Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie Seeks An Answer

Guest LJannise

By Guest LJannise
in Celiac Disease Pre-Diagnosis, Testing & Symptoms

Recommended Posts

Guest LJannise
Guest LJannise
Posted

Hi. Is it a fact to say that some ppl can just have a sensetivity? I read so many serious issues of celiac & it's def not what I'm going through. When I eat wheat, it's as if I've swallowed poison ivy. A huge itch & tickle down my throat, plus I have a specific rash on my inner thighs that inflame for about 2 weeks (per stopping the wheat consumption) I've had this rash since a child. I've always been very sensetive to gain weight & always though the rash was from being so heavy growing up.

This past year, I've made a connection. Inflamation after eating wheat PLUS the older I get, the more the rash also appears on my inner arms.

I just need to be pointed in the right direction, but I am against the government doctors. I am interested in using a more natural way to help this.

I've noticed after omitting gluten for awhile & then eating it, I couldnt even walk straight, my speech was slurred, a huge mental fog, etc. The very next day, my heat & pain from head to toe started.

Does any of this sound familiar to anyone??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

I haven't had any symptoms with my intolerance but it sounds like you at least have gluten intolerance which is still gluten free for life.

Welcome to the board. :D

Mango04 Enthusiast
Mango04
Posted

It sounds like you have either a gluten intolerance or a wheat allergy, or maybe both. You can have gluten intolerance that isn't celiac disease, however, gluten intolerance would still mean gluten-free for life.

eKatherine Apprentice
eKatherine
Posted
I just need to be pointed in the right direction, but I am against the government doctors. I am interested in using a more natural way to help this.

If you prefer to treat your own diseases using the most natural method available, you've come to the right place. I am self-diagnosed - no doctors involved. What could be more natural than changing your diet to eliminate the foods that bother you, replacing them with healthy, whole foods?

Guest LJannise
Guest LJannise
Posted
If you prefer to treat your own diseases using the most natural method available, you've come to the right place. I am self-diagnosed - no doctors involved. What could be more natural than changing your diet to eliminate the foods that bother you, replacing them with healthy, whole foods?

Absolutely nothing wrong with that! :D

Thank you for the welcome!!

I was just hoping to hear 1) I'm not crazy & 2) I'm not alone

I want to know that this stuff really does make sense. It's REAL, ya know? NOT my imagination.

I've had the inner thigh rash since about 10. I wasnt stunted in my growth, but my body wanted to OVERcompensate with food. I had an appetite that could not be tamed. I'm starting to look at this as one of those things where my body doubled the amount of food intake (or tripled, if you will) to make up for some loss?

No heavy diaareah (sp?) My problem has always been constipation.

I'm doing the renew life cleanses. The fiber is a Godsend. It's been pretty amazing stuff. The more I cleanse, the more gluten free I can manage. Cold turkey is really rough when your colon is holding onto all those toxins, ya know??

I discovered Kinnikinikk bread (tapioca rice flour) Havent tried the others, but man that stuff s amazing.

What about white rice?? I've heard it's ok, but I had all the gluten symptoms listed above after eating it.

mommida Enthusiast
mommida
Posted

You're NOT crazy and you're not alone. You are lucky that you have made the connection before you went through any debilatating gi symptoms. You chances for getting any accurate testing ends when you start the gluten free diet. You may now notice your body will react more if you accidentally ingest gluten, and you will probably never want to do a gluten challenge for any further testing.

L.

eKatherine Apprentice
eKatherine
Posted

Just because you've got celiac doesn't mean you're NOT crazy. I sometimes doubt my own sanity.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest LJannise
Guest LJannise
Posted
Just because you've got celiac doesn't mean you're NOT crazy. I sometimes doubt my own sanity.

Are you saying it could be possible that I could be a celiac? I thought I would have to go through a lot of what others here are (the serious stuff) But I have noticed it was getting progressivly worse. My mother- she hardly eats & weighs 260 pounds, has fibro, etc. Myself included- I can eat the best lean cuisine meal & run for MILES< but I will still be considered obese & have so many ailments.

I was gluten/wheat free for 1 week straight. I lost 10 pounds just like that *snaps* I should have continued. It was the breakfast wth my husband that he wanted to go to together that threw me off. The pancakes did me in.

And... yes I noticed how rough it is once getting off the path. My Goodness, that was some rough stuff. I'm just so afraid of consuming something hidden. I know it's best not to eat something that I"m unsure of, that way there's nothing to worry about, but I cant help but feel so overwhelmed. I'll conquer it. Just gotta kick in that determination.

At the health food store I see so many ppl eating a gluten free diet. I just didnt know if any of MY symptoms made sense to anyone. Nothing else seems to affect it. I can eat a wheat/gluten free brownie at 20 grams of fat each & still drop a pound on the scale. My body seems to rejoice when I back off the stuff.

I'm 30 years old & hope it's not silly to say I'm ready to live the life I was meant to have. That week I spoke about above (when I was gluten/wheat free), I was actually considering it a new birthday! I was a whole new person!!

eKatherine Apprentice
eKatherine
Posted
Are you saying it could be possible that I could be a celiac?

Anybody could be a celiac. Considering that 1% of the population may have it, and only a small percentage of them are diagnosed, you probably know lots of celiacs.

Mango04 Enthusiast
Mango04
Posted

If your body doesn't like gluten, don't eat gluten! :D:D It sounds like the perfect solution for you. Not all celiacs are skinny. Many lose weight when their bodies start to work properly on the gluten-free diet.

Guest LJannise
Guest LJannise
Posted
If your body doesn't like gluten, don't eat gluten! :D:D It sounds like the perfect solution for you. Not all celiacs are skinny. Many lose weight when their bodies start to work properly on the gluten-free diet.

Wonderful comments, thank you :D

Yeah, I need to stop doubting myself & have more faith in my findings.

aikiducky Apprentice
aikiducky
Posted

I'm overweight as well, althought only slightly because ever since going gluten-free I've been slowly but steadily losing weight! You're not the only one!

Pauliina

Ursa Major Collaborator
Ursa Major
Posted

LJannise, you are saying that rice will give you the same kinds of symptoms as gluten. You may be intolerant to ALL grains, not just the ones with gluten. Check out the link on lectins in my signature, it may help figure it out.

You certainly don't sound crazy. I believe that you are definitely gluten intolerant, and probably have a wheat allergy as well. Because itching in your mouth and throat when eating indicates an allergy. I get those, it's called oral allergy syndrome.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also considered cod liver oil, although again, if it's processed in a facility that has gluten, especially on flour form, I worried to test it, even if they have protocols in place to mitigate cross-contamination with gluten.
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.