Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Had Enough Of Feeling So Rubbish

covsooze

By covsooze
in Coping with Celiac Disease

Recommended Posts

covsooze Enthusiast
covsooze
Posted

sorry in advance that this will seem like I'm feeling very sorry for myself....I am!

Well, as of this week I've been gluten-free for 6 months. I 'celebrated' it by being glutened - my own stupid mistake as I didn't check the label :angry: This coicncided with me coming off my antidepressants. I was doing really well last week, but this week have been feeling totally exhausted and crying loads. then my monthly 'friend' came along and is really heavy and making me feel really blugh. Yesterday and today I've been so exhausted I can hardly move and am just crying loads.

Could the glutening have made things worse with the coming off my meds? I was feeling so much better and the psych said I could come off them - I was gradually cuting down as she said. And now I'm wondering if I'm doing the right thing.

I really want to feel well enough to try for another baby, but at the moment I'm struggling just to exist :(

And it's not as if I've even got anything to be sad about.

Thanks for listening if you've made it this far.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Ouch, getting glutened all by itself could make you feel that bad, but getting off your antidepressant at the same time sure wouldn't help, and neither would getting your period. What a combination! :blink:

Hang in there, I am sure it will get better within a few days!

taz sharratt Enthusiast
taz sharratt
Posted
sorry in advance that this will seem like I'm feeling very sorry for myself....I am!

Well, as of this week I've been gluten-free for 6 months. I 'celebrated' it by being glutened - my own stupid mistake as I didn't check the label :angry: This coicncided with me coming off my antidepressants. I was doing really well last week, but this week have been feeling totally exhausted and crying loads. then my monthly 'friend' came along and is really heavy and making me feel really blugh. Yesterday and today I've been so exhausted I can hardly move and am just crying loads.

Could the glutening have made things worse with the coming off my meds? I was feeling so much better and the psych said I could come off them - I was gradually cuting down as she said. And now I'm wondering if I'm doing the right thing.

I really want to feel well enough to try for another baby, but at the moment I'm struggling just to exist :(

And it's not as if I've even got anything to be sad about.

Thanks for listening if you've made it this far.

what a bummer, all 3 the antidepressants the period and the glutening can m,ake things 10 times worse, the antdepressants i dont know but the period and the glutening will pass and you will feel better soon. i cry a lot too when glutend and get angry with it and myself, dont be too hard on yourself your only human. best of luck and i hope you fell better quickly

nettiebeads Apprentice
nettiebeads
Posted

Glad to give you a listen and a cyber hug. What you're feeling now won't last forever. It's just getting through it that's so hard. I tried to get off of my antidepressent (zoloft) but I couldn't. Period. But I sure can relate to the adjustment part and of course the depression caused by glutening. Whenever it happens to me, I'm sure I'm the most horrible person in the world and can't understand why my husband could stand to live with me. But it passes. Just take it one day at a time, or even an afternoon or evening. Do something that always makes you feel better - baking, reading, watching comedies, anything. Think of it as recovering from an illness like the flu - I always take time to indulge myself then. You can get back to the daily grind of chores and such - they'll wait for you!

Take care and hope you're better soon.

Annette

queenofhearts Explorer
queenofhearts
Posted

Poor Suzie, that's really a triple-whammy! For me the PMS stuff is enough to send me to the depths. I tend to wake up in the middle of the night about 2 days before my period, completely convinced that everything I have ever done has been a horrible mistake & I've ruined the lives of everyone I know. The feeling is overwhelming & very convincing, & has absolutely nothing to do with what is actually going on in my life at the time-- I can be doing great the day before & then BOOM. Over the years I've learned enough to tell myself, "these are the hormones talking." But at the time, even when I say it, I don't believe it! Still, the experience of coming out of this state & surviving, month after month, has given my conscious mind just enough power to talk myself out of taking any action when I'm in this state. It's really rather scary though, how utterly awful I feel. I've been on antidepressants in the past, & they dulled the intensity of the feelings, but didn't eliminate them totally. Coming off of the meds was a bit of a rebound problem, but in my case it passed very quickly. Hope it does the same for you. Hang in there!

Leah

taz sharratt Enthusiast
taz sharratt
Posted
Poor Suzie, that's really a triple-whammy! For me the PMS stuff is enough to send me to the depths. I tend to wake up in the middle of the night about 2 days before my period, completely convinced that everything I have ever done has been a horrible mistake & I've ruined the lives of everyone I know. The feeling is overwhelming & very convincing, & has absolutely nothing to do with what is actually going on in my life at the time-- I can be doing great the day before & then BOOM. Over the years I've learned enough to tell myself, "these are the hormones talking." But at the time, even when I say it, I don't believe it! Still, the experience of coming out of this state & surviving, month after month, has given my conscious mind just enough power to talk myself out of taking any action when I'm in this state. It's really rather scary though, how utterly awful I feel. I've been on antidepressants in the past, & they dulled the intensity of the feelings, but didn't eliminate them totally. Coming off of the meds was a bit of a rebound problem, but in my case it passed very quickly. Hope it does the same for you. Hang in there!

Leah

queen of heatrs, i get the same pms symptoms as you, you go aroung in a daze the whole time you are on your period with disastrous thoughts about people and the things you have done, it can drive you crazy.

covsooze Enthusiast
covsooze
Posted
  • Author

thank you for your kind thoughts everyone. What would I do without you? :D

Luckily I don't have to go into work tomorrow. I've got the day off as it's DH's 40th :o His treat is a meal at a wonderful resteraunt that has a gluten free menu ;):D

On the subject of PMS, does anyone else get ridiculously hungry the day before their period? I always know when I'm about to start, as I could eat 2 horses (as opposed to the usual 1!). I get extremely irritable. I didn't used to be like that before being pregnant with DS/ onset of celiac disease.

Susie x

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jesscarmel Enthusiast
jesscarmel
Posted

Hi

If you dont mind me asking what anti depressant were you taking. most antidepressants especially the ssri's can give you withdrawl effects when you go off them that is often worse than the symptoms you had to begin with. this especially happens if you go of them quickly and dont titrate them down like lets you take 40 mg, then you go to 30, then 20 then 10 then 5 rather than going from 40 to 20 to nothing.

i have both professional and personal experience with this. when i tried to go off zoloft, i was sobbing all the time and felt horrible. if you google withdrawal and antidepressants there is alot of information on this.

i hope you feel better soon ! :)

Jess

covsooze Enthusiast
covsooze
Posted
  • Author

Thanks Jess. I've been taking escitolopram (sp?!). It took ages for me to find one that didn't give me horrendous side effects. Hopefully this past week has just been a combination of horrible things that will pass...it doesn't help that DS has decided to get up at 5.30am - sleep deprivation is the real killer for me.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,801
    • Most Online (within 30 mins)
      7,748
    johnyrad23
    Newest Member
    johnyrad23
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Anyone From South Africa

      By trents · Posted

      Welcome to the forum, @Izelle! Normally, the diagnosis of celiac disease involves two stages.  The first stage involves a simple blood test that looks for antibodies that are pretty specific to celiac disease. Celiac disease is an autoimmune disorder that attacks the lining of the small bowel which produces antibodies that can be detected in the blood with tests specifically designed for this purpose. There are a number of these tests that can be run. Some are more specific for celiac disease and thus more reliable than others. The two most common antibody tests ordered by physicians when diagnosing celiac disease are the "total IGA" and the "tTG-IGA" test. At least these two should always be ordered. Here is a an article outlining the subject matter of celiac antibody tests:  If the tTG-IGA levels are 10x normal then it is becoming common practice in some countries to grant a celiac diagnosis on the bloodwork alone. The second stage involves an endoscopy with biopsy of the small bowel lining to look for the damage to the small bowel lining typically caused by celiac disease's inflammatory process over time. This is usually done in response to one or more positives from the blood antibody testing and constitutes confirmation of the antibody testing to eliminate the possibility of false positives. 
    • Izelle
      Anyone From South Africa

      By Izelle · Posted

      Hi there, Please can you tell me exactly how this disease is diagnosed? I am also from South Africa Regards Izelle
    • Waterdance
      Diagnosed gluten allergy but not Celiac

      By Waterdance · Posted

      Thank you for saying that. That doctor diagnosed me with IBS with no follow-up so the relationship is already concluded. If I pursue diagnosis further I'll request someone else. 
    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      Hey everyone. Thanks again for your suggestions. I wanted to give an update and ask for some follow-up suggestions from you all.  So I did go through all of my food items and stopped eating things that were “gluten free” and switched over to the “certified gluten free” ones (the ones with the g symbol). I also stayed away from restaurants except once and there I ordered something raw vegan and gluten free hoping for the best. I also stayed away from oats and soy and dairy. I've also been increasing my vitamin B complex. I've been doing this for about 12 days and while I know that's not that long, I'm still getting sick. Sometimes having diarrhea. Sometimes getting headaches and having necklaces. Sometimes waking up feeling horrible brain fog. I did go to my GI doc and they did a blood test and found my TtG-IgA was in the negative range (and a lower number than I'd had before). I also had normal levels of CRP. My stool showed no elevation of calprotectin and no pathogens. My GI doc said the symptoms could be related to a gluten exposure or to IBS. I'm keeping a food diary to see if I can narrow down whats going on. I know I have good days and bad days and Im trying to isolate what makes a good day versus a bad day. Generally so far it looks like if it eat something super cautious like raw vegetables that I chopped myself into a salad and almonds, im fine but if I eat something more complex including, say, chicken and rice (even if packaged and certified gluten free or made by me with gluten free ingredients), it may not go so well. I may end up with either a headache, neck tension, brain fog, and/or diarrhea that day or the morning after. Any other thoughts or suggestions? I am planning to start tracking my foods again but I wanted to do it in more detail this time (maybe down to the ingredient level) so are there any common ingredients that celiacs have issues with that you all know of that I should track? I've got dairy, oats, soy, eggs, corn, peas, lentils on my “watch list”. Other things I should add? I'm hoping if I track for another two weeks I can maybe pin down some sensitivities. Appreciate the help and tips. Thank you so much!!
    • trents
      Diagnosed gluten allergy but not Celiac

      By trents · Posted

      "My GI doctor ruled out gluten celiac entirely because I didn't have skin rash." Are you serious? The overwhelming majority of people with confirmed celiac disease do not have the rash. It's called dermatitis herpetiformis. It is found in only about 10-15% of those with celiac disease: https://www.celiac.ca/gluten-related-disorders/dermatitis-herpetiformis/ If your GI doc is operating on that piece of misinformation, I would start looking for a new GI doc because I wouldn't trust him/her in general. 
×
×
  • Create New...