Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):
    GliadinX

    Celiac.com Sponsor (A1-M):
    GliadinX

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Support Groups Needed!

mom of 5 celiac

Recommended Posts

Guest jhmom
Guest jhmom
Posted

Thank you both for the information. I think I may just plan on attending both meetings since they do not conflict with each other, hey I need all the support I can get right now..... :rolleyes:

Karen, I hope you are feeling better and continue to do so :D and if you don't mind go ahead and send me the directions to the GW meeting too. Thank you!

  • 2 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Tierra Farm
Little Northern Bakehouse

Celiac.com Sponsor (A8-M):
Little Northern Bakehouse

mom of 5 celiac Rookie
mom of 5 celiac
Posted
  • Author

Stacie and Ann,

The support meeting at Gwinnett Medical Center is this Sat. March 13th in the Educational department.

As far as I can tell the meeting starts at 10:00. It said if there is a pot luck it will start at 11:00.

But I don't see anywhere that is says pot luck. So I am going at 10:00. I hope you tow can make it.

I know it is a long way but I will try to give you directions. I tried to email the person for Cobb and they never emailed me back.

Take 75 South to 85 north. Then look for 316 toward lawrenceville and take it to the

exit that says Hwy 120. (There will probably be those blue hospital signs too). When you get off the ramp take a left

and you will see the entrance for the hospital (Gwinnett Medical Center) on your right. As soon as you go in the front door

there will be a foyer and I think the education part of the building is to the right. Not to sure but I am sure there will be

someone there to tell us. They do charge you for parking. Hope to see you guys there. Karen :D

Guest jhmom
Guest jhmom
Posted

Karen:

Thank you for the directions. I think I have someones email address to contact for the meeting I will ask if it's a pot luck or not and will let you guys know.

Look forward to meeting you guys too!!! :D

Guest jhmom
Guest jhmom
Posted

I received this email from the GSSG MEETING REMINDER. I do not know if I will make this meeting or not, I may wait until the one in May which I think will be the pot luck. I sent them my mailing address so that they can send me the information, I will let you know.

  Quote
Gluten Sensitive Support Group Meeting

Saturday, March 13, 2004

2:30 - 4:30 p.m.

W Hotel at Perimeter Center

111 Perimeter Center West

"Celiac Explosion:  Changes in Attitudes

Across the Country"

Speaker:  Cynthia Kupper, RD, celiac disease

Executive Director

Gluten Intolerance Group, Seattle, WA

NOTE:  WHEN YOU REACH THE HOTEL, LOOK FOR DIRECTIONS

TO THE ATLANTA WOMEN'S MEDICAL ALLIANCE MEETING.

mom of 5 celiac Rookie
mom of 5 celiac
Posted
  • Author

Stacie,

I am confused about the meetings. The reminder you just sent me was it for the one that is suppose to be at Gwinnett Medical Center or is this a different one but on the smae day? I website said they were held at the Medical Center. Let me know. I will probably go so I will see you at the May meeting. Thanks. Karen

Guest jhmom
Guest jhmom
Posted

Karen:

Yes they are usually held at the Gwinnett Medical Center but they have an opportunity to hear Cynthia Kupper, RD, celiac disease speak. The website has not been updated recently but the lady I spoke with assured me they were working on it and in the mean time if you email her and give her your mailing address they will send you the info on the meetings and pot luck. Her email is jmfierjr@aol.com (thanks Kim for posting it)

Did anyone ever get the info on the Cobb meetings?

mom of 5 celiac Rookie
mom of 5 celiac
Posted
  • Author

Hey Stacie,

Thanks and I will email her. Not sure if I will make that one yet. I will let you know if

I go and tell you all about it. My husband has a swim team meeting at the same time

and so I don't think he can make it. Karen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Holidaily Brewing Co.
GliadinX

Celiac.com Sponsor (A8-M):
Little Northern Bakehouse

Kim Explorer
Kim
Posted

Hi everyone. Sorry I wasn't on for a while. The Gwinnett meeting is NOT is Gwinnett in March -- just this one time.

The Cobb Meeting will be April 24, and I'll post the information as soon as I have it.

Hope to meet you all on Saturday.

Kim.

mom of 5 celiac Rookie
mom of 5 celiac
Posted
  • Author

Kim and Stacie,

I didn't get to go on Sat. I wasn't sure where it was being held and I don't know that part of town and I didn't want to get lost. So, I may come to the Cobb one in April.

Please send the information to me Kim. Did you go on Sat? IF so, how was it? I have never been to a group. Talk to you all later. Karen

mamarara Newbie
mamarara
Posted

Hi I was just wondering if anyone out there knows of any support groups in the Boston MA area.

Guest jhmom
Guest jhmom
Posted

Hi, I responded to your other post and included the support group link there.... but here it is again... :D

Click Here

Kim Explorer
Kim
Posted

Hi Karen. Sorry you couldn't make it. I was there and it was good. Dr. Rudert is speaking on Thursday March 25 from 12:30 to 1:30 pm in the Richard H. Rich Auditorium in the 77 Building of Piedmont Hospital. The lecture is open to the public and the topic is: The Medical and Nutritional Implications of Celiac Disease.

I'm not sure if I'll be able to make that one, but thought I'd pass along the information.

the April 24 meeting of the Cobb Group will be at PF Chang's near Perimeter Mall -- I'll get the time and address later and post when I have it.

Kim.

mom of 5 celiac Rookie
mom of 5 celiac
Posted
  • Author

Kim,

Thanks for the information. I am going to try to make it. I really want to hear her

speak. Let me know about the Cobb meeting. Karen

  • 1 month later...
chawk310 Apprentice
chawk310
Posted

A new adult support group was started in Jan of this year. It is held in Cobb Co at a church on Johnson Ferry Road in Marietta. The contact person is Markee Jones at markee@mindspring.com.

On another note, a children's support group is being started. An informal get together is planned at Wills Park in Alpharetta, GA on Sunday, May 23, from 2 - 4. I am very excited about this because I have a 4 y/o son who was diagnosed 12/03. I can't wait for him to meet other kids in the same situation.

Hope all of this information helps.

  • 1 year later...
Kailynsmom Apprentice
Kailynsmom
Posted

Hi My name is Melissa and my daughter, 2 years, is currently undergoing the testing for celiac. I am so confused, know very little and am not sure where to start. Anyone out there have any advice?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):
    Food for Life


  • Member Statistics

    • Total Members
      130,231
    • Most Online (within 30 mins)
      7,748
    NAA
    Newest Member
    NAA
    Joined
  • Celiac.com Sponsor (A20):
    GliadinX

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):
    GliadinX


  • Celiac.com Sponsor (A21):
    Food for Life


  • Upcoming Events

  • Posts

    • Betsy Crum
      Chest pain from celiac

      By Betsy Crum · Posted

      Thank you for your response! I have considered starting a food diary in the past, I suppose this is as good a time as any to start.  
    • Betsy Crum
      Chest pain from celiac

      By Betsy Crum · Posted

      I don't have health insurance so I have never had any testing done. I always thought if I stay away from gluten Ill be fine but I suppose that isn't enough anymore. I will look into getting an allergy test. Thank you for your input! 
    • trents
      Celiac Brand for Indian grocery

      By trents · Posted

      I remember reading an article summarizing testing done by Gluten Free Watchdog on several brands of dried lentils. They were all heavily cross contaminated with wheat and the commentary was to the effect that dried lentils in general were the most heavily cross contaminated product category in their testing data base. So, I would definitely not use any dried lentil product that was not tested to be Gluten Free (<20ppm of gluten) or Certified Gluten Free (<10ppm of gluten).
    • Scott Adams
      Celiac Brand for Indian grocery

      By Scott Adams · Posted

      While spices, lentils, beans and chickpeas are naturally gluten-free, the main concern with any brand is cross-contamination during processing and packaging. Since Suraj doesn't appear to certify their products as gluten-free or use dedicated gluten-free facilities, there is some risk of trace gluten exposure, especially with their corn flour which could be milled on shared equipment with gluten-containing grains. For absolute safety, I'd recommend looking for brands that are certified gluten-free by organizations like GFCO - good options include McCormick for spices, TruRoots or Bob's Red Mill for lentils and beans, and Anthony's for corn flour. That said, if you need to use Suraj products, be...
    • Scott Adams
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By Scott Adams · Posted

      Dapsone, commonly prescribed for dermatitis herpetiformis (the itchy gluten-related skin condition), comes with several potential side effects that patients should monitor. The most frequent issues include blood-related problems like hemolytic anemia (especially in those with G6PD deficiency, which is more common in certain ethnic groups) and methemoglobinemia that can cause fatigue, shortness of breath, or bluish skin. Many patients also experience headaches, nausea, dizziness, or skin sensitivity to sunlight. While these effects are often manageable, there are rare but serious risks including dapsone hypersensitivity syndrome (with fever, rash and organ inflammation), liver...
×
×
  • Create New...