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Tapioca And Burning Tongue, And Help With Dx.

Guest lynnacim

By Guest lynnacim
in Celiac Disease Pre-Diagnosis, Testing & Symptoms

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Guest lynnacim
Guest lynnacim
Posted

Ursula stated that the gluten free breads were a problem for her because of the tapioca. The reaction was a burning tongue. I have had a burning tongue off and on for about 2 yrs. I think I did start eating a lot of the gluten free products at that time. How do I find out if it is the tapioca? Do I need a DR's order to get tested by E lab for celiac? I have been wheat free (mostly) for quite a few years, so my blood test was negative. I have malabsorption,(heart attack at age 36 due to magnesium deficiency)excessive burping, constipation/diarrhea, burning feeling in body, itchy areas, and latest symptoms are sour acid taste on tongue and burning on tip of tongue. Doctors have not been helpful. Any advice would be appreciated. Thanks Lynn

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jerseyangel Proficient
jerseyangel
Posted
Ursula stated that the gluten free breads were a problem for her because of the tapioca. The reaction was a burning tongue. I have had a burning tongue off and on for about 2 yrs. I think I did start eating a lot of the gluten free products at that time. How do I find out if it is the tapioca? Do I need a DR's order to get tested by E lab for celiac? I have been wheat free (mostly) for quite a few years, so my blood test was negative. I have malabsorption,(heart attack at age 36 due to magnesium deficiency)excessive burping, constipation/diarrhea, burning feeling in body, itchy areas, and latest symptoms are sour acid taste on tongue and burning on tip of tongue. Doctors have not been helpful. Any advice would be appreciated. Thanks Lynn

Hi Lynn--I have a number of food intolerances (see my sig). I found that tapioca caused me to have a very dry mouth (while still chewing it) and GI cramping and D. The best way to determine if you are intolerant is to discontinue the food completely for 2 weeks. Take note of how you feel. Reintroduce the food after the 2 weeks is over and see how you feel. This is not the most scientific way, but it worked for me--took about 6 months to figure out what was bothering me. My allergist sugested it to me. Of course, for true food *allergies*, you would need to be tested by an allergist. While I have many intolerances, I tested negative to all the foods tested for allergies. The Enterolab testing for gluten intolerance you do not need a doctor's order for. You go thru them yourself.

You said that you were wheat free--do you plan to go gluten-free?

Guest lynnacim
Guest lynnacim
Posted
Hi Lynn--I have a number of food intolerances (see my sig). I found that tapioca caused me to have a very dry mouth (while still chewing it) and GI cramping and D. The best way to determine if you are intolerant is to discontinue the food completely for 2 weeks. Take note of how you feel. Reintroduce the food after the 2 weeks is over and see how you feel. This is not the most scientific way, but it worked for me--took about 6 months to figure out what was bothering me. My allergist sugested it to me. Of course, for true food *allergies*, you would need to be tested by an allergist. While I have many intolerances, I tested negative to all the foods tested for allergies. The Enterolab testing for gluten intolerance you do not need a doctor's order for. You go thru them yourself.

You said that you were wheat free--do you plan to go gluten-free?

Yes I'm attempting this now. Today I ate gluten free cereal, amy's gluten-free lunch, gluten-free brownie with walnuts and then with in an hour began burping and tongue burning. I used Endust, windex and put on clinique makeup. So...I'm trying to figure this out??? Any suggestions?

jerseyangel Proficient
jerseyangel
Posted
Yes I'm attempting this now. Today I ate gluten free cereal, amy's gluten-free lunch, gluten-free brownie with walnuts and then with in an hour began burping and tongue burning. I used Endust, windex and put on clinique makeup. So...I'm trying to figure this out??? Any suggestions?

What I would suggest is to eat only natural, whole foods--meats, poultry, veggies, fruits, olive oil for a while until your symptoms subside. Then add in one other thing at a time--this should help you pinpoint what your problem foods are. The foods that you ate today, while gluten-free, contain many ingredients. It could be anything--the various grains in the flours, soy, the nuts, etc. You're most likely intolerant to something you're eating, you just need to sort it out.

Guest lynnacim
Guest lynnacim
Posted
What I would suggest is to eat only natural, whole foods--meats, poultry, veggies, fruits, olive oil for a while until your symptoms subside. Then add in one other thing at a time--this should help you pinpoint what your problem foods are. The foods that you ate today, while gluten-free, contain many ingredients. It could be anything--the various grains in the flours, soy, the nuts, etc. You're most likely intolerant to something you're eating, you just need to sort it out.

Thanks your advice is very helpful. It is soooo hard to give up snacking and sweets. Thats why I bake so many gluten free products..

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