Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eli's Going To The Gi Tomorrow


imsohungry

Recommended Posts

imsohungry Collaborator

Well, my baby boy has an appt. with the GI specialist tomorrow. I took him to the pediatrician today and she got him an "immediate visit" with the GI. Her office called and told them I needed an appt. within 24 hours if possible.

Bless his little heart; he is such a happy baby. He will scream with stomach pains and then stop, grin, and stick out his tongue at me. He just can't seem to get better. He keeps vomitting, spitting up, and alternating between constipation and diahhrea. For the last week, he has started crying and screaming with his belly aches. The ped. said today that he is obviously bloated, having digestive problems, and his formula doesn't sound (with her stephascope-sp?) like it's moving through his intestines properly.

He just turned three months old. I finally broke down and started crying today while he screamed. I have no idea what to do. He has already been on five different formulas! So please keep my little one in your thoughts and prayers as we head off to the GI tomorrow.

Blessings to everyone, from a very exhausted mom

-Julie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFBetsy Rookie

Not that it will help you with the current bout of exhaustion, but it is something to be grateful for that he is getting into a GI so quickly. My daughter had intestinal bleeding at 4 months, and it took them about a month to get her into a ped. GI. So at least you will be getting some professional advise relatively quickly.

By the way, saw in your signature that you're a "master's Mom". Me too! Staying home is certianly a different round of difficulties . . . fewer deadlines, but fewer "A's" too. I guess we just accept the tradeoffs . . .

imsohungry Collaborator

Thank you Betsy for responding! :) I'm so sorry to hear that you had to wait so long for your daughter's appointment. I hope everything got resolved and she's feeling better! :wub:

I didn't mean to imply that I'm not thankful for my blessings. It's just been a long three months of back-and-forth to the hospital and doctor...I am MOST thankful to have an appointment tomorrow. Like all mothers, it just breaks my heart to see my son suffer.

Yep, I am a "Master's Mama" too! :P I love staying home with my son. Truely, I think my child has taught me more about "real life" than any textbook I ever picked up. You know what I mean? B)

Well, take care! -Julie

kimber Enthusiast

OH BOY...I have been there with BOTH my kids

They both have/had reflux as well as food allergies when they were young

My ds was b/f but my dd did the best on a hypo formula like alimentum

I hope you have a good GI appt....

Most of the GI's we saw totally blew us off and said crying/screaming and gas was normal baby stuff

Please go with a list of question and demand a game plan to get your little one feeling better!!

Kim

Thank you Betsy for responding! :) I'm so sorry to hear that you had to wait so long for your daughter's appointment. I hope everything got resolved and she's feeling better! :wub:

I didn't mean to imply that I'm not thankful for my blessings. It's just been a long three months of back-and-forth to the hospital and doctor...I am MOST thankful to have an appointment tomorrow. Like all mothers, it just breaks my heart to see my son suffer.

Yep, I am a "Master's Mama" too! :P I love staying home with my son. Truely, I think my child has taught me more about "real life" than any textbook I ever picked up. You know what I mean? B)

Well, take care! -Julie

GFBetsy Rookie
Thank you Betsy for responding! :) I'm so sorry to hear that you had to wait so long for your daughter's appointment. I hope everything got resolved and she's feeling better! :wub:

I didn't mean to imply that I'm not thankful for my blessings. It's just been a long three months of back-and-forth to the hospital and doctor...I am MOST thankful to have an appointment tomorrow. Like all mothers, it just breaks my heart to see my son suffer.

Yep, I am a "Master's Mama" too! :P I love staying home with my son. Truely, I think my child has taught me more about "real life" than any textbook I ever picked up. You know what I mean? B)

Well, take care! -Julie

She's doing much better. It cleared itself up within a month or so, and she hasn't had many problems since (barring all the cavities <_< ). She's seven now, but I tell you, those weeks of waiting were AWFUL. You worry about them and wish you could fix it all right away. You definitely worry more about their health than you ever felt you had to about your own.

By the way, I didn't at all mean to imply that you were ungrateful. I know how exhausting (emotionally and physically) those ill babies are. I was just trying to highlight the silver lining :). Hope I didn't add to your stress at all!

Besty

imsohungry Collaborator

Thank you Kim for the advice! :) I am so scatterbrained lately...I probably would have left the house without my list if I wouldn't have read your post! :blink: I hate to hear that you had such a hard time finding a GI that would listen...ugggh, Dr.s make me so mad! Sadly though, I'm not surprised; it's a shame what we have to go through to get an M.D. to LISTEN isn't it ?!? <_< I hope your girls are doing better now...good for you for sticking with your gut feeling! B) We know our children best!

Betsy,

I'm so glad to hear that your daughter is feeling better! :) And yes, you are right, I have NEVER worried this much about my own health. It is so frustrating that Eli can't tell me what hurts and if he feels better when I do one thing vs. another. :( And no, you didn't add to my stress ;) Like I said, thank you for caring. I reread my original post and realized that I hadn't stated anywhere in there how happy and relieved I am that we got in so quickly! I was just a bit overwhelmed by the whole day. :rolleyes:

Classic "mother's fatigue syndrome" ;)

Well, our appointment is at 3:00 today! I'm praying for answers. -Julie

jerseyangel Proficient

Julie--

Sending good, positive thoughts your way this afternoon! I hope the GI will be able to pinpoint the cause of little Eli's troubles. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nikki2003 Contributor

I definetely understand where your coming from to try and have an MD listen. But our ped will now. We were always bringing nicole in the office or to the ER with high fevers and very bloated stomache. Her ped just keep assuring me it was either gas or her stomach muscles havn't come in yet. He didn't do any blood work eith to rule anything out. It was the GI dr that figured it out. And thankfull that he did. Now I think the ped will be more open to listen.

celina

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanCel
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.