Test Results Confusing

[Calona]

Hi, my name is Patricia and I'm new here.

I recently have gone gluten free in June, this was through my own research that I've discovered that gluten was making me sick. I have nerological problems. I had tests done before but because I didn't know what to ask for ( you assume the doctor knows what there doing) wrong assumtion!!!! anyway, came back normal so I was given Dicitel and was told that it was IBS, I continued eatting wheat and what ever and of course we all know the story so well. Well couple years later new doctor smarter patient, and I ask for test again. They run what I think are the right ones but again all come back NORMAL. When I asked for the test I asked that if I was following a gluten free diet wouldn't they kinda come back wrong, nope was the answer. Of course I knew that to be not true and ate gluten for a week and made myself so sick, to my dismay they came back Negative again. OK, who cares, I know that when I eat the stuff if makes me sick so just don't eat the stuff right. Well now my doctor thinks that all my symtoms are just me running aroung getting test and I'm making all this up, after all I've seen 3 neros and they all say that there nothing wrong with me. Whats up with that????? I've had 3 MRI for MS and maybe if I combine all the times a nero had spent with me it might add up to 1/2 hr. I've ask to see a GI guy but was told that its at least a years waiting. And since my test came back negative you don't need to see a GI guy anyways. ARRRRRGHH!!!!!! I'm still sick, I still have nero problems, and I would like to at least confirm what I already know, reason being is I have to adult boys who could in all likelyhood get sick when they come into there late 30s just like me. And would explain why my moms side of the family is all sick with bowell dieases and autoimmume stuff.

I didn't inttend for this to be long but one thing I did want to ask if any one could help. I noticed that the test run in the US are not like the ones we have in Canada, so again do I need to ask for different ones. This is what was on my test sheet.

IgE

F IgE 53 (<430) ug/L

Immunoglobulines

F IgG 10.10 (7.00-16.00) g/L

F IgA 1.46 (0.70-4.00) g/L

F Igm 1.37 (0.40-2.30) g/L

Anti Tissue Transglutaminase

F Tissue Transglutaminase IgA Antibody 11 (<20) Units

IgA antibody to tissue transglutaminase has approximately 95% sensitivity and specificity for gluten enteropathy. False negative results may occur with IgA deficiency or gluten-restricted diet.

I don't see a test for Gliadian or is that the IgG?

And what is the test tTt???? not sure about that But its the test they give celiacs to see if there getting gluten in there diet. Any help would really be appriciated. Thank-you Patricia

[floridanative]

I can't help to really but wanted to say welcome and I'm sorry you've been through what most of us have. Tired of Doctors (member) on here is the best one to help you (many others can help too) as she has severe neuropathy due to gluten. Hopefully she'll be online and can give you some good advice soon. At least you know for sure, without question and forever more...............you need to be gluten free from now on. Good luck!