Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Hungry! Is This Normal?


KrisT

Recommended Posts

KrisT Explorer

Hello!

OK I've been Gluten free for about 3 weeks now. I have noticed that the D has calmed down quite a bit and I am MUCH less bloated and crampy. But the one thing that I now have is a constant aching hunger! I eat and eat and yet it seems like my stomach is constantly growling from hunger. I have really focused on eatting a lot more potato and corn trying to fill up, but it really isn't helping much. Has anyone else experienced this??

I am going to order the test from Enterolab later this week. I hope that after 3-4 weeks of gluten free it will tell me something.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

Do you eat meat? I was vegan before my allergy tests and then enterolab tests. I find that if I don't eat meat at my meals (usually only 2 meals a day), then I'm starving long before the next meal. On the weekends when my husband is home he makes sure I eat three meals most times. When I just have hot cereal with various toppings including nuts, then most times I am still hungry before lunch. I make sure I have some meat every meal now and it really helps. Without the gluten in our diet and the protein that provided and the fullness of the grain itself I have found the need to leave the vegan diet. I know there are others that are making a go of the vegan, I just couldn't do it being intolerant to gluten and soy. I also find rice helps fill me up, I only use brown rice.

Guest cassidy

I eat a lot. I can't imagine how many calories I eat every day, but every two hours I'm eating something. I also go through weeks when I'm starving and then weeks when it isn't too bad. I wonder if it is related to my monthly cycle, but I have never kept track. Last week was one of the weeks where I would eat a bowl of cereal and then have to make peanut butter toast before I left the house for work.

Do you need to gain or lose weight? I'm finally gaining a little which is good.

taz sharratt Enthusiast
Hello!

OK I've been Gluten free for about 3 weeks now. I have noticed that the D has calmed down quite a bit and I am MUCH less bloated and crampy. But the one thing that I now have is a constant aching hunger! I eat and eat and yet it seems like my stomach is constantly growling from hunger. I have really focused on eatting a lot more potato and corn trying to fill up, but it really isn't helping much. Has anyone else experienced this??

I am going to order the test from Enterolab later this week. I hope that after 3-4 weeks of gluten free it will tell me something.

i am allways eating! i am allways hungry! i put it down to the fact that when i was on gluten my body wasnt takeing in the nutrients it needed and couldnt absorb them iether so when i went gluten-free my body started to absorb the nutreints so it was my bodys way of telling me " more please i need this". try some protien.

KrisT Explorer
I eat a lot. I can't imagine how many calories I eat every day, but every two hours I'm eating something. I also go through weeks when I'm starving and then weeks when it isn't too bad. I wonder if it is related to my monthly cycle, but I have never kept track. Last week was one of the weeks where I would eat a bowl of cereal and then have to make peanut butter toast before I left the house for work.

Do you need to gain or lose weight? I'm finally gaining a little which is good.

I am a good weight. I don't want to either gain or lose. I teach dance for a living, so I get more than my share of exercise which could also contribute to the hungry factor. I eat a LOT of meat! Especially since cutting out the gluten. I'm also eatting more fish now too. I just don't know how I am going to continue to afford this diet!! LOL Gluten free foods are so expensive and fruits and vegetables just do nothing to fill me up. Maybe I need to start eatting gluten free protien bars, or making protien smoothies. I have noticed that my stomach is smaller than it has been in years, even with all of my dancing! I guess I didn't realize how boated I was all the time.

Mia H Explorer

I was starving in the begining too. I used to have to have some dairy to calm my stomach, then thru enterolab found out I was casein intolerant. I gave up dairy, then I was REALLY starving. I thought I was going to die. But, within 3-4 days it began to subside and now I can fill up. Fat helps too. I make sure to put clarified butter on my veggies and popcorn that was cooked in coconut oil. Fat and protein, good for filling up. Or a good bowl of gluten-free cereal and almond milk helps me too.

Mia

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    2. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    3. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    4. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,243
    • Most Online (within 30 mins)
      7,748

    Dorfor
    Newest Member
    Dorfor
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.