Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Changing Symptoms


cgilsing

Recommended Posts

cgilsing Enthusiast

So I know that celiac disease can be "triggered" by a pregnancy/illness/surgery/etc., but if you already have celiac disease can your symptoms change after any of these events? I'm not reallly sure, but I'm starting to think maybe that has happened to me. When I am glutened my main symptoms are usually C, a lot of cramping, and bloating, a little DH but not much, sleep disterbances and depression. I just had a baby though and I've had a few strange things happen. It's been a while since I was glutened last, because I was very carefull during my pregnancy. When I was in the hospital though I had a lot on my mind and didn't ask about the gluten statis of any of the medication the were giving me. After I got home I was worried about being glutened, but ended up having D for 2 weeks, and just chalked it up to my body being stressed since when I'm glutened I normally get C. Then a few nights ago we went out to eat and I'm 90% sure I was glutened. The chef assured me it was fine, but my fish had a very suspicious sauce on it. The next day I once again had D, this time accompanied by an ichy rash from head to toe. I'm starting to wonder if this is a gluten reaction??? :unsure: It's nothing like what I usually have, but pregnancy does change your body. I kindof hope that this is the reaction I'm going to have from now on because at least it's not a painful as what I usually have! Has anyone else had their symptoms change after a pregnancy/illness/surgery or know if its possible?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BRUMI1968 Collaborator

This is not an answer to your question...but...when I was pregnant several years ago, the hair on the back of my head became way more curly. It still is, even though I neither had the baby (miscarriage) nor am pregnant. I also can no longer eat right before car trips, or be hungry on car trips (a bit of a trap, there) or I'll get nasueus, which I never did before.

Pregnancy is nuts! HOpefully, though, someone else will be able to actually answer your question. Good luck!

nettiebeads Apprentice

My symptoms have changed over the years; at least the physcial ones. I used to get D - you know the special kind of D only celiacs have. But for the past 4 years or so it's been the C - severe enough to have to use MOM at times. But Citrucel is very effective for it. And I've found that bananas, rice and cheese really bind me up when before they were never a problem. The other symptoms - brain fog, fatigue and such are just the same. You do experience changes because of child birth and also because of age.

Annette

cgilsing Enthusiast

Thanks for your responses! I'm still not sure what this is all about....If it is gluten it's not as painful as my usual response, but this rash is really itchy!! :( so I guess it's an even trade. All kinds of weird things can happen while your pregnant, so I had wondered how it would affect celiac disease. I have an uncle that has to take cortizone shots for his DH (although he won't stick to a gluten-free diet, so who knows if he would have to take them if he did), I hope I don't end up with that :unsure:

wozzy Apprentice

My symptoms have gotten worse over time...

If you *really* wanted to see if gluten was causing your symptoms, you could intentionally eat it...but you probably don't want to do that.

queenofhearts Explorer
Thanks for your responses! I'm still not sure what this is all about....If it is gluten it's not as painful as my usual response, but this rash is really itchy!! :( so I guess it's an even trade. All kinds of weird things can happen while your pregnant, so I had wondered how it would affect celiac disease. I have an uncle that has to take cortizone shots for his DH (although he won't stick to a gluten-free diet, so who knows if he would have to take them if he did), I hope I don't end up with that :unsure:

I had no idea that I was Celiac when I was pregnant, but I did have severe hives just after my boys were born, which were never explained. Now that I look back, I wonder if it was a gluten-related thing... could've been just stress or wacky hormones too I guess... the ironic part is that the only treatment I was allowed (due to breastfeeding) was oatmeal baths!

My hair also went curly then & never straightened out. Go figure!

Leah

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    2. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    4. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

    5. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,139
    • Most Online (within 30 mins)
      7,748

    kathleen apodaca
    Newest Member
    kathleen apodaca
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.