Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How To Recognize If Child Has Been Glutened?


Tori's Dad

Recommended Posts

Tori's Dad Apprentice

Our daughter was diagnosed May 22 so we are very new to this. She has done quite well on the gluten-free diet. Within a week she was like a new child with tons of energy and was eating us out of house and home!

My question is, how obvious will it be if she gets some gluten? The last day and a half she has had a low energy level and been fussy/pouty like she was before the diagnosis. She said her tummy hurt a little this morning but it was not severe and only lasted about 30 minutes. She has had no D yet either. Do you think she got some gluten?

We can't identify any gluten that she has eaten so we are not sure if it's just a bad day, or if she had some gluten.

Is the reaction immediate or delayed?

What are the typical signals?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

Well your child's reactions are just that - they are unique to the individual. What you noticed is most likely her reaction to that very amount of gluten. She said her tummy hurt and that is about all you can really go on when you are the parent watching.

Try and be prepared for the worst case scenario, I try and carry a change of clothes and sickness bags in the car. My son who wasn't showing any symptom of Celiac or gluten intolerance now vomits after so many hours of accidentally getting gluten.

L.

celiacgirls Apprentice

I am fairly new to this also, but I would assume she had something with gluten. I am also gluten-free so it is making me more aware of how little gluten is needed to cause a reaction. When it was just my daughter who was gluten-free, I never really thought about trace amounts or cc.

One of my daughter's tummy hurts when she eats gluten. Then she is overly anxious for a few days. My other daughter gets very tired right away and irritable and foggy for several days after. My stomach kind of "twitches" when I accidently eat something with gluten and then I am foggy and sometimes nauseous the next day.

Guhlia Rising Star

You may want to check to ensure that all her personal care products are gluten free. Also, you didn't mention her age, but here are a few suggestions if she's younger. Has she played with Play-Doh (it's made w/ flour) or any art supply that could contain gluten? Could she have mistaken something glutenous for one of her gluten free things? She may just be having a down spell. When I was into the diet for about two months I got very sick and depressed. My doctors said it was withdrawal from gluten. Could that be the case since she's so new to this? Could she have a stomach bug?

Tori's Dad Apprentice

She is 5 and this afternoon she is back to her old self I would say. Her sleep routine has been messed up so maybe it was that.

She is at an art camp this week but my wife spent some time with the teachers and they changed away from using a wheat paste (not sure for what project) to a gluten free one. Are paints a problem?

Anyway, I am sure this is the first of many little spells we will have that either were not gluten or were gluten from a source we will never figure out. Thanks for the input!

Guhlia Rising Star

I believe there was a topic a while ago that said that paints MAY contain gluten, but I don't remember exactly.

skipper30 Enthusiast

Some paints and finger paints do contain gluten...I'd ask the teachers for the brands and double check for safety.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,032
    • Most Online (within 30 mins)
      7,748

    CE1963
    Newest Member
    CE1963
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.