Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Son....i Am Scared


chgomom

Recommended Posts

chgomom Enthusiast

Hi Everyone,

I am a newbie here and newly diagnosed celiac, and I am concerned about my son having it. He keeps coming to me saying nuggets, or bread, or candy makes his tummy hurt, even cheese Heck, even pasta, the only things that don't really bother him are water, milk, meat and veggies/fruit.

He has also had soft stools for as long as I can remember, I don't remember one time I've seen a hard one, or its loose. But never watery. He is short, his father is 5'9 and I am 5'6, hes 5 and the shortest in his class, has a little belly but hes not over weight and has high cholesterol, 218.

He gets very moody after he eats what I now call "garbage" anything thats not gluten free or natural.

I mean he'll go into a complete tirade and take a long time to come down out of no where...those are usually few and far between, but they correlate with his "tummy ache" times. It takes him a few days to get back to normal. Frankly, what I see in myself when I have been glutened, only I can control my emotions when I don't feel well (most of the time that is:P)

Anyway....any parents...please chime in. I put in a call to his doctor asking to get in today and have them send me down for the labs.....

His father won't go along witha gluten free diet unless the labs are positive (we're divorced)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



zip2play Apprentice

Good luck getting a diagnosis! I hope all goes well for him!

Monica

wolfie Enthusiast

Good luck!!

I think you are doing the right thing by getting him tested. I hope that if he is diagnosed, too, that his father goes along with the gluten-free diet.

AndreaB Contributor

Yes, definately get him tested. If his father needs that to keep him gluten free than that is very important. His health will not improve if his father does not stand behind this diet.

ryebaby0 Enthusiast

Well, he certainly sounds like a likely celiac! The pot belly, short stature, stomach aches, reaction to pasta..fairly "classic" symptoms ..and your ex sounds like a guy who needs a doctor to back you up. The blood test is not so bad, compared to a childhood of illness. If it helps convince your ex, my son was undiagnosed for probably 5 years and was hospitalized for 3 months before his health stabilized. Undiagnosed celiac disease is nothing to fool around about.

You're gonna feel overwhelmed by the diet for a 5 yr. old. We'll be right here :)

joanna

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,207
    • Most Online (within 30 mins)
      7,748

    WAB19
    Newest Member
    WAB19
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.