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Can Anyone Help?

kaemon85

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kaemon85 Newbie
kaemon85
Posted
:( Hello- My name is Andrew. I have been very ill for the past 2 months. I went to the doctor and had them do many different tests and everything came back negative. I went for an ultrasound for my gullbladder and they say it is fine. So I am wondering how do you know if you are allergic to gluten. I have been suffering from vomiting, diarrhea, stomach pain, headaches, fatigue, sore joints. I am wondering if this could be my problem? And how were you diagnosed? Any info will help. Do you know any BIG words to look for while grocery shopping?
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jkmunchkin Rising Star
jkmunchkin
Posted

This definately sounds like you could have celiac. Have your doctor do the blood tests for this. You don't want to start eating gluten free until after you've had the blood tests and endoscopy though because it will alter the results. You need to have wheat & gluten in your system in order for the test to be positive.

I had all of the same symptoms (except sore joints), except mine were for about 10 years (vomiting was only for the last few months before diagnosis). But I was pretty much nauseasus for 10 yrs. I kinda just thought all of this was normal and didn't do much to seek medical treatment.

It wasn't until my 1st cousin was diagnosed with celiac after sudden severe weight loss (a common symptom of celiac - although I never had that, but then again I've always been underweight) and the doctor told her that it is a hereditary disease and her family members should get tested. As soon as my dad told me about this (her dad is my uncle - my dad's brother), I knew that explained the last 10 years of my life. Ofcourse all the tests confirmed that I have celiac and here I am today 1 yr. gluten free and feeling great.

Keep us updated on results and how you are feeling.

Guest nini
Guest nini
Posted
:( Hello- My name is Andrew. I have been very ill for the past 2 months. I went to the doctor and had them do many different tests and everything came back negative. I went for an ultrasound for my gullbladder and they say it is fine. So I am wondering how do you know if you are allergic to gluten. I have been suffering from vomiting, diarrhea, stomach pain, headaches, fatigue, sore joints. I am wondering if this could be my problem? And how were you diagnosed? Any info will help. Do you know any BIG words to look for while grocery shopping?

just because your test results were negative it doesn't mean that you don't have it... or at the very least you are gluten intolerant...

click on the link at the bottom of my signature and go to my webpage and download the newbie survival kit, it will help you with lists of safe products to eat...

try the diet, give it a good six months before you decide if it's helping you or not... if you notice ANY improvement in your symptoms on the gluten-free diet, then you are at the least, intolerant and need to avoid it. You may also have other intolerances like dairy, or soy or others... along with gluten or instead of it... good luck, stick around the board and feel free to ask questions. And there are no stupid questions.

tiffjake Enthusiast
tiffjake
Posted
just because your test results were negative it doesn't mean that you don't have it... or at the very least you are gluten intolerant...

click on the link at the bottom of my signature and go to my webpage and download the newbie survival kit, it will help you with lists of safe products to eat...

try the diet, give it a good six months before you decide if it's helping you or not... if you notice ANY improvement in your symptoms on the gluten-free diet, then you are at the least, intolerant and need to avoid it. You may also have other intolerances like dairy, or soy or others... along with gluten or instead of it... good luck, stick around the board and feel free to ask questions. And there are no stupid questions.

Go to the doc FIRST and have the Celiac Blood Panel done. THEN you go gluten-free, following nini's page and newbie kit. But you will want to do the blood work first! That is really important! (Because, if the diet works for you, and you need to get something else done later, and the doc wants "proof" of a gluten problem, they will ask you to eat gluten again, and then have the test. It will mess you all up if you try to eat it again after cutting it out, IF gluten IS the problem).

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      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
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      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
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      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
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