Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bed Wetting


skipper30

Recommended Posts

skipper30 Enthusiast

Did any of your children have problems with bedwetting...long after being potty trained?? :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elonwy Enthusiast

I don't have kids, but I wet the bed until I was nine, and they could never figure out why, said it was "physchological". Fffffft.

Elonwy

manja Apprentice
Did any of your children have problems with bedwetting...long after being potty trained?? :blink:

Yes, my daughter Anna got diagnosed with gluten sensitivity on Monday.

I am sensitive to gluten too.

She is 2 and a half years old and was fully potty trained at 25 months.

Anna is wetting her bed for about 10 days now. She does not have a UTI.

We got it checked twice within the last 10 days.

They also did a negative test for diabetes.

My doctor thinks it is behavioral. I disagree.

She is off gluten since Monday, on Tuesday and Wednesday she did not pee in her bed during nap time. She also has not had an accident at the playground. She still wetts at night though.

skipper30 Enthusiast

Here is my thinking on this...He is 6...has been potty trained since he was 4. Hardly any accidents after that time. Now all of the sudden he had started wetting the bed at night-easily 5 out of the last 7. He isnot our dx'd kid but we have been thinking of things that have happened in past and wondered if it might be in fact celiac. As a toddler, he would get so constipated that he would also throw-up when he had a bm. Then about 2 years ago he started up with these tics. They come and go. They have returned with a vengance and he complains off and on of his tummy hurting, he has lots of anxiety also....We talked at length with him tonight and he agreed to go gluten-free like younger brother for a while and see if things don't get better.

Then boy #3 has broken out with what I THINK is a very similar "rash"(lost's of little bumps) all over the right side of his tummy -that look a lot like what out dx'ed son get when he has been glutened.

I guess what I am wanting to know is do I sound like a fruit loop and wigging out over nothing?? I don't want to assume that they all have celiac everytime something new or odd comes up. :unsure:

2kids4me Contributor

yes! my son was 10 when he was diagnosed with celiac, he had been a chronic bedwetter and the family doc said "oh he'll grow out of it, its common in boys".

Well lo and behold, within 2 months of the diagnosis and eating gluten-free, he was dry every night!! We were all thrilled as there is nothing worse than waking up cold and wet - esp when you are 10.

I then had the opportunity to discuss it with a camp co-ordinator (for a celiac camp) - she said - that it is because of the damaged gut, and the loose molecules (amine and sulfer) that get into the blood stream relaxes the bladder.

Bedwetting has been linked to food allergies too.

The site I will include is one about autism and the high number of autistic children with gluten/casein intolerance (or celiac) and how low enzyme levels can cause behavioral problems. It is of interest because with my son - gluten-free diet stopped the bedwetting and the gluten-free diet dramatically improved my daughter's school performance and social behavior. The information from articles on celiac and autism helped me understand why this occurred.

Open Original Shared Link

skipper30 Enthusiast

Thanks..I will check that site out!!

I REALLY think that there is a connection here!

schuyler Apprentice

That's really interesting; I never thought about there being a connection between celiac and bedwetting. I am going to pass this info along to my cousin because her 2 oldest sons (ages 4 and 3) have been potty trained during the day since they were 18 months old, but they have to wear diapers to bed because they have so many accidents. This is something else to add to the boys' long list of symptoms.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



prinsessa Contributor

I dont' know about bed wetting, but when I eat something with gluten I have to pee almost every hour. I don't know why. It might be my body trying to rid itself of toxins. I could see kids having the same problem. I had to get up sometimes in the middle of the night to use the bathroom.

  • 1 year later...
RIMom Newbie

we are going to do the enterolab genetic test on our negative blood test daughter for that exact reason. We just want to know. We are going to do it privately (I know it's expensive), so it won't go on her insurance record, or medical record. They give discounts for family members. That way we will know if her weird things are just weird things, or if it's actually possibly the celiac raising its head finally.

Good luck

RIMom Newbie

sometimes it's just bedwetting though. My 5 yr old daughter has been gluten free/symptom free for 9 months now and still wets the bed. We wake her between 10 and 11 when we go to bed and have her pee, it doesn't matter, she still wakes up wet. she is a deep sleeper. We are working on it, but she just may not be ready.

Merika Contributor

Ds will have pee accidents within hours of ingesting soy, which he is also allergic to. it's the first symptom of many including behavior after ingesting the stuff. he's been potty trained for 4 years now and it can still happen.

merika

RIMom Newbie

interesting, she eats very little soy and never has accidents during the day. She is wet every night and always has been. (2 dry nights in her life, not in same week).

gfpaperdoll Rookie

I think bed wetting is associated with dairy - take out the dairy & I think it will go away.

there has been papers published on this - or so it seems I remember from an old brain talk post, or it might have been just some moms that figured it out...

goldyjlox Contributor

My daughter is 3 1/2 and potty trained for about a year but she still wears a pull up to bed and the last couple of months she has been peeing in her pants ,all the time. She and her 12 month old brother have had bloodtests a week and a half ago so we are waitng for the resuls. She is the one that I a more concerned about.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    5. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,817
    • Most Online (within 30 mins)
      7,748

    sleuth
    Newest Member
    sleuth
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.