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What Post Diagnosis Tests Should Be Done Yearly?

sparkles

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sparkles Contributor
sparkles
Posted

Some place (not sure if it was here or not) but there was a list of tests that should be done yearly if you are a celiac just to make sure that everything is working right. If you know of any such list, please let me know. I have a regular MD (internist) and I am sure that I know more about celiac's disease than she does. Does anyone see another kind of doc? I also have diabetis. Just curious... Thanks.

  • 4 weeks later...
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au natural Newbie
au natural
Posted
Some place (not sure if it was here or not) but there was a list of tests that should be done yearly if you are a celiac just to make sure that everything is working right. If you know of any such list, please let me know. I have a regular MD (internist) and I am sure that I know more about celiac's disease than she does. Does anyone see another kind of doc? I also have diabetis. Just curious... Thanks.

I am not sure of a list of post diagnosis test, i imagine your doc would be wise enough to give you a thorough look over. I have been diagnosed with severe chronic idiopathic neutropenia. For this i see an oncologist. I am unable to maintain a healthy white count. It is not cancer related. I did have my thyroid removed a few years before my diagnosis - had a low thyroid all my life- it finally got to the point that it was choking me. They found cancer starting. I do have other food allergies though, egg whites, dairy, codfish and peanut. Id say ask for a full exam. It seems that alot of celiacs have at least one more thing wrong. lets hope that you dont have anything else. By the way my father was diabetic starting in his 50s. So I watch for it like a hawk. good luck

courtnxy Newbie
courtnxy
Posted

I think your antibodies are supposed to be tested every 6 months to a year, but I suppose it depends on how well-controlled you are.

Also, you could get checked for deficiencies in iron and vitamin D. I'm deficient in both of them! Plus, celiacs are supposedly also prone to vitamin A and K deficiencies.

One more thing: If your symptoms don't clear up after a year or two, you should talk to the gastro doctor about getting an EGD, where they can check out the lining of some of your intestine.

Courtney

flagbabyds Collaborator
flagbabyds
Posted

i get antibody testing and then just a CBC.

julie5914 Contributor
julie5914
Posted

I was wondering the same - I have my one year anniv. on the diet checkup on the 16th and am not sure what the point is. I have symptoms some still and would like to know for sure that I am healing, but I don't necessarily want an endoscopy. Last blood test was 6 months ago and was still pretty high even though I'm very strict. Sometimes they look at you like, "what are you here for," and I am thinking "aren't you supposed to know that?" I don't have any major complaints except some dwindling symptoms that I expect I may be stuck with - just want to make sure I'm on the right track - is that worth an expensive visit to the doc?

olalisa Contributor
olalisa
Posted

Check out this website.

Open Original Shared Link

The NIH seems like a pretty good source to me, and I printed this info and took it to my GP, who has ordered all the tests they recommended, including testing my blood for all the nutritional deficiencies. I go for the bone density on Monday.

Good luck!

chrissy Collaborator
chrissy
Posted

we run the Ttg test on our kids. our doc is willing to just call the test order in to the lab if we want so that we don't have to drive the long distance to his office.

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

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