Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Advice


chrisepp3

Recommended Posts

chrisepp3 Newbie

Hi Everyone..I am new to this site and was diagnosed with celiac disease (the worst case my gastroenterologist has ever seen) in November 2003. Have been gluten free since January 2004 and am not sure what I am doing wrong. I always had the constipation problem, I eat a lot of beans and vegetables and nothing seems to work. The problem has actually gotten worse since being gluten-free. I have tried laxatives and stool softners and they don't work either. I had a colonoscopy the same time as the endoscopy (which determined the celiac disease) and the colonoscopy was normal. Anybody else out there with this problem. Also severe lower back pain the last three weeks. HELP! Thanks, Christine


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

You might try going on a low residue diet for a couple of weeks to give your intestines a break. Google the term for more advice, but the basic idea is that you eat little or NO fiber (or complex carbs) so that your body is absorbing ALL of what you eat, and not having to clear out the waste that can't be digested. I don't suggest this for a long term solution AT ALL (though there are a handful of medical conditions where it's warranted), and probably wouldn't do it more than two weeks AT MOST, but it helped me.

I would also highly encourage you to talk to your doctor about this further incase there is a physiologic problem that needs to be addressed.

jasa Newbie

Hey there,

I know the problem - have been living with it for way too long... Over the years I've found a few specific foods that I can eat that basically manage to, er, clear the system out after its been blocked up for a few days. Certain types of yogurt are great - I find Onken in particular works like a treat. If I can't get my hands on that, then cranberry juice does the trick. Another thing, drink loads of water. And someone on this board gave me a great tip a few months back that is useful: if you are constipated, try massaging your 'lower left quadrant' I think they referred to it as. Basically I can feel that my left side is solid and my right side isn't if I massage hard enough. I find that a good twenty minutes or so of massaging at night and in the morning stuff seems to be sorting itself out.

Hope some of the above helps you out - when you've been on the diet longer I guess you'll strike lucky as I have and find certain foods that seem to work for you. Hang on in there...

Take care,

Jasa

plantime Contributor

I have to massage all of my stomach, but it does help me. I start at the groin on the right side, massage up to the ribs, across, then down the left. I keep repeating for 15-20 minutes, every night. When I'm really constipated, I feel the blockage, and it hurts. If you take antihistamines for allergies, it could very well be the cause, or at least a contributor.

kvogt Rookie

I've found that dried apricots can be very moving. Try five a day.

kalo Rookie

I've had my problems too and forgot about masaging the stomache. My massage therapist showed me that. Is there something else like eggs maybe that's causing it? Hugs, Carol B (who just got her test results from enterolabs. Positive for gluten sensitivity, milk casein allergy and I have the gene)

burdee Enthusiast

Christine: Constipation was one of my main celiac symptoms (besides pain, bloating and gas), so I've dealt with that one over the years. Are you taking calcium or iron supplements (which also influenced my constipation)? I started taking magnesium supplements for regularity several years ago. That mineral helps with muscle contractions. In Europe doctors often recommend magnesium and Vitamin C for constipation. If you're getting plenty of vegetable/fruit fiber and liquid, you might just need magnesium to help the intestinal muscle contractions and absorb more water into the stool. I second the suggestion about drinking lots (2-4 liters per day) of water. There are also a few great gluten-free high fiber cereals which helped me. Ener-G Foods Rice Bran cereal (19 grams of soluable fiber per serving) can be cooked as a hot cereal. I add a little Quinoa flakes, which makes the mixture look/feel like cooked oatmeal. Also Nu-World Amaranth makes a great cold cereal from Amaranth which is low carb, high fiber (9-10 grams of fiber per serving) and low calorie. It looks like Cheerios and comes in peach, original and strawberry flavors. I have also successfully used dried plums (OK prunes), but who hasn't?? ;) I can empathize with your struggle. So many celiacs have diarrhea as their main symptom, so gluten-free breads and cereals are SO low in fiber. I've really searched for higher fiber cereals and tried to increase my fiber consumption with cereals, fruits, vegies and water. Good Luck! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



OLIVES4 Newbie

Hi everyone! I am new to this board (in terms of posting), been checking out the site over the past few months and finally joined in!

I am a Licensed Massage Therapist and when I read this post I wanted to make sure that anyone who applies self abdominal massage is doing it in the correct direction as Dessa describes - clockwise, as this is the normal flow of your intestines.

Going in a counter clockwise direction can only move the blockage backwards, defeating the purpose!

kalo Rookie

I also wanted to mention that aloe vera juice is good for constipation as well as coconut. Both of those are great in smoothies. Hugs, Carol B (thanks for the reminder of massage direction)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      1

      New issue

    2. - knitty kitty replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Blood Test for Celiac wheat type matters?

    3. - trents replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

    4. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

    5. - Caligirl57 replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,084
    • Most Online (within 30 mins)
      7,748

    BlueIcyRose
    Newest Member
    BlueIcyRose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jmartes71, Sorry you've been feeling so poorly.   Are you taking any medication to treat the SIBO?   Are you taking any Benfotiamine?  Benfotiamine will help get control of the SIBO.  Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks?  Carbon Monoxide poisoning can cause the same symptoms as the flu and glutening.  Doctors have to check venous blood (not arterial) for carbon monoxide.  Are other inhabitants sick, or just you?  Do they leave the house and get fresh air which relieves their symptoms?  
    • knitty kitty
      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States.   In European countries, different cooking methods and longer  fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat.  Gluten content can vary according to where the wheat was grown, growing conditions, when harvested, and local preference, so a blend of both hard and soft wheat is used to make a uniform product.   I moved around quite a bit as a child in a military family.  I had different reactions to gluten in different areas of the country every time we moved.  I believe some wheat breeds and blends are able to provoke a worse immune response than others.   Since European soft wheat doesn't contain as much gluten as American wheat, you may try increasing your intake of your soft wheat products.  A minimum of ten grams of gluten is required to get a sufficient immunological response so that the anti-gluten antibodies leave the intestines and enter the bloodstream where they can be measured by the tTg IgA test.  Your whole wheat bread may only have a gram of gluten per slice, so be prepared...  
    • trents
      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound is real. If I were you I would aim at cutting back in weekly increments for two weeks at a time rather than daily increments. So, for instance, if you have been taking 2x20mg per day, the first week cut that down to 2x20mg for six days and 1x20 mg for the other day. Do that for two weeks and then cut down to 2x20mg for five days and 1x20 for two days. On the third week, go 20x2 for four days and 20x1 for 3 days. Give yourself a week to adjust for the reduced dosage rather than reducing it more each week. I hope this makes sense. 
    • knitty kitty
      Talk to your doctor about switching to an antihistamine, and supplementing essential vitamins and minerals.  Dietary changes (low carb/paleo) may be beneficial for you.  Have you talked to a dietician or nutritionist about a nutrient dense gluten free diet?   It's harder to get all the vitamins needed from a gluten free diet.  Gluten containing products are required to be enriched or fortified with vitamins and minerals lost in processing.  Gluten free facsimile processed foods are not required to be enriched nor fortified.  So we have to buy our own vitamin supplements.   Glad to be of help.  Keep us posted on your progress!
    • Caligirl57
      I’m pretty sure they do. I have been on myfortic, tacrolimus since 2021 for my liver transplant and added prednisone after kidney transplant.  I’m going to try to cut back omeprazole to 20 mg a day and then after a week try to stop altogether. Thank you for your help.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.