Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dianosis Help?


sore joints

Recommended Posts

sore joints Apprentice

Hi everyone!

When I read all of your letters, I feel guilty because I'm not suffering in the same way as most of you and can't imagine what all of you are going through.

For 3 years now I have been suffering from bouts of joint and bone pain. It started following pregnancy. I've been through every test known. Now I also have very low ferriton and fatigue. I recently took a Celiac blood test and it came back as mildly abnormal. Did the doctor bother to tell me what this means...NO. She referred me to a gastro doc but I just found out that it will take 11 months just to get an appointment. What the hell. I'm going through another flare-up of pain and do not want to wait any longer. Apparently my naturalpath can do an allergy test to determine if I am sensitive to gluten. What do you think of this. After the test I'm thinking of going of gluten to see if I feel better. Anyone have any opinions on this?

I would really like to hear from others who have similar bone and joint pain. Any advice would be greatly welcomed. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MNB Newbie

Dear Sore Joints:

Although your symptoms could be caused by Gluten Intolerance (joint pain is common from what I can tell on this site), you may want to consider other possibilites.

I am recently NOT a fan of MD's and it was a Homeopathic Doctor that identified my gluten-allergy symptoms, but the joint-one pain you are describing sounds alot like what I was feeling before I was diagnosed w/ Lupus. Have the doctors tested you for any other auto immune disorders? (Fibromilagia, lupus, MS?). It took the doc's several years to diagnose me with lupus and I assumed when I recently got sick this time it was the lupus but come to find out it wasn't - it was the gluten.

I wouldn't rule out anything and don't believe everthing the MD's tell you - 11 months for an appointment is obnoxious! :o Get a new Doc or go with the Naturopath to at least get a definitive answer on the allegy.

Good Luck!

CarlaB Enthusiast

You can order a test at www.enterolab.com and you will know within two weeks after sending in the sample. Check out their website. I was happy with their service.

Lymetoo Contributor

Also explore the possibility of lyme disease. The tests are lousy, but if you need information, feel free to contact me!

welcome! :)

AndreaB Contributor

I also like enterolab if you want to check for intolerance to gluten. They also include a gene test, ttg and malabsorption in the whole gluten package. I think it still includes dairy at no charge. They also offer testing for soy/egg/yeast.

sore joints Apprentice

Hi! Thanks for the great replies. I've been tested for MS, Lupus, Rheumatoid Arthritis, Bone Cancer, and who knows what else. I will check out enterolab and do my testing through the naturalpath and if all else fails, I guess I try going gluten free to see if I feel better. I have no idea what this type of diet entails. I guess I'll have to spend some time researching products and ingredients. Thanks everyone.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

    2. - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

    3. - Theresa2407 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

    4. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

    5. - Scott Adams replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,263
    • Most Online (within 30 mins)
      7,748

    Fruitypebbles
    Newest Member
    Fruitypebbles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.