Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help In Foods


balena

Recommended Posts

balena Newbie

:unsure: Hi this is my first time asking a question and being a member.I was diagnosed with celiac about 2 and a half yrs. ago,i was 121 lbs and drastically lost weight,83 lbs. then up to118 and down to 105 now i seem to be there for ever. This is not my normal weight but i guess now maybe it's going to be...lolo. But my question is, does anybody know what other kinds of margerine or butter i can have other than imperial?.When i go out and dine i ask what kinds they use and i can never remember what kinds.I have tried looking in the safe foods for celiac's but it's not there.To this day i am still just surviving on what little i know i can eat.My memory is so bad,i used to carry a list with me but i seemed to have lost it.It gets frustrating as hell when i go out to buy food i can't remember if i can have it or not.Can anyone help me with a simple food list that's not too too....lolol expensive.I am on disability and don't have a car and there is no close store, they are all over the place.This just gets me more depressed and i don't have an appetite,i don't have energy.I don't even have the money to join the celiac assotiation in my city.I am 44 yrs.of age and have 2 girls,25 and 18 yrs old the 18 yr. old lives with me and am a grandma of 1.My 18 yr. old has L.D disabilities and some form of celiac we are still trying to find out what kind,she breaks out in these real bad big sores all over her body and they are scaring her. Her biopsy came back normal but blood test shows that her GI levels are on border line.Can anyone help me there as well.I am hitting a brick wall,i don't know what else to do.help me please if you's can.Desperate in Thunder Bay on.

Thank You

Bonnie B

thyroid disease

seizures grand-petite

degenerative bone disease

fussion needed on cervical 5,6,7

crushed 4th vertibrate

fussion needed on lower lumbar

severe arthritis through out whole body

healing from uterine cancer

2 operations less than 1 mt.

hysterectamy

nerve damage on left foot from operation 3 yrs ago

stomach problems i take pills for

ADHD

bi-polar 1 disorder

post traumatic stress syndrome

angle eye discloser

back and back of right side of head goes numb

loss of memory

I take 25 pills a day now and feel a bit better,i was taking 35

I like the saying The Lord only gives you what you can handle,and boy he sure is testing me ...lolo


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

For your daughter's biopsy, did they biopsy the area next to the sores, or her intestine? I would think her sores should be biopsied to see if it's dh.

For eating, just remember, meat, chicken, fish, eggs, fruit, vegetables, potatoes, and rice are gluten-free, depending, of course, on how they're prepared. But if you're cooking them at home you know they're safe. Also butter is safe. I don't know much about margerines, so I'll leave that question for others.

Along with the basic food list, if you can have dairy you can have real cheese (some blue cheese and gorgonzolas are not okay), milk, yogurt, cottage cheese, etc. Nuts and nut butters are fine.

I know there are others on the forum who have great lists, but those are the basics for you.

balena Newbie
For your daughter's biopsy, did they biopsy the area next to the sores, or her intestine? I would think her sores should be biopsied to see if it's dh.

For eating, just remember, meat, chicken, fish, eggs, fruit, vegetables, potatoes, and rice are gluten-free, depending, of course, on how they're prepared. But if you're cooking them at home you know they're safe. Also butter is safe. I don't know much about margerines, so I'll leave that question for others.

Along with the basic food list, if you can have dairy you can have real cheese (some blue cheese and gorgonzolas are not okay), milk, yogurt, cottage cheese, etc. Nuts and nut butters are fine.

I know there are others on the forum who have great lists, but those are the basics for you.

I would like to thank you for the information.As for my daughter they biopsyed her intestines but nothing we are waiting for the dermatoligist next week.This is going on 1 and a half yreas now for her,you sure can't get in to see the doc's fast enough,i mean her legs and body are badly scared.I feel very sorry for because she is so beautiful and this has made her so self conscous and shy.She won't wear skirts or shorts or short sleeve's.She is very tall and was a model.Now she is always depressed and down,i just wish i can help her faster. But i thank you again for your help. Bonnie in ontario

CarlaB Enthusiast
I would like to thank you for the information.As for my daughter they biopsyed her intestines but nothing we are waiting for the dermatoligist next week.This is going on 1 and a half yreas now for her,you sure can't get in to see the doc's fast enough,i mean her legs and body are badly scared.I feel very sorry for because she is so beautiful and this has made her so self conscous and shy.She won't wear skirts or shorts or short sleeve's.She is very tall and was a model.Now she is always depressed and down,i just wish i can help her faster. But i thank you again for your help. Bonnie in ontario

Be sure they biopsy next to the sore, not the sore itself. With so many docs unfamiliar with celiac, you will need to be sure this is done! I feel bad for your daughter.

lorka150 Collaborator

hi there, and welcome to our forums.

your weight journey sounds like mine - i started at 125lbs, got quite ill and down to 78lbs, now am teetering around 105lbs, also.

did you, by any chance, lose a lot of muscle in your weight loss? i did, and that is part of the reason of the non-rapid regain.

that being said, if you're worried about your weight, make sure you are eating a balanced diet with a lot of calorie dense foods. Carla gave you some great suggestions, and if you need help with menus, I am more than happy to help!

I'm also from Ontario, by the way. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,722
    • Most Online (within 30 mins)
      7,748

    Diane Pippin
    Newest Member
    Diane Pippin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      In general with pharmaceutical products cross-contamination is a much lower risk.
    • Scott Adams
      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • trents
      Just so you'll know, once you have been gluten-free for any length of time, it will invalidate testing for celiac disease.
    • QueenBorg
      Yes. I have not been tested for celiac. It took forever to get diagnosed with Fibromyalgia. lol. I have an appointment with my regular GP later this month and will convey my findings on improved symptoms and see what his thoughts are. Thank you. 
    • knitty kitty
      @Grahamsnaturalworld, It's never too late.   Have you been checked for Small Intestinal Bacterial Overgrowth?  SIBO can cause ongoing symptoms.  Mast Cell Activation Syndrome (MCAS) and Histamine Intolerance (HIT) can also be the cause of ongoing symptoms.  The AIP diet can help with these by starving out SIBO bacteria and calming the immune system. Do you include dairy in your diet?  Casein in dairy can cause an autoimmune response the same as to gluten.  Have you been checked for lactose intolerance?  Some people lose the ability to produce the enzyme, lactase, needed to digest lactose, the sugar in dairy because the villi where the lactase enzyme is made are damaged.  AIP diet excludes dairy. Do you include grains in your diet?  Gluten free alternative grains and ancient grains can be inflammatory and cause symptoms.  Some people with Celiac react to corn and oats.  The AIP diet excludes all grains.  Lectins in grains can be inflammatory and cause symptoms. Do you eat nightshades (tomatoes, potatoes, peppers, and eggplant).  This family of plants produce glycoalkaloids, chemicals that promote Leaky Gut Syndrome.  The AIP diet excludes nightshades.   Are you on any medications?  Some medications can cause gastrointestinal symptoms.  Do you take any supplements?  Some herbal teas and supplements can cause digestive symptoms.  Medications for diabetes, antidepressants, and other pharmaceuticals can cause digestive symptoms as side effects. Have you been checked for nutritional deficiencies?  Malabsorption of essential nutrients can occur with continued symptoms.  Deficiencies in Niacin, Thiamine, and other B vitamins can cause digestive symptoms.  Gastrointestinal Beriberi and Pellagra are often overlooked by doctors because they are not familiar with nutritional deficiency disease symptoms.  Nutritional deficiencies can worsen over time as stores inside the body are depleted.   Have your doctors checked for all these?   I had a horrible time getting my symptoms under control.  I had to answer all these questions myself.  Yes, it's frustrating and exasperating because doctors don't have to live with these symptoms everyday. Interesting reading: AGA Clinical Practice Update on Management of Refractory Celiac Disease: Expert Review https://pubmed.ncbi.nlm.nih.gov/36137844/
×
×
  • Create New...