now & hoping is not going into a problem. Just thought if I knew what your remedy was it might come in handy sometime. Good luck to you in your search for better health like all the rest of us Celiac's. :lol: evie

jenvan Collaborator
jenvan
Posted
Thank you, that gives me hope. I have actually been off the gluten one and a half months (not weeks) and off casein (dairy) for 2 weeks. I think even now there is small improvement. I haven't had to do La Mas recently to get it out. :blink:

Mia

Oops--I knew it was months, but wrote weeks for some reason... Duh ! :) Definitely have hope about the improvement. Also, I recommend just plain natural psyllium husks too if you think the Metamucil isn't as effective. (Even though it contains psyllium I have noticed a difference).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lindalee Enthusiast
lindalee
Posted
So unlike most of you with celiac disease, i have to deal with C more so then D.

The C comes and goes, but Im at the end of my stick what to do when I do get it. I drink water (when I remember and have time) I eat a good amount of veggies...

Any other advise would be great, i hate getting that stuffed up feeling!!! :ph34r:

PS how long (typically) does C last? Or when do I have to worry about it....

Moongirl, I am trying to figure these catagories out myself. Dr. Nancy Appleton,PHD wrote a book, "Lick the Sugar Habit" She talks about how sugar causes a multitude of symptoms one being constipation and bloating. She said sugar upsets our body chemistry and suppresses our immune system, causes inflamation, upsets our mineral balance etc. A can of sport drink has about 54 grams in half the can, the amount of sugar in our products is unbelievable. Basically what she says and we all know is cutting sugar improves our health. She is doing a documentary called "Sweet Suicide" that she will let us know when it will air if we email her. Her web is www.nancyappleton.com. I love chocolate myself. She has a sugar counter and gum to help get off it. Epson Salt has magnesium in it and also is a relaxing bath. I find those help. Hope you get better. LindaLee :)

dwaters800 Rookie
dwaters800
Posted

The constipation was also my main problem. I can say that now my digestion is perfect! What I discovered is that although it is tempting to replace the wheat in your diet with all sorts of yummy gluten free bread, deserts, pasta, brownies, and cake, etc., these things are likely to cause problems because they are high glycemic and over processed. It is much healthier to concentrate on eating vegetables, fruits, nuts, diary, and protein and save the carby, grainy stuff for an occasional treat. Although I feel fantastically better off of wheat, my constipation did not truly go away until after I swore off all grains. Maybe you could try this for about a month and see if it helps. All the fiber and water would not touch my constipation. Dr. Joseph Mercola has written several excellent books explaining why all grains should be eliminated from the diet. Good luck!

Ginny

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.