Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reality Hits Once Again...


num1habsfan

Recommended Posts

num1habsfan Rising Star

Just out of nowhere I started to cry over having Celiac, just because earlier I looked in the fridge seeing 2 of my favourite foods that i cant touch ... this is the first time this has happened in a LONG time ... and i feel like an idiot :(

~lisa~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tammy Community Regular
Just out of nowhere I started to cry over having Celiac, just because earlier I looked in the fridge seeing 2 of my favourite foods that i cant touch ... this is the first time this has happened in a LONG time ... and i feel like an idiot :(

~lisa~

I see the forest through the trees on some days and others all I see is a lot of tall sticks with leaves...

I had to come to terms with the fact that I have more bad days than good. I also removed all "BAD" food from my house. Is this possible for you to do? If not, perhaps you could keep a supply of your absolute favorite, safe foods in the house... I just started to keep gluten-free brownies in the freezer for those special moments. Many people at work eat my favorite, unsafe foods often and I must see this. So in order to keep my head above water... I started to bring to work and keep at home my really favorite, safe foods. I love chocolate and I found a snack bar made with honey and sesame seeds that I love!!!

I hope it helps!!!!!!

jerseyangel Proficient

Aw Lisa--don't be too hard on yourself--it happens to all of us from time to time. It's natural to have feelings like that--experience them, and then let it go. :)

nettiebeads Apprentice
Just out of nowhere I started to cry over having Celiac, just because earlier I looked in the fridge seeing 2 of my favourite foods that i cant touch ... this is the first time this has happened in a LONG time ... and i feel like an idiot :(

~lisa~

Why should you feel like an idiot? You're a very normal human being that has a disease that is so not mainstream. It's frustrating at times. After nearly 10 years of this, I'll still look in the pantry and just want to give up - same ole same ole and I don't want to spend outrageous prices for something yummy or cook from scratch. At least this forum is a safe place to vent and find out you're not alone.

Annette

Lymetoo Contributor

I hear ya, Lisa! I"ve struggled for years with my health. I also have Lyme disease which is so misunderstood by the public. People have no clue how bad it is. Now I found out I'm celiac too and I've had it a LONG time, I'm sure.

I haven't cried yet, but I'm pretty down today as well. Crying is good for the soul and for your emotional well-being. Go for it! :)

Mango04 Enthusiast

Don't feel like an idiot. You can cry over food! Just go make yourself a yummy gluten-free pizza or cake or something :D

Lisa Mentor

Lisa:

I can truely relate. It will be a year in August in my attempt to be gluten free. I have not had the outcome that I wanted to achieve. It is a daunting task.

It has been a crazy year for me and now, life slows....It is now a point in re-evaluation for me.

I think every step of they way, you need to see where you are and make judgements as to where you are today and where you want to go tomorow.

Yeah, I get mad on the inside about what I have to do to eat. And, I get mad about the effort and the research, and the choice not to eat anything that I don't know is safe. I get mad that I can't go to a wondeful resaurant and order what sounds good. Can get really angry. And then what............

So I get pissed, or I can get over it. Those are the days long ago. They are over for me. So.. you adjust. You learn to be a better cook. Which I am. But I want those days, with a date night with my husband and a choice of a menue was not an issue or a hardship or an issue with the server.

sorry do be a downer tonight, just in that mood............what is the topic, by the way.??

Is this revelant to the post?????????? <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ashley Enthusiast

I understand how having Celiac Disease seems unreal. Don't feel that way. You are certainly not an idiot. During the first three months, I would not go to any store. When a commerical came on showing my favorite, gluten-containing foods; the television was turned off. I have days too were it all crashes down and feel bad. In time, it will pass.

Wishing for better days for you :)

-Ash

Ursa Major Collaborator

Lisa, don't feel like an idiot! I get those moments, too. It really is hard sometimes, and it's good you can come here and vent, because we actually understand and won't say (like my daughter at times) things like, "What a baby you are, crying over food!" Well, since they can eat all the stuff I want, they don't have a clue what it's like!

So, I say, it's okay to sometimes cry over what you've lost, and then move on. It would only be a problem if you would be upset about it all the time.

num1habsfan Rising Star

Thank you guys for saying that I'm not dumb, and showing that I am not alone. I dont get it -- I have seen this food a zillion times before, and NEVER had a problem with it before ... so why it set me off now, I dont know.

Its not like I dont accept Celiac, maybe its just that everything else today is making me sad lol

~lisa~

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,031
    • Most Online (within 30 mins)
      7,748

    joanna19
    Newest Member
    joanna19
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Here is an article that gives an overview of all tests that can be used to detect celiac disease:    As you can see, the different tests vary in their degree of specificity and sensitivity. So, it is to be expected that if someone has celiac disease, not all the tests will be positive. Also notice that the tests break down into two large groups, IGA-based tests and IGG-based tests. There is also the EMA (Endomysial Antibodies) which is an older test and has largely been supplanted by he tTG-IGA which is less expensive to administer. So, when you report that the TTG score from your daughter's bloodwork is 22ku/l, we assume you are referring to the tTG-IGA test, which is the most popular test ordered by physicians when checking for celiac disease and considered to be the centerpiece test. However, you do not mention if there was a "total IGA" test run. Whenever the tTG-IGA is ordered, a total IGA should also be ordered to check for IGA deficiency. IGA deficiency will result in other IGA test scores, such as the tTG-IGA being artificially low, even falsely negative. This is especially true for young children. This is discussed in the article I linked. If your physician did not order total IGA test, this should have been done. Do you have a recourse for requesting such? I should also mention that you must not withdraw gluten from your toddler's diet until all testing for celiac disease is completed. Doing so would invalidate the testing.
    • Scott Adams
      I’m so sorry to hear about your toddler’s recent Type 1 diabetes diagnosis, and I understand how overwhelming it must feel to now be navigating possible celiac disease as well. The slightly elevated TTG antibodies (22 ku/L) with normal endomysial antibodies could indicate a few things—sometimes, mild elevations can occur due to factors other than celiac disease, such as recent infections or even Type 1 diabetes itself. However, the symptoms you’ve noticed (changes in stools, itching, and hair thinning) could potentially align with celiac disease, so it’s understandable why you’re concerned. Since the consultant wants to retest in 3–6 months, it may be because they’re assessing whether the antibody levels persist or increase, which would strengthen the case for further investigation (like a biopsy). In the meantime, if your daughter’s symptoms worsen or you feel uneasy waiting, it’s completely reasonable to ask for an earlier review or a referral to a pediatric gastroenterologist for further advice. Keeping a symptom diary until the next test might also help track any patterns. You’re doing a great job advocating for your little one—trust your instincts and don’t hesitate to push for more clarity if needed. Sending you lots of support.
    • mytype1diabetes
      Hi all, Posting from the UK.  My 2 year old was recently diagnosed with Type 1 diabetes. In the UK they routinely screen for coeliac disease. The test showed slightly elevated levels of TTG antibodies. The consultant wants to repeat these antibodies in 3-6 months time to determine clinical significance. In our letter it said "marginally elevated TTG antibodies (22ku/l), normal endomysial antibodies". I'm not exactly sure what this means, especially given one of the tests were within the normal range, and if we should be worried about the numbers. It is difficult to know if she has any "symptoms" but at the time she was diagnosed with Type 1 diabetes I noticed that her stools had changed. They are now probably a Type 6 on the Bristol stool chart. She seems to be quite itchy which is a recent thing and over the past week I have noticed some hair loss/thinning. I feel very worried and I'm not sure I can wait for her to be retested in 3-6 months time.  I'd appreciate any wisdom, advice or information you have. Thanks 🙏🏼
    • slkrav
      I was feeling really sick last week, for several days I kept thinking I was getting cross contamination. Typical symptoms like not sleeping well at night and waking up with widespread inflammation in all of my joints, foggy head and of course bowel issues. I had read the article recently that was talking about body products. I was starting to get depressed. I was showering and decided to read the ingredients in the products I've been using. It turns out that two of the ingredients in my conditioning hair mask contain GLUTEN. I felt really stupid for not checking before and I threw that away and also checked the ingredients of everything else I've been using. I've heard of skin issues from gluten containing body products, but this opens up a whole new way if being proactive. 
    • xxnonamexx
      I haven't taken blood test for deficiencies yet since self diagnosed but I started a Multi vitamin from reading consumerlabs Nature Made Multivitamin For Her 50+ with No Iron, Womens Multivitamin for Daily Nutritional Support, Multivitamin is actually good for men compared to the mens version since im 47 I figured this should be ok. I also just started taking Kirkland Signature Super B-Complex with Electrolytes which consumerlabs which is an independent lab that tests what is actually in it states this is a good balanced B complex vitamin where its not too much of any vitamin for you to take.  I was thinking of taking the Gluten test after the summer  ut I think if I reintroduce gluten for this test I will be so sick and make things worse. I heard there is a blood test coming in a year that they add gluten to the blood to test which would be nice but prob in a year or 2. 
×
×
  • Create New...