Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Conference In Stanford, Ca - Sept '06


DingoGirl

Recommended Posts

4getgluten Rookie
This is really great, girls! I'm so excited about it. Yes, we must meet each other in person! Karen - maybe the baby will come early - or late - - ;) would be great if she could go. Can she get us discounts? I am so broke.... :huh:

Susan - I'll ask my sister about it, can't hurt. I'll let you know what I find out.

As far as driving around in the bay area, it's really not bad. I live in L.A, and I think the drivers in northern California are a lot more mellow than here. I'm afraid I've become one of those aggressive drivers.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 68
  • Created
  • Last Reply
Rikki Tikki Explorer

I tend to agree with you Karen, the further south I have gone the more agressive the driving gets. That has been my experience anyway. If it get's too bad, just get in the car and start driving north! :lol: Keep going and we can all meet up someplace and eat! :D

Rikki Tikki Explorer

He Susan:

You were probably an agressive driver due to the gluten you were consuming! :D:PB)

DingoGirl Enthusiast
He Susan:

You were probably an agressive driver due to the gluten you were consuming! :D:PB)

OMG Sally, you have no idea how true this is! Gluten really messed up my brain and emotions, was emotionaly labile for most of my life, esp. in my teens through early thirties....definitely gluten! Could not get from point A to B fast enough.....now I'm mellow and it's a much better - and safer - driving experience for everybody, believe, me... :lol:

munchkinette Collaborator

Oo, this looks interesting! I might have to sign up.

Well, here's a tip I can give you about travel. See if there is ANY way possible you can fly into the San Jose airport (about a 1/2 hour south of Palo Alto) instead of San FRancisco - - - that place, and driving out of there, is a freaking nightmare!!! And you don't want to start out your trip wtih a nervous breakdown... :blink:

It all depends on the airline. SFO is best for United. San Jose and Oakland are often cheaper for many airlines, particularly Southwest and Alaska. If I lived closer to SJ, I'd definitely pick that one to avoid driving over bridges.

Rikki Tikki Explorer
OMG Sally, you have no idea how true this is! Gluten really messed up my brain and emotions, was emotionaly labile for most of my life, esp. in my teens through early thirties....definitely gluten! Could not get from point A to B fast enough.....now I'm mellow and it's a much better - and safer - driving experience for everybody, believe, me... :lol:

Now that made me smile. Glad you are doing so much better! :D

flagbabyds Collaborator

i run the teen program and the kids program every year, and do set up the night beofre every year, a really good conference! but sign up extremely earrly cause the reg goes really really really fast and it is in a small facility b/c the bigger one raised the price a LOT cause my dad didn't work there anymore so we couldn't get it for the cheaper price.

and about next year, the dates change every year, last year it was in november.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest BERNESES

Oh my gosh- I really want to go!!!!!!!!!!!!!!!!!

I'm cracking up about all you California drivers. having lived in both San Francisco and Boston, I can honestly say if you think the Bay Area is bad.....try Boston. Talk about road rage....gluten or no gluten!!!!!!!!!!!!!

I'm going to look into plane tix.

flagbabyds Collaborator

i would just say that before you book the plane tix, get the regestraion becasue we do not let in peple who have not registered. here is all the info

Open Original Shared Link

Well, here's a tip I can give you about travel. See if there is ANY way possible you can fly into the San Jose airport (about a 1/2 hour south of Palo Alto) instead of San FRancisco - - - that place, and driving out of there, is a freaking nightmare!!! And you don't want to start out your trip wtih a nervous breakdown... :blink:

I'm so excited for you, and we'll have to have an area where all of us from this forum meet up!

I would actually say that they have been changing the SJ airport so much that it is very stressful w/ all the construction SF is really easy during non commute hours/

and yes we should meet up, Scott is usually there and I will be the girl who is frantically running around yelling at the adults b/c the forgot the ovens for the teen cooking program!

DingoGirl Enthusiast

Molly - - so you're helping with this! Awesome! It would be great to meet everyone and great to meet Scott. I just registered so I'm IN! didn't know about all the construction at SJ airport. Am driving there, styaying at best friend's - with dingos - in Willow Glenn, whihc I think is about a half-hour away, as I remember correctly.

I'm really looking forward to it!

flagbabyds Collaborator

im from stanford campus so we use SJ a lot and every time we go there it is differnt than the last time we were there. but your friend should be able to help you w/ directions to her house, never heard of willow glenn...

i think this is the 6th year that we have had this conference and this is my 4th year doing the kids/teens programs

its a good conference, yet i have never gone to the speakers be\/c i am always with the teens program.

dlp252 Apprentice

I just registered, so I'm set.

flagbabyds Collaborator

¡yay!

it is mucho fun!

DingoGirl Enthusiast

Yay, Donna! We'll meet in person.

Molly, what do you mean you're at Stanford Campus? Um, you're a bit young for college, aren't you? (here's a secret - it's my dad's Alma Mater and I went to every Big Game there was.....what a hoot and I LOVE Stanford very much)......

Willow Glenn is in San Jose, Bird Ave. exit off 280. They're my extended family and I'm there a lot.

flagbabyds Collaborator

my dad used to work for stanford, we have a house in the faculty part of campus, yeah i am not college age yet........

gf4life Enthusiast

Okay, I think I'll register now...I was concerned about the price for a family of 5. $385 if we register before Sept., not to mention the gas money!! :huh: But if you guys are going to pay for plane tickets to go, then I really don't have anything to complain about. It is only a 3 hour drive for us! I've been wanting to go for the past 3 years. I just have to bite the bullet and get registered. Anyone know of a good (safe) place to have dinner after the conference?

Molly, they won't be taking the kids off-site to swim this year will they? That is what stopped us from going last year. My husband is a security freak and he would not allow the kids to participate in that. He already worries about just having them be in a different area of the conference with out us!

Rikki Tikki Explorer

Wow I guess there prices are going up. Can one of you stay with the kids it he is that concerned about them? The 2 years I went they had so much food I wasn't hungry for dinner. Of course that never stops kids from eating! :lol:

jayhawkmom Enthusiast

I'm paying for a plane ticket, hotel for 2 nights, car rental...and incidentals. That's how important I felt it was for me to be there. Not to mention, dh has to take some time off of work to stay home with the 3 kids. No way could we afford for all of us to fly to California for a weekend. =)

I really wanted to take my daughter, but she *just* turned 5 and she's way tiny and very behind in maturity level (thanks gluten) so I didn't feel she'd be able to seperate from me and go with the kids program. Next year!!!!

Rachel--24 Collaborator

Susan,

I finally checked out this thread and now I really wanna go!! :D

How do I register and how much does it cost?? I got scared after I saw Marianne's post quoting $385. :blink:

If thats what it costs I know I cant go. :(

flagbabyds Collaborator

go to www.celiacsprue.org, and click on the conference page.

adult reg is $95, but it is worth it

and i don't think we are taking the kids off site this year we did that 2 years ago but not last year, last year it was really fun for the kids and they all really liked it.

DingoGirl Enthusiast

Rachel, Molly's right, it's $95 (plus the cost of gas.....and you're not that far!) I just signed up yesterday to be guaranteed a spot. Can't wait! Just sign yourself up, it'll be such a great day!

:):):)

gf4life Enthusiast
and i don't think we are taking the kids off site this year we did that 2 years ago but not last year, last year it was really fun for the kids and they all really liked it.

Was that 2 years ago?? Man time flies. I think last year there was a schedule conflict...

It is $95/adults and $65/kids over 5. I really want my kids to go with me which is why it will cost us so much. I feel it is important that they get to spend time with other kids with the same dietary restrictions. And I really think it would make an impression on them to be able to go somewhere and be able to eat ANYTHING that is being served. It just doesn't happen anywhere but at home.

I am going to buy the tickets this Monday (payday) and then I will have no excuses not to go. My husband wants to go with us too. He isn't gluten free, but he does have gluten intolerance genes, is lactose intolerant and has some health issues that could be gluten related. He is open to learning more about it and I think it would help him to decide if he wants to go ahead and either get tested or just go on the diet with the rest of us. Not to mention that he doesn't like us traveling out of town without him...the safety issue again. I don't mind, I hate traveling alone with the kids anyhow and he feels the need to protect us. :D I think it is sweet.

4getgluten Rookie

Wow - I've been so busy this week; I haven't had a chance to check the message board. Molly thanks for all the great information! I was hoping to get some info from my sister who works at Stanford, but I can't get a hold of her. I think she is out of town. Anyhow, I just went ahead and registered. I didn't want to leave it too late and have them fill-up. Looks like a great conference. I'm looking forward to it.

Rikki Tikki Explorer

Ok I am going. Now we have to have a place and time to meet up. :D I am so excited

  • 2 weeks later...
Katja Rookie

Hello All,

I am new to this forum - just signed up today - and signed up to attend the Stanford Celiac Conference. Hope to meet some of you there. Still struggling to avoid being "glutened" by accident and can use any advice I can get.

Cheers,

Katja

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    2. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    4. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    5. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.