Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Afraid To Go To Sleep


samking72

Recommended Posts

samking72 Rookie

Last night is not the first time that this has happened...

I was so afraid to go to sleep last night because everytime I was almost asleep I would wake up gasping for air. After that it was like I had to tell my brain to breathe. My heart rate was getting faster and faster everytime I woke up. This has happened 4 times in the 6 weeks. Could it be stress related? Anxiety attack? Has anyone ever had this happen? I really thought I was going to die, no joke. I finally just shut down and obviously i made it through the night but this is making me really nervous that it has happened so many times in such a small window of time. Any ideas?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sarah8793 Enthusiast
Last night is not the first time that this has happened...

I was so afraid to go to sleep last night because everytime I was almost asleep I would wake up gasping for air. After that it was like I had to tell my brain to breathe. My heart rate was getting faster and faster everytime I woke up. This has happened 4 times in the 6 weeks. Could it be stress related? Anxiety attack? Has anyone ever had this happen? I really thought I was going to die, no joke. I finally just shut down and obviously i made it through the night but this is making me really nervous that it has happened so many times in such a small window of time. Any ideas?

This has happened to me. And I was afraid to go back to sleep also. I was afraid I would stop breathing and never wake up. The only thing I have found connected to this is eating something with MSG in it or gluten. Since eliminating these it hasn't happened for awhile.

Sarah

MySuicidalTurtle Enthusiast

You should definitely go see your doctor.

Nancym Enthusiast

It sounds like sleep apnea, which can be deadly. Go see your doctor and insist on getting evaluated.

taz sharratt Enthusiast
Last night is not the first time that this has happened...

I was so afraid to go to sleep last night because everytime I was almost asleep I would wake up gasping for air. After that it was like I had to tell my brain to breathe. My heart rate was getting faster and faster everytime I woke up. This has happened 4 times in the 6 weeks. Could it be stress related? Anxiety attack? Has anyone ever had this happen? I really thought I was going to die, no joke. I finally just shut down and obviously i made it through the night but this is making me really nervous that it has happened so many times in such a small window of time. Any ideas?

thats really frightening, you cant go without sleep you should go see your doctor.

plantime Contributor

I have that happen to me now and then. A sleep study determined that I have mild sleep apnea. As long as I do not sleep on my back, I am fine.

GFBetsy Rookie

This happened to my DH while taking anti-depressants . .. could that be a contributing factor?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lorka150 Collaborator

i went through this forever until i went gluten-free. they did test after test and found nothing. i was horrified. i went to sleep clinics, but because they 'wake' you when you're there, it didn't happen because it happened when i awoke on my on.

they disappeared after i went gluten-free. i understand your fear. honestly, it was the scariest thing in the world.

are you newly gluten-free?

Lister Rising Star

i had the same thing for a while, but it would happen right before i fell asleep preventing me from going to sleep, over and over until i would just fall alseep.

i do belive mine where axiety related you should look into it, it seems to be worse on glutened days

Carriefaith Enthusiast
Last night is not the first time that this has happened...

I was so afraid to go to sleep last night because everytime I was almost asleep I would wake up gasping for air. After that it was like I had to tell my brain to breathe. My heart rate was getting faster and faster everytime I woke up. This has happened 4 times in the 6 weeks. Could it be stress related? Anxiety attack? Has anyone ever had this happen? I really thought I was going to die, no joke. I finally just shut down and obviously i made it through the night but this is making me really nervous that it has happened so many times in such a small window of time. Any ideas?

You should go to your doctor for sure. Maybe you have an allergy? Those symptoms are similar to my food allergy symptoms. I get heart palpitations, heart pain, fast heart rate, trouble breathing, a feeling like my throat will close over, and hives or a rash.
ms-sillyak-screwed Enthusiast

-

Guest SusieQ

As we age, and/or when we gain weight, the tissues in the throat can collapse somehow and stop our breathing. That is called sleep apnea.

I was exhausted for years. Thought it was part of my dx. of fibromyalgia. I think that dx. actually was gluten intolerance and sleep apnea now.

A person can wake up hundreds of times a night apparently, just awake enough to take a breath and go back to sleep. However, it interferes with sleep enough so that one doesn't get in to deep sleep and so you never wake up feeling rested.

Get the doc. to order a sleep study for you. If it comes up positive, then you would need a machine for breathing. Air rushes in and it keeps the throat from closing up. I'm very comfortable with mine. Didn't take me long to start feeling better with the machine.

It is really important to get it diagnosed and treated because it can affect ones health in so many ways. It can contribute to heart disease and contribute to high blood pressure to start with. Along with causing automobile accidents from falling asleep at the wheel.

Also, it is, in and of itself dangerous. It can happen that a person just doesn't wake up enough to get that breath, but I don't think it is common, but it does happen.

I'm losing weight since going gluten free and hope to get to where I don't need the machine anymore. Of course, I just plain feel so much better with being able to get some sleep during the night. Not entirely rested now, but lots better.

I hope this helps.

samking72 Rookie

Thanks everyone! I'll be going to a sleep clinic for tests very soon. Hopefully that will determine what's wrong. I'm pretty sure it's stress, but we'll see :)

  • 1 month later...
Guest ~jules~

When we were kids my brother did that in his sleep all the time, I'd smack him or nudge him to wake up. His wife says he's still doing it, and it scares her to death. I have no clue what it is though sorry.....

GFBetsy Rookie
When we were kids my brother did that in his sleep all the time, I'd smack him or nudge him to wake up. His wife says he's still doing it, and it scares her to death. I have no clue what it is though sorry.....

jules -

Talk to your sis-in-law about apnea. Childhood apnea is rarer than adults having it, but it does happen. I've also heard that lots of people who are later diagnosed with sleeping disorders were first diagnosed with ADD or ADHD. (Inability to sleep well leads to inability to concentrate.) So if he has trouble concentrating, that might be another sign that he's having sleep problems. Anyway, if I were you I'd try to talk my brother into going to a sleep clinic. My husband is going later this month because I'm tired of smacking and nudging him to wake up. Besides, I know that once I'm asleep no one wakes him up when he stops breathing. And that scares me.

  • 1 month later...
ECBorgUSA Newbie
Last night is not the first time that this has happened...

I was so afraid to go to sleep last night because everytime I was almost asleep I would wake up gasping for air. After that it was like I had to tell my brain to breathe. My heart rate was getting faster and faster everytime I woke up. This has happened 4 times in the 6 weeks. Could it be stress related? Anxiety attack? Has anyone ever had this happen? I really thought I was going to die, no joke. I finally just shut down and obviously i made it through the night but this is making me really nervous that it has happened so many times in such a small window of time. Any ideas?

Samking.

I have experienced the "gasping for air" scenario before bedtime after eating candy with modified food starch on an empty stomach. Bad experience. If you are gluten intolerant eating any food with a large amount of any ingredient like modified food starch with gluten in it on an empty stomach could produce the same "gasping for air" experience.

EricB

  • 1 month later...
zachsmom Enthusiast

Okay moy mom did this for years and it ruinins your heart.. no kidding ... This damages your heart over time. So please get it checked if its gluten related... it possibly will stop ... I would have heart palputaions when I ate too much sugar. But my mom never had this checked and she is now dying from it.. SHe has to loose weight and just can not do it .. so its worsened and now she will most likely die of this. ( horrible horrible feelings about his ) but please get it checked to rule the things out.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,097
    • Most Online (within 30 mins)
      7,748

    Ann Den
    Newest Member
    Ann Den
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Your DGP-G is also high. The thing to do now would be to trial the gluten-free diet for a few months to see if there is improvement in symptoms.
    • trents
      Welcome to the forum, @Roses8721! How long were you off gluten before getting the celiac blood testing done? The testing is not valid after having been gluten free for a significant period of time. Many of your symptoms align with celiac disease.
    • rei.b
      Hello, I am feeling frustrated. I have hEDS and lifelong digestive issues but my GI PA is very focused on my celiac panel and I just want to make sure that she should be focused on that because completely changing my diet seems to have worsened my symptoms.  Symptoms are constipation, diarrhea, and acid reflux with spicy foods and certain foods like tomatoes, bell peppers, and onions. I also don't have a gallbaldder as it was removed almost a year ago. This also exacerbated my symptoms. I did have joint pain from hEDS but that was already treated with low dose naltrexone about 4 months prior to going completely gluten free. Endoscopy was abnormal but inconclusive; basically showed some inflammation - which common with hEDS. I don't have any vitamin deficiency.   Celiac Panel Results: TTG-A <0.5 U/ML Reference Range: 0.5-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 DGP-A 72.0 U/ML Reference Range: 0.2-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 TTG-G <0.8 U/ML Reference Range: 0.8-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 DGP-G 24.0 U/ML Reference Range: 0.4-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 IgG-A-M Results: IMMUNOGLOBULIN A, QN, SERUM 165 MG/DL Reference Range: 87-352 MG/DL IMMUNOGLOBULIN M, QN, SERUM 164 MG/DL Reference Range: 26-217 MG/DL   What are your thoughts, internet? Are there any questions I should be asking the PA? Thanks!
    • Roses8721
      Help. I’m spiraling. Years of extensive symptoms:  What could this be? Years of: Mildly elevated alk and alt Fatty liver Random days of feeling like I’m coming down w flu but no fever and nobody else in house sick Intermittent diarrhea Severe abdominal distension Long history of cavities and enamel deficiency Sound sensitivity Anxiety and depression Low libido Sun skin allergy Frequent fatigue ended up seeing PCP because I looked 8 mo preg. Started gluten-free diet then celiac serology negative. SW GI Dr dx me w celiac as I had been in bed for 3 days after eating gluten after cutting. GI said not to do biopsy because it was clear what was going on and added to chart. My spiral is not seeing anywhere this is done and want to see if anyone else has dealt w this. If not celiac idk what else I will do. Family history or celiac as well as a death related to this. 
    • miguel54b
      I get canker sores one hour after eating Oats, and pimples in my butt. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.