Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hypothyroidism

Nic

By Nic
in Related Issues & Disorders

Recommended Posts

Nic Collaborator
Nic
Posted

Hi, my youngest son so far has tested negative for Celiac although we will be looking into it farther as children under 5 often have false negatives. He has the chronic constipation that his Celiac brother had and also has hyptotonia and developmental delays. I recently learned that these are also symptoms of Celiac. Since he was an infant, every doctor suspected hypothyroidism due to the developmental delays, the hypotonia, and also the soft spot on the front of his head was open until he was two. And it was huge, I could fit the width of three fingers int there. He is also 52 lbs. which is in the 100 % for his age but pretty much only eats fruits, veggies, and pasta. Definitely does not over eat (I will also mention he is tall, 43 inches). My question is, can children test negative for something like this and really have it? Can it maybe just show up later? He tested negative when he was about 1 year old and I don't believe anyone ever looked at it again.

Nicole

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
Hi, my youngest son so far has tested negative for Celiac although we will be looking into it farther as children under 5 often have false negatives. He has the chronic constipation that his Celiac brother had and also has hyptotonia and developmental delays. I recently learned that these are also symptoms of Celiac. Since he was an infant, every doctor suspected hypothyroidism due to the developmental delays, the hypotonia, and also the soft spot on the front of his head was open until he was two. And it was huge, I could fit the width of three fingers int there. He is also 52 lbs. which is in the 100 % for his age but pretty much only eats fruits, veggies, and pasta. Definitely does not over eat (I will also mention he is tall, 43 inches). My question is, can children test negative for something like this and really have it? Can it maybe just show up later? He tested negative when he was about 1 year old and I don't believe anyone ever looked at it again.

Nicole

Hi Nicole, It is not only children that can show a false negative adults do at times also. In countries that test routinely asymtomatic children are checked at age 4 or 5 and then again at puberty. It can take a while for enough antibodies to show up. There are also times when a doctor will decide a low positive is a negative unfortunately. Considering he has a diagnosed celiac brother I would get the panel run again and as soon as he has the blood drawn I would put him on the diet. IMHO dietary response is the true test.

2kids4me Contributor
2kids4me
Posted

Were you wondering about false neg with celiac only, or the thyroid tests?

My daughter tested in normal range when she was an infant and again at 2 yrs. By the time she was 4 - her TSH was over 900 (normal is under 4) and her T4 was 5 (normal is over 12) and she had developed myxedema.

If your child is symptomatic then one would expect low levels of thyroid hormone and high TSH if the thyroid was the problem.

I am glad you are still investigating - something is not right metabolically and I really hope they are not making you feel like you are making him overweight. I went home really depressed after I saw a neuromuscular specialist and the first comment wsa " she is pretty pudgy" then another called her fat....

it felt like they judge first instead of seeing the issue - whcih is - she cant walk, she is gaining weight withiout eating much and something is wrong.

Good luck , I'll be thinking of you!

Nic Collaborator
Nic
Posted
  • Author

I am sorry if I sound ignorant but I really am regarding thyroid issues (my husband is hypothyroid but I never really investigated it the way I do Celiac). I was asking if hypothyroidism can be missed the way Celiac is when they are young. My doctor is actually wonderful about Lucas, he said, "he is in the 100 th percentile, but don't worry, he is not fat, just a big boy". Like I said, he is tall also (in the 90th percentile). He was born 10.8 pounds and 22 and a half inches. But I do not feel as though his food intake supports his weight. He rarely eats breakfast (even though it is served to him daily), snacks on only fruits during the morning, has lunch but does not over eat, and then dinner. An occassional snack in the afternoon and dessert after dinner. I monitor his servings well on any treats that he does eat, for example 3 cookies or 1 brownie, a handful of chips on rare occassions. Am I understanding you correctly that your child tested neg. for hypothyroid first and later tested positive?

Nicole

zip2play Apprentice
zip2play
Posted

Hypothyroid can also be horribly misdiagnosed for adults as well. I am still messing with thyroid conditions and I started seeing DR's about it in May of last year. After finally getting a sonogram, it was found I have 8 nodules on my thyroid. The surgeon and my DR disagree on how to treat it. I am currently waiting for us all to decided! :rolleyes:

Monica

2kids4me Contributor
2kids4me
Posted

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.